groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
You all may have noticed but CitrusLyme (Lynn) has not been to LN in a long time --
The reason is she is Very Sick -- to sick to even post here--
Lynn is 19 yrs old and she lives in Canada -- She is a Good person that needs some help
It looks like when it comes to treating Lyme - Canada is even more screwed up than it is in the US--
She has not been able to get any help there at all
If she dose not get help Soon she is- Not going to make it --
The only option she has left is to move to the US and see if she can get help here--
Lynn asked me to write and ask if Anyone that Lives Close toa LLMD could give her a place to stay for a few months--
Lynn is in Very bad shape and is going to needs someone to perty much take care of her -- for 2 months - She needs someone to drive her to the doctor ect --
Needless to say Lynn has little money after being sick for so long --
She knows this is Alot to Ask of someone - but she is out of options - -and she has no other choice --
Lynns mom is going to sell there Home in Canada--to raise the money they need -- and move to the US but it takes time that Lynn dose not have --
I was going to have her move to Austin a few months ago-- so she could get some help here --
but my LLMD in Austin moved to California -- So there is not a LLMD in Austin anymore- -Ouch
Lynn needs to live close to a LLMD that can help her Soon --
Lynn has Lyme and Babs -- and needless to say the doctors in Canada know Zero about treating eather one -
She has the Lyme some what under control - but the Babs is hammering her hard -and can not get the correct meds to help her in canada--
Lynn is a tuff girl and Very Optimistic -- but her time is Running Out --
At one point I was as sick as Lynn is now-- But I was Lucky and found a LLMD at the last moment and saved my life --
Im am 100% Sure that if I had not had that- Lucky Break -I would be dead now --
Lynn needs some one to Help her get that Lucky Break --
Lynn knows the treatment she is going to fallow perty much --but she can not get a ducktor to write her prescriptions for what she needs in Canada --
If someone that lives close to the Mexican border could give her a place to stay- she could go to Mexico and get the meds she needs -- So that would work too --
Lynns computer broke 3 weeks ago so she asked to write this letter for her--
Lynns phone in Canada is -1- 416-226-6097 --
Her email is -- [email protected] but her computer is broken so she has little access to the internet now --
You can PM me (Groovy2- #6304) and I can give you more details about Lynns situation --
Also if anyone has any extra Mepron Lynn sure could use it-- She has tried to get it from Bridges to Access but because she lives in Canada she can not get it --
Until Lynns mom sells there home - they are very broke-- so if someone has some extra money they could spare to help her with traveling expenses -- it Sure would help her --
Lynn is so sick she is going to have to fly -- so if anyone has any extra Air Miles they could give her that would be a Great help too --
Also -- If anyone has any phone cards with minutes left on them --she could use them too -- She has to use phone cards to make long distance phone calls out of Canada --
Lynn's user name on Lyme net is- Citruses --
I Sure Hope some one can help her -- Jay --
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
groovy- sent pm. Think you should reconsider posting her phone number and give out through pm or e-mail.
posted
Angel Flights does free flights, but is weather dependent and not sure how it would work across the border.
Posts: 8430 | From Not available | Registered: Oct 2000
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
Where in Canada is Lynn? I'd like to help if possible.
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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posted
Hmmmm ..Wish I lived a bit closer to my LLMD...or knew someone in that city with the time and money to help. My apartment is too small for this ... but I have some ideas.
Groovy....Could you email me with Lynn's story and contact info??
[just send it in a PM]
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
quote: Also if anyone has any extra Mepron Lynn sure could use it-- She has tried to get it from Bridges to Access but because she lives in Canada she can not get it --
The Godsent herb Artemisia annua would be superior to Mepron. It potentially targets multiple pathogens including Babs, Bbs, Bart and Ehrl.
Considering her situation, I am worried she couldn't tolerate the side effects of Mepron.
In contrast, A. annua has much less side effects.
In my opinion, she is very ill and needs medicine immediately.
Do me a favor, ask her or her mom if they would consider taking A. annua while seeking option help.
If so, please PM me the address and I'll order the herbs from the web and ask them to directly send it to her. She'll get the herbs in a week or so.
I feel very sorry for her and her mom.
I almost sell my house when I was very ill and in desperate.
But, in retrospect, I am glad that I didn't.
Simply there is no guaranty that they will cure you even if you give them all the wealth the world has.
... and I don't think any doc including "LLMD" knows much than us, so why waste the money?
Dave
Posts: 1078 | From Fairland | Registered: Apr 2006
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posted
My LLMD (Dr. D.) sees patients very near my home one day a week. I could pick Lynn up at the Boston airport and get her there. I might be able to give her some of my frequent flyer miles.
My apartment is really small though and I'm not sure I could continue getting well if she were here too for more than a few days. She could stay briefly if no other options are found. Do any of the other Boston area people have room in their homes?
I have some phone cards I can send her. Please pm me info about where to send them.
I'm glad you're helping, groovy. hatsnscarfs
Posts: 956 | From MA | Registered: Nov 2004
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posted
Groovy...has Lynn been using Canlyme.com? They seem to have a pretty good suport-group and mabey some ideas about resorces.Im suprised that its hard to get Med. suport in Canada...I thought they had better social health service than the U.S.A...what gives? Why is she not in a hospital now and why is she in such bad shape? Alan
-------------------- Charter member of the ~ Delux Toasting Club ~ Our Moto: "Take No Prisoners" Posts: 95 | From San Diego | Registered: Nov 2005
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
Thereminator - Whereminator
The wait on socialized programs can be so long people have died waiting for treatments.
Speaking specifically here of Irish and English programs which I have some knowledge of, and I wouldn't think the Canadian program is any better in that regard.
Yes it is a shame so many are under insured or have no insurance, but I would bet my last dollar more Amercians would be in an uproar if they had to wait more than they do now to see doctors.
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Thanks for all of your help-- I sent everyone who PMed me am message back--
I have tried to call Lynn but I think she is to sick to answer the phone--
I will give you more info on what help Lynn needs when I a clearer picture of Lynns situation--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Jay
Along with the phone cards could she use a gift certificate to www.vitacost.com
posted
Please have Lynn contact Jim Wilson, president of the Canadian Lyme Disease Foundation at 250-768-0978 www.canlyme.orgPosts: 43 | From Canada | Registered: Dec 2003
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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liz28
Unregistered
posted
Hi, it's hard to know what to say when a friend is in such a desperate situation. But the first year I was sick and could not get any kind of diagnosis, my acne medication, doxycycline, literally kept me alive. It's under $50 per month. I had undiagnosed Lyme, bartonella and babesia--and of course, really did have acne (yes, really!). It also would have been possible to get minocycline from a dermatologist, although this drug can have some intolerable side effects.
When my mepron failed after a year and a half of treatment, I took 300 to 600 mg of Nutricology artemisinin per day. That's $20 per bottle. It's still the gold standard to test whether every sniffle or cough means the babesia has come back. While it is only a temporary suppressant, it can make a major difference between being functional and disabled. She might also want to take extra B complex, especially folic acid.
Malaria drugs are available at Canadian travel doctors and travel clinics. If your friend is truly desperate, and has people around her to monitor her condition, one possibility to consider is quinine. As you know, I'm not a doctor or medical professional in any way, and add the further disclaimer that quinine always causes some side effects, and overdose is a real issue. But for someone in a life threatening situation, it might be far more effective than mepron--of course, that is only one person's opinion.
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bactrim before mepron, i believe bactrim(sulfamethoxazole + trimethoprim(?)) was used, but verify this statement. sulfamethoxazole is a sulfa drug, but trimethoprim is not a sulfa drug.
if this was the case,this may work with artemesia, but one first needs to know if these two would be compatible.
berberine the merck index, 1996 edition, lists this as an anti-malarial. while i've seen no proof of its efficacy against babesia, it seems to me worth trying, since anti-malarial medicines are at least one model for anti-babesial medicines.
this is an ingredient in the herb, golden seal(hydrastis candensis). at least one highly probable, functional part of the molecular structure of berberine is the same as that found in the molecular structures of the active ingredients found in artemesia annua. this is a type of peroxide formation at the one end of the molecule.
caveat: i recall from somewhere that this can affect heart functioning, so do search on this, esp. if considering high dose of this.
used by naturopaths. its sold to healthcare professionals as berberine sulfate.
good luck, prayer sent for best of outcomes.
Posts: 2708 | Registered: Feb 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
I just got a email from Lynn at noon-
She is going to phone me tonight--
I will fill you in after I talk to her--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Thanks for the update Jay
take care
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi all
I talked to Lynn on the phone a little while ago--
She wanted me to thank you All for your help and good wishes--
She said she feels a little better today- and just knowing that folks care about her made her feel better---Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Jay
your mailbox is full
For those that still want to help. Lynn say she uses CiCi brand cards but thinks most cards will work.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
sorry. Double post.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
up
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
Lynn has been contacted by several diffrent kind folks--
so she might be able to work out staying with someone in the US-
things are looking up for her-- She asked me to Thank You All for the kind help and thoughts--
Her computer is still broken so she only has limited access to the net but maybe this will change soon--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi All
I just heard from Lynn-- her mood is Much more oppistimic because of the help you folks have offered-
Lynn sure could use any extris Air Miles that anyone could donate to her--
Lynns next door neigbors in Canada have given her all of the Air miles they have but it is not enough for what she needs to do --
I am not sure how it works but Im perty sure giving away air miles can be done perty easy-- If anyone has done this before could you write me and fill me in on the details on how this works--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Lynn is a very sweet kind young woman
who is very sick with lyme and babs
If anyone would like to send her a gift certificate to vitacost you can pm me anytime
No matter how small it would sure make a difference.
She hopefully will be able to stay with a friend in the US and see a LLMD if she can get enough flyer miles.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
up
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
any news on how lynn is doing? havene't seen a post since early august.
karen
Posts: 68 | From uxbridge, mass | Registered: Jul 2006
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I have been in contact with her via email. She is not well, but alittle more stable and so grateful for all the support she is getting.
I am offering my home for her stay in but I cant drive her to doc appoints. So I dont know how helpful this offer really is. I dont live very close to any LLMDs. I live about 2 hours from the bay area.
If there are any bay area folks who might be able to put lynn up while she sees the doc (the day before and of and maybe after? and then she could stay with me in the in between times for a few weeks that would be great!
We are looking at public transportation to get her where she needs to be.
Her computer is still not working.
Posts: 1950 | From New Mexico | Registered: Sep 2001
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Lyne still needs our support.
She needs donations still so she can come up with air fare to see a LLMD here in the US.
She could also use a gift certificate to vitacost.
Lets all keep her in our prayers and what little you can spare will go a long way.
Blessings
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Canada is a very large country. Could you tell us which province she lives in? That might make it easier to make some plans.
Jim Wilson, president of the Canadian Lyme Disease Foundation at 250-768-0978 www.canlyme.org offered to talk to Lynn. That would be a good place to start.
posted
Lynn is coming here to PA to live with us.My wife,decided we got the room,we go to the lyme doctor 1 time a month,so everything should be fine.We have 2 daughters one is 17, the other 20.Both understand what chronic lyme does to a person. Her first LLMD appointment is the 5th of october.So far someone agreed to pay her airfare.She is haveing alot of tachycardia problems,and such.Hopefully all will work out well.Since she has no insurance we are going to try to use the pharmacy groovy posted in Texas..etc.And hopefully some supplements will help also.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
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Andie333
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Member # 7370
posted
8man,
That's good news for Lynn...
A big hug for you and your family!
ANdie
Posts: 2549 | From never never land | Registered: May 2005
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Alan![[Big Grin]](biggrin.gif)
![[bow]](graemlins/bow.gif)
Thanks, Jay!!!
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