posted
I feel so incredibly horrible- worse than ever. I just want to cry, hoping that will help...
I don't know where to turn or who to talk to about it. My parents just ask me questions like: 'why are you worse?' I don't know!
All I know is that after evacuating my home and jumping from hotel to hotel until the mold is removed from our basement, I'm now worse.
Coincidentally, I also had a bad reaction to abx (breathing problems) so I stopped abx over 2 weeks ago. I felt okay all this time even having stopped. Dr says I should take a break after 1 year of abx straight.
So, now I just lay in bed all the time and fear for the time when I have to get up for something. It's been really bad since Sunday.
Can stress do this to someone with Lyme? OR can stopping abx do this? I just don't know what to do to maintain myself and keep the lyme in check until I go back into treatment.
-------------------- Be well, SAK Posts: 371 | From Up North | Registered: May 2005
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Carol B
Unregistered
posted
And the answer is....I don't know !
I think all this life, lyme, stress are like scrambled eggs-very hard to separate once they're all mixed up together.
I can tell you from my own experience that I feel worse when stressed about a situation.
Once thing I have noticed in living with the physical ,and emotional effects of lyme- this too shall pass, as has been pointed out . Still I do get pretty discouraged sometimes-even though intellectually I know it will change.
Have someone rent you some comedies to watch !Bah Hum bug
I wish and pray that this will pass. I can find some patience. I'm soooo scared this is permanent!
-------------------- Be well, SAK Posts: 371 | From Up North | Registered: May 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi SAK.
They say that moving is right up there with one of the most stressful things in life -- kinda like divorce or changing jobs. And they're not even talking about moving 'cause you got a house fulla mold, on top of already having lyme disease!!! Talk about stress!!!
You are probably just over-freakin'-whelmed!
A break of a coupla weeks in antibiotics is a good time to beef up your immune system, gets lots of probiotics down the hatch, and won't seriously set you back. (Remember the long reproductive cycle of spirochetes.)
I'd call upon whatever friends or family you have that calm and support you, and go easy on yourself. I would also not be shy about asking your doctor for some some type of anti-anxiety med for at least short term. Remember, it would be UNcommon to have lyme disease, mold problems, and breathing problems and NOT be depressed. It won't last forever and it's not your real self, it's the illness.
Sending you a hug,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I second everything that michelle m said!!!
you are going thru a hellava lot -- please be gentle with yourself.
this world makes us think we suck if we arent the best, arent producing, arent this that and other things....just be for a minute, try to push all that crap outa your mind. it is not easy.
you sound like you are a real go getter and before being sick were very active and on "top of" everything. letting go is really hard and being on the bottom feels like crap.
my partner said to me today--when you start asking why is when you get into trouble. dont ask "why is this happening?" coz you'll really never know the answer--whether on a physical level or emotional or spiritual---we wont ever know and asking that just makes us insane. well, it makes ME insane anyway. I am sorry your family is asking those Q's--it is hard enough to quiet our own minds asking them.
you are sick and that isnt going to change by questioning why or how it happened.
when i start asking why I now change the Question to--how can i change this? or what can i do to feel a tiny tiny bit better right now? or how can i get my needs met? it is a new thing for me--do you have any suggestions for other Q's to put in there besides--why?
hotel living is crappy!!! no wonder you are having stress and feeling awful. hotel living is like hospital living or maybe worse. is there one thing you can do that would make you feel like this was your home or that you were on vacation instead of trying to get away from mold? can you get a radio--play music instead of TV---BIG help there.
can you go to a friend's house? can you get out at all? can you invite someone there? can you buy some crayons and paper? when i was hospitalised recently i got just some crayons, a black pen and paper and drew lots and hung up my pictures. they helped heal me. some I ripped up, some I will frame. It was very healing and passed a lot of time without lots of money or expectation.
you can draw your disease as you see it--personify it. then draw yourself overcoming it ir getting what you need to fight it. or if you cant draw it sit and actually visualise this. draw safe places and draw how angry you are at the world. draw pictures of homes without mold and life without lyme. or just scribble for hours. no one has to see this stuff....only you. dont tell a soul if you dont want to.
being sick sux sak.
it really does.
I hope my babbling has helped you some, trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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posted
Gee thanks for asking trails. Goodness like yours keeps me going . . . where to begin?
My family wanted me to get some air the other day. It's true,I do need and wish to go out.
I went out and the effort crushed me hard. It was every little movement that was just tooooo exhausting for me.
So, just when I thought I couldn't feel worse, I do. My parents roll me around the house on a chair with wheels because I have NO energy.
I'm never going out again like this. Forget getting some air!
Thanks again for asking. You're the greatest. I hope you're well. I wish I could post more positive news.
-------------------- Be well, SAK Posts: 371 | From Up North | Registered: May 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Checking in on SAK.
How are you doin?
Are things a little better? When do you get to move back into your house?
Sometimes, even in the midst of pain and suffering, it helps to try and step back and laugh about something. Re-reading this thread, I was struck by Trailsey's comment:
"Being sick sux Sak."
Try saying that five times really fast.
I'm not even going to tell you what that turns into -- you just have to try it for yourself.
Anyway, just thinking about you, and hoping you'll post an update, and sending you a cyber-hug!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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