Topic: Blackbirdsings needs encouragement and prayers
char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Hey everybody,
"Blackbirdsings" who joined us several months ago really needs our encouragement. She is a talented young woman-an actress you may have seen on TV yourself.
She got diagnosed with lyme and had piccline inserted. The piccline had to be pulled because she had a 2.5 inch blood clot near here heart!
She was in the hospital, but now is at home.
Her doctors, including Dr. J Charlotte agree that she has some undiscovered condition that is affecting her health along with the lyme.
Her lyme treatment is suspended for now as her immune system is not functioning well. She is in constant pain. Very bad fatigue.
She is being referred to an out of state center to try to find out why she is so ill.
Blackbird is not up to posting; but she reads here daily.
Please pray for her to get some answers and relief!
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Blackbirdsings >>>>> Hold on Hon',prayers and blessing tho'ts goin' up for you!!!
Creator will not let you fall sweet one!!Don't give up,rest,breathe deep,and rest somemore. I know you are in pain right now,and it makes you so very very weary.
It is your bodys way of showing the caregivers soemthing still isn't right.Sweet Lady don't give up. I Thank Creator the clot was found before it could damage your heart!!!
Will keep you close in heart and prayers..Love from Sivlerwolf!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Carol B
Unregistered
posted
to Blackbirdsings.
I was at my LLMD's today and she asked why I had not filled in all of my daily log-and I had to answer her because some days just all blend into each other. Feels like there is no beginning and no end.
I am sorry you are feeling so poorly. I want to say "I know why the BlackbirdSings-on her darkest day she believes in Spring!"
I truly hope they are able to get to the bottom of what sickens you. I remember a moment of despair, before I was diagnosed with Lyme, sitting in my therapist's office , crying, and saying "I just know there's something REALLY wrong with me-but I don't know what."
Even now, with knowing , I still wear a CD headset that pipes Christian Praise music into my brain for most of the day. My heart goes out to you. I will pray for you.
posted
....take these broken wings and learn to fly All your life, you were only waiting for this moment to arise ...
Posts: 30 | From conn. | Registered: May 2006
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posted
Hi Blackbird, So, so, sorry that you're having such a difficult time, but I'm glad that you visit with us daily.
Want you to know that I'm sending lots of concern & support, but most of all, sending prayers for you to receive the strength you need to get through all this.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey blackbirdsings
Some day soon you will mount up with wings of eagles
You will run and not be weary
you will walk and never faint
I hope and pray they can find out whats wrong and you can start to feel better soon
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
"where does the power come from.... to see the race to its end?...From within."
Chariots of fire
Hang in there katherine
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
"what we do does not define us...What defines us is how well we rise after falling"
((((katherine))))) You rise with so much gentleness
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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bettyg
Unregistered
posted
Katherine, my online friend; I am saddened again to learn you still are not well and about that blood clot being so close to your heart.
You have and will continue to be in my thoughts & prayers. Glad you are still able to read even though you do not have the energy to respond.
You and iceskater were in the hospital at the same time, and I was wandering why I hadn't heard from either of you.
Best wishes the CULPERT is found that is making you so terribly sick. I know traveling has been really hard on you, so I pray to God to make you as comfortable as can be.
Have Char keep us updated ok! Katherine
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Katherine/Blackbirdsings Chere' >>>>> I hope the pain is lessening today,and that the medical teams are closer to finding out what is causing the issue,or that they may have found out already!
Prayers going up that,you are feeling much better soon,and the Dx will not take long,or be to hard to treat!!!
from the Silverwolf!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Blackbird ~ I hope they figure this out and get you some relief soon. I've been thinking of you often. Hang in there, I wish there was more we could do.
Many healing thoughts and hugs, trueblue
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Thinking of you and hope you find times of NO PAIN and relief in your days.
Posts: 1950 | From New Mexico | Registered: Sep 2001
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posted
Thinking of you too and praying for strength and hope for you and wisdom for the docs.
Posts: 89 | From AZ | Registered: Mar 2006
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
hope you will feel better really soon. we're all thinking of you and wishing you well.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Hi blackbirdsings
I hope they find the other source of your suffering quickly. And wishing you the strength, determination and hope it takes to get through such a trying time.
I am so sorry to hear about your predicament and unrelieved suffering.
It was so kind of you to write to thank me some time ago for posting the article from the AARP magazine about inadequate pain management.
I've been wondering how you are doing and wishing I had something to suggest in addition to consulting a specialist in pain management.
I do so hope that the facility that you have been referred to will be able to help.
The following quotation has helped me through difficult times; I hope it may you as well:
"If I keep a green bough in my heart, the singing bird will come"
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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posted
Thank you Char for starting this support thread for me! I had no idea how much I needed an extra boost, extra support and prayers until I started reading when this was started.
It truly brought some tears to my eyes and this thread has been helping me through a rough a frustrating week. I am just very toughed by the outpouring of support from people that probabaly understand how I feel these days better than anybody else.
I now have a pain management doctor so my pain is no longer unbearable all the time. I keep having break through pain, and once I hit that high 9 for pain I am slammed worse for days. Getting to a pain management doctor has been one of the most helpfull things for me.
We have frustrations over one doctor not approving of patients taking strong pain medicine. We are going to ask the pain doctor to talk to that doctor. The negative attitude adds too much stress to me and my family already having a tough time.
I am no longer suffering all the time, and struggling to be able to rest or get up to go to the bathroom because the pain stops me from moving. Sometimes that still happens but it's not non-stop.
The clot side is giving me fits and I am terriefied about damage as it has continued to hurt more and more and not calm down at all. Today we got me in with a vascular surgeon but its not for two weeks.
We will call on Monday to ask what I need to do till I can get there, and if I can be seen sooner due to the circumstanes.
I have trouble typing for long lately and am trying to lay still, watch movies, read, and listen to good music. If I have trouble typing alot here, I will try to make sure I keep updates coming through Char.
Right now I need a medical center that will figure out what is wrong and not ignore abnormal bloodwork. Doctors in my area are not wanting to deal with whatever is going on or even contact the medical center I will be going to, about what to do for me until I get there. We are unable to understand a doctor not doing everything they can to help a patient.
We should hear Monday on the date I will be going to the medical center. As of now it looks like October, but we are praying for September or even better August.
I think I am forgetting something here, but please know I take great comfort in everybody's messages and will continue to read the supportive messages over and over again.
Since we do not know how to make me better yet, the kind words, and prayers help me through. Thank you all SO much!!
Posts: 114 | From USA | Registered: Sep 2005
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Oh Chere' <<<<< Blackbirdsings >>>>> I will keep praying that the clot does not do any damge and they find what all is wrong very quickly.
MAy Creators healing love reach out right now,and touch you,so that you don't have any of those over 9 pain days !!! ANd May your care teams be given Holy wisdom ,and listen to it, so that you are feeling better than you have in years...right quickly!!!
It is so good to see you typing,even if you cannot do it often! Please keep us updted,thru Char or however is easiest!!!
Just the Prayin' Silverwolf loco-lobo-lady...wanderin' along!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
I'll keep you in my thoughts. I'm sorry you are not getting answers. Hopefully you won't have to wait too long to get admitted to the medical center.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Black Bird, my daughter had some real challenges when she was on a picc line..Air embolisms, one line just fell out and then the clot..
She had to take coumadin for a while and be cautious of activity..Mostly rest, if I remember correctly.
She also had a major issue with pain that even oxy codone did not touch..I think the IV meds did enough good that they knocked it down..
She also had to have an occasional valium to get her thru.
Good luck..these diseases are Hell..
Posts: 2360 | From SE PA | Registered: Mar 2004
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bettyg
Unregistered
posted
Katherine, thanks so much for posting! Glad they now have your pain under control.
Hope they find soon the reason for the clot, etc. Anyway, you are STILL in my daily thoughts & prayers.
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posted
To My dear friend: You hang in there, will always be with you to hold your hand and to give encouragement. I sent you a lyme book this past week. Hope it has arrived by now and that you are having a stronger day!!! Posts: 719 | From Delaware | Registered: Jan 2006
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PJ here, you don't know me yet but I am praying for you kiddo!
I hope that the clot dissolves on its own and that your days will soon become pain-free. How frightening for you to deal with all the pain and health issues you have...
I KNOW its hell to go through what you are going through, but you have lots of supportive, loving folks around you who are praying for you, including me. Know that the days that you are going through, although challenging and sometimes seemingly impossible to endure, will in the end, make you a stronger, better person on many levels.
I pray that the right doctor will help you discover your underlying condition and move you to a place of wellness as quickly and easily as possible.
Keep your chin up, and spread those wings, one day you will truly FLY.
Your friends in Wisconsin are praying for you. -------- "If you're going through hell, keep going" -Winston Churchill
-------------------- PJ
www.LymeLeague.com"Together We Grow Stronger" Posts: 139 | From A tiny little home office in the middle of Wisconsin | Registered: Feb 2005
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I put a note up,on our Gumbo Ya Ya PnBs board for you. This is the 'Gumbo Ya Ya' version of a prayer/good healing vibes/kind hopeful tho'ts board. [ I found this Lyme board because of the Gumbo-ers ].
They are sending hopeful tho'ts and hugs your way too!!!
Hope you are feeling better,and that you get an appt. soon w/ cardiac surgeon.Am so glad they found the clot,praying for no furhter damage honey!
Silverwolf a wanderin'!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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