posted
Hi- I just need to vent and/or have some questions answered. It's been almost 3 months since getting IV treated (off and on because of liver -I am currently off again last 2 weeks)and I am still not feeling much better. I am also on oral abx. The worst symptom by far is the almost constant dizzines--Does anyone else have this dizziness for so long? I am on disability and was supposed to return to work next week and I know I just can't yet, but I am starting to wonder if I just have to get used to living like this... will it ever go away? How long until the IV antibiotics work, or are they just NOT working for me? Thanks Natalie
Posts: 37 | From NJ | Registered: Feb 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
How long abx take to work vary from person to person and even abx to abx within the same person....
From my expereince as a lyme patient What may be hurting your progress alot is the fact that you have to keep going off the abx...
And if your liver enzymes are elevated there really is no way around it.
For me the first time i was on iv (rocephin) it took 7 weeks to see any improvement at all. And my progress has been slow recovering this time.
Also does your llmd treat coinfections.... If you continue to make no progress with consistent treatment a coinfection may be the culprit.
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Azure is right, going off abx is basically like starting over each time.
I have a similar problem, every since beginning treatment i have had to go off abx. I havent had 2 full months yet. Im out on disability too and wish i could go back to work right now...i swear i would work 7 days i week i woud be so glad to have my life back!!
its tough...our bodies are so beat up and sometimes the load of abx is just too much.
hang in there.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
If I remember correctly, feeling good came in short bursts. Then they happened more often. Slowly, I was regaining my lost neurological abilities....that took about8 years. I was really screwed by Lyme, initially, so recovery was looooong. The good news is that my body now does what I tell it to. I can type. I can stand and close my eyes without falling over. I still have troublecrossing the stream after hiking downhill a mile, jumpy feet. I can work. I have a life! I love my life, most of the time. I still kill ticks
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
My progress is slower than I would like as well. I was on IV Rocephin for 2 1/2 months and even though went to orals for four months relapsed big time because I had not been fully cured to begin with.
I have been on and off antibiotics for the last 9 years. Going off has never been good for me. Now I reduce the # of pills I take per day if the herxes are unbearable.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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