Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Im sorry, I have to get this off my chest.
I upped my prilosec yesterday to 40mg twice a day (GI dr recommended it). I couldn't take the burning pain in my stomach anymore. Id love to say its working miracles, but it isn't-not really. Lots of burping and sour taste in my mouth.
Im so scare though. Im having my gallbladder out on the 25th. I have no idea if this is the right choice or not. No one can tell me if burning stomach pains is a sign of GB dysfunction or not.
Others tell me its the PPI's causing the problems. Someone else tells me its not.
I had no burning pain till a few months after starting the prilosec in the first place. Nope, wasnt on any antibiotics either cuz I didn't even know I had Lyme yet! However, that even died down when my Lyme symptoms died down for almost two years.
Im so sad and so scared. I dont want to end up with stomach cancer or something in my stomach!!
Im going to try the Mastic but I am even afraid that wont help at all and I wont know what to do next.
Having the gallbladder out and there are no stones-is that normal? I have the nausea and pain where the GB is-no doubt.
Im so scared and sad and tired of suffering in pain. I just want to feel better and be a good mom again. This isn't fair at all. None of us asked for this stupid illness and to not have an easy treatment to get rid of it isn't fair either.
posted
Nal, I am not sure what it is either but I am really sorry you are so sick. Have you talked with your drs. both somach and lyme? If you do not get to feeling better maybe you should go to the hospital and get checked out. I know I have a lot of stomach problems but not nearly as bad as yours. However, because I have been trying to take several different antibiotics orally, I have had many more problems. I am to go to my gastroligist Aug. 7th to find out whats going on. I have to go back to lyme dr. Aug. 28th. Hope he can give me something intraveneous cause I can not handle the meds. orally. Good luck! I really hope you feel better. Carlie
-------------------- Carlie Smith Posts: 20 | From missouri | Registered: Feb 2006
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I don't know what PPI's are...
That is a lot of prilosec - don't know if that much is dangerous. Anyone?
I would give up coffee,juices, anything acidic and eat a very bland diet. Ask at the health food store for other remedies. Sleep propped up.
Take some ibuprofen to keep the gall bladder swelling down. And anything else that sounds useful until your gall bladder is removed. That may help.
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
I had horrible stomach issues and reflux..Bad taste and burning..Even anaphalyxis at it's worst..
Mine is under control after surgery for a damaged body part..Not gall bladder.
I agree with the bland diet..Also small meals, with a lot of water and no late night eating..
Good luck.
Posts: 2360 | From SE PA | Registered: Mar 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey Nal
You are right none of this is fair. none.
I am worried about you and I hope you will be better after your GB surgury.
No one has any gaurantee's but at least that will be on less thing to worry about.
I hope you can find some peace and inner contentment and a life not filled with pain. You deserve to have a wonderful life with your children.
Now lets look up- that bad old non-functioning GB is coming out.
I am rambling. I just want to say I hope you can feel better soon
p.s. did ya try the carafate?
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I am really sorry your saga is continuing.
Did you see a naturopath? I thought I had seen that somewhere in your posts. Was it helpful at all? (I guess not, given that you're upping the Prilosec).
I will keep you in my thoughts and prayers.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
You may have H pylori abx to kill the moving around form and a coarse of flagyl to kill its cyst form and plenty of yogurt no sugars added and acidophilis hanfuls.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Nal,
Have you stopped the Prilosec for a period after starting it? It seems to me that if the symptom started after beginning Prilosec, you would want to stop Prilosec for at least a week to see if helps. I don't think there is another way to know if it is the Prilosec.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Nal,
I agree with Aniek(very smart person). I think you should try without the Prilosec for a short time and 'see' what happens. I think that some of those meds are packaged with some carriers or whatever you want to call them. In other words there are more things than one in that pill. Sometimes any one of the ingredients dont agree with you!!I dont know, do they have 'ALL' the ingredients listed on package like 'food' has??
Hope you find the secret and feel better so very soon! Did you ever try chewing gum when you are nauseus(sp) and burning? It works for me. IF It makes you worse then stop,its NOT for you. Something about saliva I guess is a natural stomach tamer. But we are all different. I am always backward from every one else, always have been, always will be!!! Its the simple things that have made life bearable HERE!!!You have to seek to find those little tidbits, keep trying!!
Be well Nal, cuz I B --just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Nal,
We have corresponded some on the tummy trouble.
My daughter had GB out last March and it helped her a lot. Our LLMD has seem many bad gallbladders unrelated to rocephin.
LLMD insisted that she stay on abx before, during, and after surgery.
You should plan to get some help while you heal, which unfortunately can take longer when compromised with lyme.
Your fear is completely understandable. The GB surgery is not what it used to be now that they can do it laproscopically. Insist on spending the night at the hospital after surgery. Our surgeon had these stories of people asking for spagetti that same evening. Not like with lyme. I had to really put my foot down and tell them to stop suggesting she go home that day.
Around the time of my daughter's surgery, I serendiptiously ran into many people who had GB out for lyme and not because of lyme. Not one of them said they regretted it, only that it brought them relief.
My daughter is still struggling with digestion, but it is steadily improving with low-dose Zith for Bart. Her diet is not great with being a teen.
My girl has been on prilosec and a little zantac for over a year. We can't worry about it now and will get her off as we can. Can you get something stronger than the over the counter stuff? Daughter also take Hyacosamin for stomach pain which is separate from the reflux. We wouldn't be without it.
My opinion on the above runs counter to a lot of posts here, but our perspective is to treat symptoms until root is resolved as I believe that continual discomfort and pain impede overall recovery.
I think saying so long to Mr. GB will help some, Nal.
We get nervous with anticipation with this sort of thing. Perhaps nagging some to get it moved up could help. I am always struck by the way that questioning the scheduling and pushing, then checking up gets you into what you need often gets you in sooner. Just an idea.
posted
Have you tried stopping the Prilosec and trying the new med. out Protonix, its expennsive but for me it had great impact in stopping the burning the the reflux. Since I do not know what else you have tried its hard to comment. I also don't know how long you've been dealing with making a decision about the surgery. Did you get a second opinion; One thing I learned about surgery is that whenever you can you shoul always get a second, fresh non-biased opinion. Your MD should be in favor of this approach, Good Luck 4lyme
Posts: 28 | From Weston, Florida | Registered: Oct 2005
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Thanks guys. I am feeling a bit better now. I think the nortriptiline is helping a bit with that as well-mood wise.
I am trying to quit the prilosec. One thing with those types of meds is you have to wean off slowly or youll get terrible acid rebound from quitting too soon.
I did have two opinions on the surgery. One was from my GI dr that I do trust. The other of course was the surgeon. Both of them did also tell me that this may not relieve all of the syptoms but would hopefully relieve some.
Also, a gallbladder that is not functioning properly can lead to further problems down the road since it doesnt drain completely and can lead to other infections.
Ill take my chances with it. Hey, at least it's one less place for Lyme to hide out in right?
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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