Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by Ann-OH:
Why should she be in trouble? Sounds like she was trying to be helpful.
John, I'm with Ann-OH here.
Why on earth would she be in trouble???
If anything, she seemed to be pushing you TOWARD the church, not away from it, so no one can accuse her of that!
Sheesh.
Perched on the tip of my tongue is something like 'durned archaic silly religious buncha old guys in robes are paranoid that she is possessed of evil powers', but fortunately I know better'n say that since someone'll prolly get mad at me, so I better shaddup...
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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kelmo
Frequent Contributor (1K+ posts)
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posted
Nope, that's a good question. I was wondering the same thing myself.
Posts: 2903 | From AZ | Registered: Feb 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
John,
Remember that only you can interpret what happened. Only you can determine your future.
I do agree with others that it is difficult to make a life altering decision when you are sick. Of course, I have made those decisions. But I would warn about any decisions or actions that would close future doors.
-A
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
John,
Just wanted to thank you again for sharing this story. I don't post often, but have been very interested in it - so thank you again. For everything you've shared. You have no idea how many people you have likely touched.
The LDN you mentioned - I don't know that drug - What is it?
Sorry to be a bit off topic, but I also have plaques/lesions in my brain, and was previously dx'd with MS, to find out they were more likely caused by Lyme. My LLMD has been watching carefully to see whether I develop new or worsening MS-type symptoms, and she has told me that she will treat those (if they occur) symptomatically, but that they would be a result of the Lyme and other co-infections. So when you mentioned LDN, my ears perked up. Please keep us informed of your progress on it!
Wishing you only good things...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
The drug I am taking, aside from Doxycycline is called LDN (Low dose Naltrexone). Doctor P in CT was glad to presribe it.
After 3 days my leg weakness is gone. It is known to erase the lesions as well. It is FDA approved, there are no side effects. Many MS patients, as well as patients of other diseases, have abandoned the other drugs and it works.
quote:Originally posted by lymelighter2: AS for your faith being lost, put it right back where it belongs. Life tests us immeasurably, to see if we retain our faith, even in the toughest times.
YES! My faith has been immeasurably strengthened by my illnesses. Yours can be too. Give it time. You are struggling right now with your new diagnosis. It's tough to handle.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LostCityAgent
Unregistered
posted
Thank you friend, I will keep that in my heart. So many of you have been so good to me. I am, however, a little bothered that I shared this story.
Maybe next time I will share "Martini Girl"
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Ann-OH
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lymemomtooo
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Member # 5396
posted
John, I think we are all just curious and want to understand this better..Many of us also feel we have been touched in some way..
I do not think that Ann has any ill will in this..She is very dedicated at saving lives and helping others..so try to not misread her thoughts..
Perhaps you are so involved in the incident that you expect others to react in some weird way..
There have been some on the board before that would be very mean but Ann is definitely not one of them..
Good luck sorting this all out..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Thanks for the info on LDN! Looks interesting - I'm going to look into it further, and would love to hear more of your results as time passes.
Wishing you well, Susan
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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LostCityAgent
Unregistered
posted
My father is dead, as I said in the post that you were searching for quotes in.
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
John, you are cruel and suspicious in your response to Ann-OH.
I am very surprised at you.
There was a time not long ago when you credited this board with saving you from your darkest hour.
Today you coldly rebuff those who try to understand and help, and announce your departure.
Tomorrow you would put on a cloth to minister humility, love and understanding to others.
This serves to remind me why God speaks to me in my heart, and not in any buildings attended by man.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
My dear John,
Words can hurt. 'Shouting' in capital letters hurts. Telling someone to "BACK OFF!" is just mean. It is common practice to quote text when making a reply, for accuracy's sake; that does not constitute some imagined personal affront.
I have seen nothing but support and understanding in this thread. Or at least an attempt at understanding.
Why don't you try ascribing the very best of intentions to everyone until proven otherwise?
I do understand you are having a lot of inner turmoil at the moment. But no one here is the enemy.
All the Catholics I know are shockingly backslidden, including my mom! :-) So I can't imagine what anguish you're going through in that regard.
However, here is something to consider. It's rooted in Eastern religion, so stop reading if you'll turn into a pumpkin or anything. The basic idea is that before anything drops out of your mouth or -- as here -- before you push the 'send' button, does it meet these three little tests:
-Is it true? -Is it necessary? -Is it kind?
If all lights are green, hit the gas. If not, back to the drawing board.
Be well. Glad the new med is helping so much.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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LostCityAgent
Unregistered
posted
I am very very sorry everyone. There is no excuse and anyone who truly knows me and I mean truly would tell you that this is way out of character for me.
I am under a horrid dark cloud, the parley in my mind is so hurtful.
I am in pain and Lyme disease is just one thing.
Please forgive me. I misread and read into words without discernment.
So many have bene so good to me, but Michelle has been with me literally day and night on here and has rescued me from God awful despair.
I hadn't checked my PMs and I saw one she sent that was overlooked.
She is truly a gem of the brightest kind.
This is a typed message so I cannot convew true sorrow here.
I can only say, that I am tormented and have been for about 4 years.
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
John, Peace be with you.
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
John, I am very aware of the horrors and rages of lyme and what it does to good people..So I do understand and sometime, perhaps, you can send Ann a bit more personal note..
I know she is only here to help..Thanks and may you soon be on the better side of this Hell...
Posts: 2360 | From SE PA | Registered: Mar 2004
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
My dear John.
You don't think you're getting rid of me that easy, do you?
I remember back in the darkest days in early treatment where I positively lost my sense of humour. Nothing was funny. I was actually annoyed by other people thinking anything was funny, so sullen and withdrawn was I.
I don't know how anyone stood me.
This infection in your brain which is called lyme disease can make a person act very out of character.
On top of that, you've got life altering events unfolding around you when your brain is doing well to get you through each day.
We are not here to judge. Each one of us is a 'work in progress,' last I heard. I know I am! (Or that's my excuse and I'm sticking to it.)
I know you are going to keep getting better and do much for the Lyme community. I know you will help others on their path. And learn to trust a little, too, that these cyberfriends, though unmet, really care about you.
No apologies to me needed. Just trust!
Now, what's up with that Richard Simmons signature??
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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LostCityAgent
Unregistered
posted
Thanks Michelle. I was sad.
I will make sure that I am on top of my feelings. There are just so many things.
I am glad that you believe in me. I need to believe in me too.
I think that Richard is hilarious. That was off of his ex. video. He is a freak.
So funny.
Did you know that he had been a Catholic seminarian in his younger years?
This woman, seemed to be evil. There are so many knots that I cannot share due to the protection of others, but trust me: she had a priori knowledge of me and it was a hoax.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
John,
Thank you for sharing and being honest. Whatever the reasoning behind what happened, it did happen. It made you feel something and it made you explore your current circumstances and your future.
Allow it to be a growing experience. An opportunity to continue searching for your future path. Or maybe it is the beginning of a future best-selling suspense novel.
If you ever need support, remember that your Lyme family is here for you.
-Aniek
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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I have never herd of LDN before you mentioned it,thank you... I have been reserching it all week and plan to start soon. So inivertenly you are helping many, I just thought i'd point that out.
Here's praying the LDN helps me as well. God Bless,Terri
Posts: 203 | From tipp city oh.45371 | Registered: Jul 2003
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