posted
Today was just a bad day! I drove to my work today and dropped off the car pool kids at my sons high school. I saw that they started building the new sports stadium. As I thought of him at home sick I cried and said will he ever play in that stadium. He is missing out on so much of life and it breaks my heart. Then at my school where I teach we watched a school wide video on teen suicide and depression and again I started to cry. He is so down in the dumps right now and I try not to let him know that I'm down too! This disease sucks! Sorry guys I just had to get that off my chest!
Amy
-------------------- Amy Holloway Posts: 255 | From Michigan | Registered: Oct 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good evening Amy,
I am so sorry that you and your precious one are feeling rotten recently.
Has he thought about contacting other teens with LD? It may help to share with others the same age.
posted
Thanks I had him go and sign up so maybe he can talk with other kids in his shoes
Amy
-------------------- Amy Holloway Posts: 255 | From Michigan | Registered: Oct 2005
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Carol B
Unregistered
posted
My heart goes out to you. I have two teenage daughters-and life can be difficult under normal circumstances. Although I am the one diagnosed I am thinking of having them tested just to be sure they do not-and they spend so much more time outdoors than I do. Blessings, Carol
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posted
Hi Amy, I am so sorry you have to go through all of this. I'm in your shoes too. Greg only attended 1 year of high school. The rest has been home tutored. It stinks and I wish I could have the disease instead of him.
One thing that really helped Greg was a therapist. He had to see one to rule out that this "mystery" disease wasn't really depression. He liked the dr. and has been seeing him off and on.
Greg doesn't like to tell me when things are bothering him b/c he knows how much it upsets me. So every now and then he'll just ask if we can make an appt. to see the dr.
Unfort. we eventually found out this dr. didn't really believe in lyme. Greg was having issues going into crowds, dealing with bright lights. Dr. didn't believe it was lyme related even with the materials we presented to him.
Greg is seeing a new dr. on Tuesday. Hopefully he'll feel comfortable with this dr. and be able to discuss things with her.
Please feel free to email me anytime if you need to vent or just to "talk". I'm a very good listener!!! Greg would be happy to talk to your son too.
Kathy as always, Posts: 64 | From MA | Registered: Mar 2006
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hey there parents of lyme kids...
I think it sucks...
I also used to think any psychotropic drug sucked and had a hard time finding one that worked for me with the least side effects.
However I did find one! The lexapro I am taking has kept me from going really high(manic) to really low(clinically depressed)...it even helps a little with the SAD...(social anxiety disease).
In as much as these symptoms go hand and hand with chronic illnesses...PTSD related...which perpetuates our immune dysfunction...please try and find a drug to combat this depression etc in your kids...
I hate it when parents and schools dole out adhd drugs to kids that probably don't need them...but where this disease is concerned I believe they are a great help...
Good luck and God Bless..........zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I am so glad you wrote your pain. From a mother's heart I know what you are feeling.
My daughter has missed 3 of her 4 years of high school. She was a theater major and active in student council when she got too sick to continue.
She has been home on the couch for a couple of years now. Her friends no longer call.
You don't want this life for your child, and they don't want to be a burden. We are trying to find a good therapist where she can really unload without worrying about making me feel sad.
One thing she hangs onto: God has a plan.
Your son is so lucky to have you. He will have a life, and you will rejoice with him.
posted
Thanks everyone it helps to know that there are others out there with the same frustration! It just plain and simply sucks to see a child in pain!
-------------------- Amy Holloway Posts: 255 | From Michigan | Registered: Oct 2005
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