posted
I have been on Rifampin for 2 months and Doxy for 4. Rifampin at 600 and Doxy at 400. My worst symptom is twitching and I have had three good days, and that's it. It seems to just be a constant thing. Levaquin seemed to help more as I was on that several months ago, but even that didn't work completely. Any thoughts? I am on Alot of Magnesium and other supplements. Thanks. I just am scared and frustrated.
Posts: 298 | From los angeles | Registered: Mar 2006
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posted
The ONLY things that work for my ankle twitching is 'electromagnetic field therapy' and 'nikken' magnets placed on my ankles and wrapped/tied-up.
This way I get sleep at night. Otherwise, it's impossible to have any sleep.
Magnesium made it worse for me.
Best wishes.
-------------------- Be well, SAK Posts: 371 | From Up North | Registered: May 2005
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posted
Hi lalyme. What's the nature of your twitching? Anyone else feel free to answer too. For me, about 90% are in my calves and feet. Usually they're little twitches smaller than the size of a muscle, each about the size of a dime. For awhile, as an analogy, it felt like my calves were filled with little fish swimming around, each twitch being a fish bumping against the skin. There were like a dozen or more twitches spread around at any moment. So it was constant. Thankfully that was a couple weeks ago. But there's still twitching here and there.
In my upper legs and above (arms, trunk and face), it's usually twitches involving the full length of a muscle. Sometimes it's a single twitch, and sometimes it's like an electric "buzz" composed of a lot of strong twitches in a second -- bzzzz -- lasting about a second across the length of one full muscle. I never had anything like this in my life before this year. My one test was negative, but I had a profound positive response to antibiotics, although the symptoms started coming back afterwards.
Posts: 12 | From Maryland, USA | Registered: Sep 2006
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
omg--whatever--you are very articulate and very good at describing my own twitching!
I have found nothing that helps it at all.
Sometimes it is better and sometimes worse and there does NOT seem to be rhyme (how do you spell that word) or reason to it whatsoever.
Sorry I am no help.
but you have company! Posts: 1950 | From New Mexico | Registered: Sep 2001
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Some of my twitching is deep and some is more surface. But when I posted , I believe I was herxing cause now it's a bit better. It goes in stages. As does this disease. I have that buzzing too.
Posts: 298 | From los angeles | Registered: Mar 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
I drink tonic water with quinine, very bitter you need to get used to taste.
I had foot reconstructive surgery last year and after had horrid leg jerks, twitching, muscle spasms etc. Muscle relaxer (flexeril) worked on spasms but not the twich,& jerks. Found the Hyland formula to be the better of the bunch.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
Thank you very much. Do you drink tonic water that has sweeteners? Is there one without?
Posts: 298 | From los angeles | Registered: Mar 2006
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WildCondor
Unregistered
posted
MAGNESIUM!!!!!!!
Magnesium stops the twitching. Lyme patients need extra magnesium as it is depleted easily by the infection. When you are on Levaquin you need it to protect your tendons too. You can get IV magnesium if you are already on IV, or you can get IM injections of Mag sulfate, and do them yourself. In addition, you can take Mag Tab SR orally to bowel tolerance daily. Makes a huge difference!
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sometimesdilly
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posted
I second Wild Condor about magnesium. And maybe for you, La, the amt of Mg is the issue? maybe to low?
My intense twitching (and myclonic jerking) of two years duration largely stopped within a week or two of taking magnesium supplements.
The only other variable at play has been that I began taking Malarone for babesia a bit into that same time frame, and a lot of my neuro symptoms are abating as well. So either the twitching was related to babesia and the Malarone helped, or the twitching was unrelated and magnesium worked wonders.
It is so frustrating to try to figure all this out, isn't it? But, whoo-ey, sooo worth the effort..
Dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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dmc
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Member # 5102
posted
lalyme
I already took magnesuim supplements so I didn't mention them but magnesuim does/did help. I think the surgery aggravated the nerves so mag. didn't help as much.
The woman who told me about the tonic water I met in the parking lot of a restuarant I had eaten in. My back and legs were spaszing and "kicking so bad" my husband had to lift my legs into the van. I just locked-upped and legs twiched. She had used it for her own back spasms.
I used diet tonic...schlelpps tonic water. Very icky taste and have to stir with spoon to get alot of the fizz out. When you first open bottle be sure to do it over sink...bubbles out all over.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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NP40
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posted
You have to remember that oral [pill-form]supplements are not absorbed very well, only a certain percentage is actually taken in. Using liquid magnesium citrate may give you a much better absorption. We used to use the Wal-Mart brand and it worked well.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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trails
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Member # 1620
posted
i have tried mg in lots of forms including epsom salts..and have tried them in combonation and stuck with it and found there was NO difference in my twitching.
but for many it does seem to work. you lucky ducks you! Posts: 1950 | From New Mexico | Registered: Sep 2001
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