posted
I had the blood test done on Friday and today (Tuesday) I called and they said my Lyme test was 0.6, so no Lyme detected. I am pretty sure I have it because I had the rash last year about a month before I started getting sick. I have read that the test is not very accurate especially since I did a short round of antibiotics about 6 weeks ago for a respiratory infection.
Any way just wondering what the 0.6 means. I don't want to waste a trip in for him to tell me, no you don't have Lyme. I also had Thyroid testes and it was 1.10 so that is not the problem also.
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Hmm, I think we'll need a little more info Snap. Generally, they'll have a record of the bands. It would look something like this:
18 + 23- 25- and so on.
Do you recall the doc mentioning anything like this ? May want to see if you can get your hands on the actual test results. It sounds like they've given you some type of summation, which I wouldn't trust at all. Do you know which lab did the test ?
If you had the rash, then you have lyme. Period, end of story. Blood tests are often faulty.
In the future you may want to post questions in the "Medical" forum. Much more traffic and you'll get many more responses.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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posted
I was just thinking also. Besides having taken a short round of antibiotics six weeks ago for a lung thing, I am on Advair for asthma. Isn't that a steroid of some kind? Then could that also be part of a false negative?
Posts: 10 | From Quad Cities Illinois | Registered: Jul 2006
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NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
The biggest problem with false negatives is these labs don't know how to read the tests or the sample gets contaminated.
People can have specific bands for lyme like #39 for example and they'll rate it as a negative result when in actuality you have it.
Some doctor's are under the assumption that 6 different bands need to be positive before they'll give a lyme diagnosis. It's a total mess, not one easily corrected. Now, you know why board members stress seeing a lyme literate doctor.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Morning snap-
Sorry you have to join the party but glad that you are trusting your gut.
Your lung "thing" deminds me of my lung "things" before I realized I had lyme. I never had lung issues and suddenly had acute asthma and infections. I wanted to avoid steriods so decided to take up running to make my lungs as healthy as possible. It was only then that I developed transient arthritis and I realized lyme was the real problem.
I became very sensitive to molds and had some real issues for a time, but with good lyme treatment all that as gone away, my lungs are fine now.
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