posted
Since I have started recording things on lyme log, I have a better record of how I am doing.
I would like to post a summary here every 6 months. I am hoping others will join in and also update us on how you are doing.
1. I was able to get out in the power chair for an hour to 2 hours 23 out of 31 days in July. (Big improvement since I was pretty much bedridden for many months/years)
2. I slept through the night 3 out of 31 days. (Not good. I usually slept through the night when I lived in CA. not sure why the change since moving.)
3. I was able to take a bath or sit down shower 9 out of 31 days. (This is an improvement. I also am usually able to dry off, and get dressed now without having to lay down and rest in between drying off and getting dressed)
4. I was not able to prepare a meal in July.
5. I as not able to wash dishes in July.
6. I was able to go to the grocery store 2 out of 31 days in July.
7. MILESTONE: I am able to read now.
Comprehension needs work. But, I read 3 novels in July....I think. I understood very little of the CLIMB and am not sure why. But, I was able to take in more of the two historical, Christian Gold Rush fictions.
I was not able to read yesterday because my arms went back to being too weak to hold the book upright. But, I think the processing, vision, etc would have worked yesterday.
8. I was able to go to church 1 out of 31 days in July. I took my Lafuma recliner and used it at church. IT worked well and I was able to take in what was being said.
9. WOW Days were 4 in July. This means I was able to hold myself upright in the power chair for longer than usual. Most likely for 4 hours at a time. MOst likely out and about in town.
10. Down and out days were 2 in July. This is were I need to fully recline, not move, talk, keep in a dark room, can't listen to TV, etc.
The brain feels as if it is swollen. I usually have a feeling that someone is poking me in the eye with a stick. When it stops the eye starts to water. I take excedrin every 4 hours to take the edge off.
The good news is that i am able to drink water and eat a little. IN the past, I was not able to keep even water down. I would be dry heaving and had the runs. This would last for about 3 days.
The chemistry in the brain changes on these days also the wind is taken out of my sails so to speak.
I think about no longer going on during these times. I am learning to wait it out and know things will be better and to just get through it.
I still am concerned that one of these times I will decide not to wait it out. But, have no plans on how to do this so or have the courage to do this so I think I am OK.
Very strange how the brain changes during this time and i no longer have the fight in me to battle this.
11. I was able to take the trash out and get the mail all of July. This, too, is a big improvement from the past.
12. I was able to do the laundry 3 out of 31 days in July. Two of those days I had help and could not have done it myself.
Meds in July:
IV Rocephin
Some IV glutathione (Friend paid for this so I did not continue it. $200 for 3 small vials)
Vitamin C
Ursodial
Zithromax
B12 shots
A sulfur drug which I will record later
Diflucan (I am to take one a day but since insurance will only allow me to get 4 at a time, I was not able to be consistant with this.)
OVerall, I am seeing improvement.
I also am no longer having to be flat on my back but am able to recline in a recliner during the day for the most part.
I recently move my computer next to my bed and I am laying down while I type this. I am hoping the down time will allow me to be upright more often.
The ability to get out in the power chair is very nice.
The ability to read is a milestone for me.
And the ability to take more sit down showers is very nice.
I also am noticing the brain is working better.
I am able to do the multi tasking it takes when I am out in the power chair to watch for traffic, etc. for the most part.
I am able to go through my logs and do this.
My hope is that I will also be able to add being able to go to church or Bible study more each month.
I also am not sure why but my fingernails are hard and growing. (This stopped when I stopped the glutathione)
The curl came back in my hair. (Again, this was glutathione related and my hair is back to being wavy only)
When the lady cut my hair she said I had a lot of new growth. She said it looked like someone had taken a razor blade to the hair near my head.
In the past, i would pull balls of hair out of the drain of the shower and was loosing a lot of hair.
[ 16. August 2006, 02:26 PM: Message edited by: Happy Camper ]
Posts: 89 | From AZ | Registered: Mar 2006
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Being able to read again is major!
I am so happy for you!
Don't forget to tank up on your pro-biotics!
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
bettyg
Unregistered
posted
Hi there! thanks so much for posting your "upper" remarks of improvement.
May I suggest you COPY YOUR LINK HERE, and show it in the SUCCESS STORIES someone has posted here? This way they can read it, and as you add more to THIS current link!
It's posts like yours that touch my heart daily. Makes me so glad for what I CAN DO DAILY that I still take for granted. Thank you for waking me up to reality and thankng God each and every day for these things and my husband's loving 24/7 support & unconditional love! Bettyg
IP: Logged |
I figure I need to make the best of things. This is not to say I don't have my dag nab it times. But, it seems people like you and others come along and help pull me out of them.
Looking forward to posting a picture of me at one of the Lyme Floats.
This will mean I am well enough to get there and enjoy it.
That will be followed by another pic of me back in the clasroom. :0
Posts: 89 | From AZ | Registered: Mar 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[woohoo]](graemlins/woohoo.gif)
![[spinning smile]](graemlins/spinsmile.gif)
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic