hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
hey gang,
just wrote a long note which got lost, so i'll say this quickly. way too much to do at work.
went to the big doctor and he thought to go off of atx and see what happens. diflucan and supps for me plus my regular regimen of non-lyme related pills.
this is day one!!!
still have some brain and tiredness issues. but better than i was.
yeah
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Congratulations!
Posts: 1230 | From US | Registered: Nov 2005
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Keep in mind that you will need to be careful of yeast for quite some time yet. Don't decide to eat whatever you like since you're off abx.
I found that out the hard way....
Keep us posted on how you're doing off abx!
Onward, forward!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hopeful,
That is such great news and so inspiring for those of us who haven't quite reached that point.
Keep us posted and, congratulations!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
Great news! Congratulations!
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
thanks everyone!!!
i'll still be around.
lymetoo - i'm taking the diflucan and watching the carbs - especially sugar. i probably should know this, but what happened? i lost track. wow, that's surprising.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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posted
I will keep this happy thread up and running by letting everyone know that i have been off abx since feb.2004. Am i 100% lyme free?? NO. but i dont think that can happen anyway, as bad off as i was..I do take lots of mg ride my bike alot and live a normal life (even though im not normal)..It can be done. To those of you going abx free, enjoy your life away from the nasty drugs....i know i have
greg
Posts: 740 | From frederick,md,usa | Registered: Jun 2001
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
hey greg,
i'm happy for you, too! thanks for the encouragement! crossing my fingers - day two
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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Avoid sugars, breads, fruit juices, and pastas for awhile.
These will help your body clear out the crappies and keep your symptoms at bay.
I pray you are better...dare I say cured? Can we ever be cured?
Hopefully one day....
Congratulations.
Not to rain on your parade, but after 14 years I have seen many remissions and relapses. The good news is the relapses are fewer and farther between and less intense than previous ones. You may have to have some regimen for the rest of your life, but don't let that get you down. Keep fighting. Not to squash your hopes, just being realistic. OK I'll go away now.
-------------------- PJ
www.LymeLeague.com"Together We Grow Stronger" Posts: 139 | From A tiny little home office in the middle of Wisconsin | Registered: Feb 2005
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I have been off since June 2004, after 5 years of abx therapy! Watch the stress. I am doing very well, but find in times of stress, symptoms do act up. It does not scare me to much anymore.
Hang onto your supplements, you will need them for a long time. I still continue to take those extras to keep me on the "straight and narrow"!
Will we ever be cured? Probably not, but we can call it remission!
Remission gives us permission to live and enjoy life again!
Enjoy life, live well and love often!
Congratulatons!
JJ
Posts: 919 | From Minnesota | Registered: Jan 2001
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
oh hopeful this is such fantastic NEWS!!!
Can you post more about your story in success stories? I would love to know more about what you went through and how you got to where you are. ANd I know it wont be the same path for me.
Hooooray for life without ABX!!
I am so happy for you--thanks for sharing this, Trails Posts: 1950 | From New Mexico | Registered: Sep 2001
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
limelighter, jj, and trails
thanks for the kind words. i know i'm not "home free" (what ever that means), however, if i can stay off of the atx and not feel (mentally) like I'm so sick, it will be a real plus for me. Just to not worry about taking meds with meals and sitting up after the last dose, even if it's ten o'clock, is a blessing.
still have anti-depressants, anti-anxiety(non addictive - buspar), thyroid, cholestoral, acid reflux to deal with. the latter, hopefully, will lessen without the atx.
food is a struggle. always has been. need to get straight with that and also to EXERCISE (i know, the e word!)
tired, pushed too much this week....thank goodness i have half a day today and then don't have to be back here until wednesday!!
the stress level has been a real issue at work, but i think i had a sort of breakthrough about it. wanna know what? if i don't choose to let things roll off my back, i'll be on my back! the doctor and talked about meditation which i taught at one time, and do now in a very uninspired way. time to get serious about meditation again!
i don't know what number to apply to my wellness - nowhere near 100, maybe a range btw 75-90, depending on what we are talking about - brain, tiredness, a little achy at times.
right now it's time to go back to work...
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Yippee!! I'm so happy for you! I wanna be there, too!
Soon, soon!
Enjoy your antibiotic-free life and keep getting better.
And don't forget to keep posting, to inspire the resta us!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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