Topic: seventh surgery scheduled for tomorrow--updated sept 16
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
super special loving thanks to melanie for updating while i couldnt!
am home after another week at uc davis...partly out patient and partly IN. ug. I really didnt think the pain could get worse, but it actually DID. I didnt think my body and mind could take more trauma and more pain but they DID.
I couldnt tolerate having the catheter removed. First when I peed I had bladder spasms that are much like labor pains or ruptured ovarian cysts. the kind of pain that makes you cry out INvoluntarily. I scared many many people throughout my stay from people in the Kiwanis house, to the clinic to the poor folks in ER who had to hear me yell and scream and moan and cry for hours and hours.
so first were the bladder spasm which were treated with opium suppositories. let me tell you people--i never KNEW OR IMAGINED you could get so high from some thing you stuck up your butt. I called them my "stoner butt pills." and they worked for the bladder spasms but they worked too good. overnight they stopped me from voiding completely and in the morning I started having gawd awful pain again. it escalated so fast we had to call 911---I couldnt move or be moved.
Ambulance ride to ER. FILLED with seriously ill and dying people. very scary place. wall to wall gurneys of people who either WERE dying or looked that way to me. and there I was in that line. screaming and pleading saying pleeeeeeeez pleeeeez help me, help me for hours and hours.
took hours for them to get me demerol coz they dont carry it on the floor and all other pain meds I am allergic to. that is the biggest piece of crap I ever knew.
when my doc got out of surgery and ran to my bedside he catheterised me and 1700 cc's of urine came out in a matter of minutes. 600 cc's is considered to be serious urinary retention. I had almost 3 times that. the residents all looked at me like I had three heads--they had never seen such an overdistended bladder.
yeah.
so home I came with catheter again.
after an awful overnight in the hospital.
current plan is to get cath and stent removed BOTH on sept 27th.
this nightmare is lasting so so so long. I can hardly believe it is reality.
thank you all for your continued support and thoughts and prayers. I feel like coming here is like walking into my living room and sitting on the couch. thank you for making me feel so welcome and cared for.
-- thank you.
I hope you are all having some pain free and positive days. and if not, look for me--I am right there with you! trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good morning all,
Please keep our Trails in your thoughts and prayers today as she returns to the hospital for yet another surgery.
Much love, Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Sending prayers and positive thoughts to my bud, Trails, for everything to go well and a swift and uneventful recovery.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Prayers for trails for a sucessful procedure and an end to this ordeal Posts: 628 | From the south | Registered: Dec 2005
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hopeful123
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Member # 3244
posted
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good evening all,
I just hung up with trails...and she sounded great!
The surgery went very well, and she is expecting to head back home tomorrow.
I will let her fill you in on the deatils...just wanted to let you know that she is doing fine...well, ya know, considering.
My best, Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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trueblue
Frequent Contributor (1K+ posts)
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posted
Thank you Melanie! I have been waiting all day to hear.
Way to go Trails!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Thanks for the update Melanie ....... I just signed on to check for Trails news. Glad all went well.
Yea Trails!!!!!!!!!!! Glad you get to go home and all is going as planned.
Do you have any Green chile ? ......... that might help you stay well. I think it kills spirochetes and is effective against babesia.
If you eat it on a buger with with cheese it also kills bartonella. Really, it's true!!
Be Well, robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Trails, so happy you are better and so sorry that I had not been on this post in a while..Things here have me in a bit of a frenzy. Got attacked by my lymie who was in a rage last night and it hasn't happened in over a year..Someone has got to find a cure for this Hell..
Have been on the board a few times but always in a rush and had hoped you had been ok..
Boy you have really been thru the wringer..And just the tick borne normal crap was enough..
May this time be the last and things work out ok..hugs..lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
LMT,
sorry you are having such a rough time.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
hey you guys! you all are sooooo nice and sweet and thoughtful and compassionate and and and...well you dang near had me cryin here. for reals.
for an update on me I started a new thread called i can pee in the bath again. Although this thread now has 61 replies which is a world record for me. I feel very loved.
thank you.
Posts: 1950 | From New Mexico | Registered: Sep 2001
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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