in AIDS, until they got radical (such as spilling blood on the steps of St Patricks Cathedral) .. they were treated somewhat like Lyme patients. -- but they still do not know or divulge efficatious treatments or info on AIDS.. simply they have found drugs to market. Whether or not they are efficatious is another story --
In Cancer, the major medical businesses and FDA found an expensive treatment to tout (albeit with a ****-poor efficacy rate which has not increased in 50 years) .. as they have run all other more progressive treatments with much better results literally out of the nation on a rail.
Lyme is a bit different. Clearly there are financial ties and interests (from insurance to top government officials to real estate)... as well as unique political concerns that make this disease different than the others.
Think about it. Those who are trying to say the chronic condition is remote, and in early stages is treated in a matter of days --
are the same folks involved in developing a VACCINE -- (a vaccine for a benign illness?)
Something ain't right.
We have enough info and enough patients and enough reports to blow this out of the water.
It's really a matter of getting organized.
-- the fraction among LL activist groups is a real drag and detriment to the cause IMO.
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Rheumatoid Arthritis
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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Fibromalgia
Posts: 89 | From AZ | Registered: Mar 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Yeah, I'll second the vote for Chronic Fatigue Syndrome and Fibromyalgia. I got CFS during the big outbreak in the summer of 1984, before CFS had any kind of name - even before it had all the names like Chronic Epstein-Barr Virus, and my favorite - yuppie flu.
It was the same as being a Lyme patient - going from a young, athletic, successful person overnight to someone who had to crawl across the floor of the room, couldn't remember where I lived, etc.
Was told I was being an emotional woman, I was a workaholic, etc.
At least CFS and fibromyalgia have a name now, and while many doctors still won't recognize it, can even be a valid claim for disability.
My Lyme experience of the past four years is very much like my CFS experience - I feel like I'm reliving it. The only difference is having insurance reject paying for antibiotics with Lyme, versus back with CFS there were no medications available then - just the beginnings of some very experimental antivirals.
And the medical community wonders why we go running to alternative practitioners, herbs, etc. when we can't get help!!
Thanks for letting me rant.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Cervical cancer. Conservative politicians and activisits have publicly voiced opposition to the HPV vaccine, the vaccine for the virus that can cause cervical cancer, because it might encourage premarital sex.
Physical disabilities. There was a time when a child with a disability spent her entire life in an institution away from her family.
Most mental disorders.
And I will repeat, HIV and AIDS.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Pain treatment in general. We use law enforcement standards to investigate and prosecute drugs for treating chronic pain patients. All under the name of the War on Drugs.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Aspartam in food
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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