posted
Sometimes I think I'm truly going crazy...does anyone out there get these same symptoms? Waking up with general aggitation, worry, fear, confusion, sadness...an overall general dispair...when there just isnt anything really to be so DOWN about? Is it the Chronic Lymes that has me thinking and feeling and behaving so differently? I cant stand it...it is a fight every day to function like "normal"...I dont feel like doing anything...but I dont feel like doing nothing and sometimes I truly feel CRAZY! I'm on week 4 of CSM...is this the intesification stuff or is this the med clearing out all the good "brain function" fats? What is frustrating too is it seems my guess is just as good as anyone else's...Docs dont seem to know much of anything either... I read everyone else's posts and all the medications people are on and all the therapies and I think...I just cant do all that stuff again...I'll just be sick and deal with it... UHG!
Posts: 45 | From NJ | Registered: Sep 2006
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I just wanted to let you know that I feel exactly the same way as you. The intensity of the emotions can vary. It was really bad this morning.
From what I understand, we are not actually going 'crazy' per se. It just feels like it.
I'm sorry, I don't know what CSM means. You talked about 'intensification', I think you are referring to the herx reaction.
I had a very bad herx reaction last week. My depression became almost unbearable. My doc. told me to ease off on my medications. Please take care if you feel that happening to you & check with your doctor. Do you have an LLMD?
Anyways, take care as best you can. Use any tool for coping you have available to you ... from counselling to warm baths, hot cups of tea!
Hang in there and I will do the same.
Posts: 15 | From USA | Registered: Jul 2006
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quote:Originally posted by run4fun: I'm on week 4 of CSM...is this the intesification stuff or is this the med clearing out all the good "brain function" fats?
Yes, it's probably the intensification [it's not a true herx when it's from the CSM].
CSM stands for cholestyramine.
What other meds are you on? The CRAZY feeling is pretty NORMAL for lyme patients, believe me!!
If you don't continue treatment, your future is very bleak, believe me. You WILL get through this!
As lymelass said, sometimes it's best to back off the meds when the symptoms get too severe. Be sure to check with your LLMD before doing so.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
From all I've read about the CSM, I'm supposed to be starting to feel the symptoms going away as I detoxify...most people start feeling better at 2 to 3 weeks. The research and info I've read makes CSM sound like the end all-be all to chronic Lymes. I'm not on any other meds... Although hearing from you guys that you feel the same makes me feel less NUTS, I feel for you guys as I KNOW KNOW KNOW it stinks and coping is TOUGH! If I could stay home and do what I want everyday I think I could cope more easily...but thats not the real world and even in my own little world the lyme can paralyze... Anyway...THANKS for taking the time to respond!
Posts: 45 | From NJ | Registered: Sep 2006
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posted
No one thing is the be all, end all for chronic lyme disease. Don't know where you got that idea, but it is unfortunately not true. Or there wouldn't be any need for this forum.
Posts: 8430 | From Not available | Registered: Oct 2000
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hey there run4fun...I'll assume you used to like to run...
me too....you remember then how when your endorfins would kick in and you would'nt feel any pain?
Well...in some ways these behavior modifications are kinda like that...it's kinda like PTSD...something that's innately hard wired into our human bodies for survival...
That's why you seem to be "on guard" all the time cuz you're body is under attack from the pathogens and your innate response is to be alert and fight back...
A lot of us have been there and it does get better with treatments... I got some help with it also by taking lexapro....but that came only after lots of abx...before the abx non of that stuff ever worked and some made it worse...
Hang in there....we know it's hard but like tutu says...ya gotta go thru this....and thru it you can do....
good luck..........zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Yes!
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Aw! I'm just kiddin' around.
Listen we have all been there. I definately have lost my mind a few times.
There is even a funny link about all the hair brain things that "Lymies" do.
Like spraying your armpits w/ hairspray........
I used to remember everything wrong and argue the facts w/ my husband.
I used to be so paranoid I thought my husband was poisoning me. One day I asked him to stop poisoning me becuase I was in so much pain.
The list goes on........ I'll try to find the funny link.
You could use a luagh.
Love and healing. Heather
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
We're looking for a new place to live-and today I pulled into a trailer park-right behind the trailer we want to move into-they were just putting it into place.
I watched in amazement, was able to crawl inside(no steps yet) when it was parked. I had a chance to talk with some very very nice neighbors-felt really encouraged.
But then when I pulled onto our street and saw our old homestead I started to sob uncontrollably-lay down in bed and wept until I fell asleep.
When I woke up I felt better- life must go on, and somehow we do-against the odds.
quote:Originally posted by run4fun: The research and info I've read makes CSM sound like the end all-be all to chronic Lymes. I'm not on any other meds...
It's very much overrated!
Maybe you need to get back on abx??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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