LymeNet Flash: What is happening to me? Scared.

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»	LymeNet Flash » Questions and Discussion » General Support » What is happening to me? Scared.

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Author

Topic: What is happening to me? Scared.

lalyme
LymeNet Contributor
Member # 8964

posted

I tested positive for Bart and have Lyme. I have

had Lyme for years and wasn't properly treated. I

have now been on Doxy for 6 weeks. I was on

Levaquin for the Bart for 3 months. It seemed to

be doing the trick, then then twitching started

again after a month off of Levaquin. Now I have

been on Rifampin at 300 for one week to ramp up

and 600 for one week. This morning my twitching

nerve stuff is out of control. It seems worse and

new weird nerve twinges are going on everywhere.

Please tell me these drugs are doing something. I

take Mag, and all other supplements. Am I

herxing? Is the med not working? I did have an MRI

and they found tiny lesions which my LLMD's said

are typical of Lyme, but of course I still have

that MS fear(cause I first went to duck neuro who

diagnosed me with MS) and with all of these new twinges and

twitches, I feel like these meds aren't doing

anything. Please help me to understand. Thank you.

Posts: 298 | From los angeles | Registered: Mar 2006 | IP: Logged |

lalyme
LymeNet Contributor
Member # 8964

posted

mostly in legs, but also in arms, face and sometimes back. Also have the creepy crawlies.

Posts: 298 | From los angeles | Registered: Mar 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Could be the meds, could be herxing. VEry hard to say. What does your LLMD have to say about it??

Rifampin is pretty potent stuff and you're taking a high dose.

You will get many more responses [and perhaps the help you need] in Medical.
[Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001 | IP: Logged |

lalyme
LymeNet Contributor
Member # 8964

posted

Haven't talked to LLMD yet. Will as him about it next week. He is so swamped with patiients that I have to limit all questions.

Posts: 298 | From los angeles | Registered: Mar 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Did you read the thread "Rifampin buddies" in Medical??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001 | IP: Logged |

lalyme
LymeNet Contributor
Member # 8964

posted

Yeah, I read the Rifampin Buddies post and it scared me even more cause it seemed like people were getting better on Rifampin and I feel like I am getting worse. [Frown]

Posts: 298 | From los angeles | Registered: Mar 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Are they taking as much as you are?? Wondering if you're just herxing.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001 | IP: Logged |

kelmo
Frequent Contributor (1K+ posts)
Member # 8797

posted

My daughter's LLMD mentioned just before putting her on Rifampin that he would work her up to 600mg a day.

He has changed his mind and wants to keep her at 300mg with 500mg Zith. He has changed his mind from blowing with a cannon to a steady pummel.

My daughter takes it for five days, then takes the weekends off to give her body a rest and to detox a bunch. This seems to be workable.

Posts: 2903 | From AZ | Registered: Feb 2006 | IP: Logged |

lalyme
LymeNet Contributor
Member # 8964

posted

Thank you so much everyone.Tutu- I will ask how much they are taking and Kelmo- what is your daughter's weight and height so I can get an idea of if 300 is enough for me. I am 36 years old and 5'6 and 112 pounds.Thank you

Posts: 298 | From los angeles | Registered: Mar 2006 | IP: Logged |

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