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» LymeNet Flash » Questions and Discussion » General Support » Wish I could say I'm doing fine.. BUT

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Author Topic: Wish I could say I'm doing fine.. BUT
livinlyme
Frequent Contributor (1K+ posts)
Member # 3773

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seems I am not ..
Well I could have told anyone that but I keep fooling myself into believing otherwise...hmmm.... or we will be homeless and/or dead!

I have found out with proof that being on state assistance that you will not find out how poorly you are doing until you get on some other form of insurance ( like through a job) sad but true.. I know that the ER had an ekg report indicating I had suffered a heart attack .. funny but I have most every report on hand; in file of about 3 1/2 inches thick! all expect the LLMD's I do not need a file on them .. just the other ducks cause I don't trust them for one fraction of a sec!!!

cardio up north dismissed it and said I was fine and they would make an appointment for me to follow up in a year just to make sure I didn't fall of the face of the earth.. This was all around the time I lost my husband and found out on autopsy that he also had LYME!: UNDIAGNOSED AND UNTREATED LYME!!!! IT KILLED HIM!>>>>

seems now that I have health insurance that the EKG shows that the ER EKG was accurate and I did suffer a heart attack..
well gee that might explain my god awful chest pains and the SOB I have been dealing with.. now explain the joint pains and don't be telling me it is arthritis cause while on ABX I had no joint pain after 3 months of being on them!!!

JERKS!

well abnormal EKG and I also have an abnormal chest x-ray...
I have not found out what is abnormal about it, but it is abnormal.. now if it is simply shadows I know that a couple of rounds of levaquinn will resolve this .. but if it is spots.. they had better run another test before I have to swallow that path of torture

I know I feel tired and worn out all the time ..
I know I have not been on treatment for LD for a year now.. shame on me.. but the ducks down here say 3 years on abx is far too long.. ha!ha!ha! shame on you ducks!!!

I am going to Dr. H on July 25th I am sure I will be getting better soon.. and now my boys will have help too!!!
finally we have health care and T.G.! he works with them!!!
I'm just so glad that we have used what AB's we have here for my eldest son who had the heart issues cause I know for certain now that had we all used them over the year that he would be far worse than he is now.. might even be dead too..
I hate the system and what the insurance companies are doing with this and treating it as if it were a laughing matter .. it is not it is a killer and no one can tell me different ..Lyme took my husband in 2003 and then my father in 2004 and I am sure not going to let it take another life from my family without letting everyone know just how I feel about this horrible disease it is a killer and don't think anything less .... take the treatment even if you don't feel 100% if you stop it you might feel 100 times worse!! as I do now,, only 1 year later....

oh the good news is I passed the mental test to get eh surgery for my nuero stimulator hopefully get me off the fenytal patches and give me a sharper mind again and so I can feel the rest of the aches and pains my body is having..
well everyone in my family will now be treated for LD again.. as soon as we can get them all in to see DR. H. may take a while but we have more hope now....
WARNING: DO NOT STOP TREATMENT!!
[Smile]
Linda D

--------------------
"Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it."

Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
URsodeer2me
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Member # 2258

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Wow!

You have been through so much and have lost so much, and yet you have a good attitude.

I hope you find some help on july 25th. Good luck, and welcome back.

Posts: 167 | From Sunny side of the street | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
jggrl
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Member # 9470

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LOVE the quote (no pun intended [Wink] ) You are AMAZING and quite an inspiration...keep it up.
Posts: 89 | From UT | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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Linda, I'm breaking this up into short paragraphs and double spacing between one for us neuro lymies to read/comprehend.

quote:
Originally posted by livinlyme:

seems I am not ..Well I could have told anyone that but I keep fooling myself into believing otherwise...hmmm.... or we will be homeless and/or dead!

I have found out with proof that being on state assistance that you will not find out how poorly you are doing until you get on some other form of insurance ( like through a job) sad but true..

I know that the ER had an ekg report indicating I had suffered a heart attack .. funny but I have most every report on hand; in file of about 3 1/2 inches thick! all expect the LLMD's I do not need a file on them .. just the other ducks cause I don't trust them for one fraction of a sec!!!

cardio up north dismissed it and said I was fine and they would make an appointment for me to follow up in a year just to make sure I didn't fall of the face of the earth..

This was all around the time I lost my husband and found out on autopsy that he also had LYME!: UNDIAGNOSED AND UNTREATED LYME!!!! IT KILLED HIM!>>>>

seems now that I have health insurance that the EKG shows that the ER EKG was accurate and I did suffer a heart attack..

well gee that might explain my god awful chest pains and the SOB I have been dealing with..

now explain the joint pains and don't be telling me it is arthritis cause while on ABX I had no joint pain after 3 months of being on them!!!
JERKS!

well abnormal EKG and I also have an abnormal chest x-ray...

I have not found out what is abnormal about it, but it is abnormal.. now if it is simply shadows I know that a couple of rounds of levaquinn will resolve this .. but if it is spots.. they had better run another test before I have to swallow that path of torture

I know I feel tired, and worn out all the time ..

I know I have not been on treatment for LD for a year now.. shame on me..

but the ducks down here say 3 years on abx is far too long.. ha!ha!ha! shame on you ducks!!!

I am going to Dr. H on July 25th I am sure I will be getting better soon.. and now my boys will have help too!!!

finally we have health care and T.G.! he works with them!!!

I'm just so glad that we have used what AB's we have here for my eldest son who had the heart issues cause I know for certain now that had we all used them over the year that he would be far worse than he is now.. might even be dead too..

I hate the system and what the insurance companies are doing with this and treating it as if it were a laughing matter ..

it is not; it is a killer, and no one can tell me different ..Lyme took my husband in 2003

then my father in 2004, and I am sure not going to let it take another life from my family without letting everyone know just how I feel about this horrible disease

it is a killer and don't think anything less ....

take the treatment even if you don't feel 100% if you stop it you might feel 100 times worse!! as I do now,, only 1 year later....

oh the good news is I passed the mental test to get eh surgery for my nuero stimulator. .

hopefully get me off the fenytal patches and give me a sharper mind again and so I can feel the rest of the aches and pains my body is having..

well everyone in my family will now be treated for LD again.. as soon as we can get them all in to see DR. H. may take a while but we have more hope now....

WARNING: DO NOT STOP TREATMENT!! [Smile]
Linda D

Wow Linda; my heart is so sad for all you have been thru.

Did you get LYME disease as the cause your husband's death?

Best wishes and continue talking out your grief, anger, and sorrow.

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