LymeNet Flash: "Excessive daytime sleepiness" or unresolved lyme?

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»	LymeNet Flash » Questions and Discussion » General Support » "Excessive daytime sleepiness" or unresolved lyme?

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Topic: "Excessive daytime sleepiness" or unresolved lyme?

BugBarb
LymeNet Contributor
Member # 210

posted

I was on ProVigil for 3 years because I kept complaining to my doc's about always being sleepy, yawny, and generally not feeling like my brain ever completely woke up. Well, I changed insurance companies and got denied coverage for the drug. I am jumping through hoops with a sleep doctor/neurologist (good guy) doing sleep study, bloodwork, trying sample meds...in an effort to get a diagnosis and then either be fixed or treated. He put me on REQUIP and it was sheer hell. I may jerk and twitch at night and even wake myself up screaming, but I had every side effect listed on the package....lasted 10 days on it out of just being stubborn, but had to stop.
I have 2 theories. I find number one jto be the most sensible. I have been off antibiotics for almost 3 years.
1. the Lyme disease caused some CNS damage that triggered the daytime sleepiness problem.
2. it is caused by another possibly active disease process......

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Lyme is like the flu. You can get it and recover, but you can always get it again.

Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000 | IP: Logged |

gael1111
LymeNet Contributor
Member # 8816

posted

You may want to consider getting retested by LLMD. Sounds like you might still have lyme. Brain fog is major clue for neuroborellia.

The meds kicking up some lyme symptoms, could be just that. Just my opinion as a possibility that you might not want to neglect.

Hope this helps.

Gael

Posts: 121 | From philadelphia | Registered: Feb 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Hi Barb!! Good to see you again!!

Have you been treated for babesia? ARe you thinking maybe you have narcolepsy from the Lyme?

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--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

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