I would appreciate input on treatments and how long before some of you were feeling better?
I have been on antibiotics for 6 to 7 mos consistently. My doc has switched them up here and there. In the beginning I felt really good for about 3 weeks.
Then lousy for a few, etc. I have not been feeling well now since beginning of October. Though I suspect EBV is active.
How long before the immune system starts fighting again? I have no immune system at this point.
This is so frustrating. ANY input greatly appreciated.
Thanks karenb
Posts: 151 | From Massachusetts | Registered: Nov 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Karen,
Are you using any alternative therapies in conjunction with the abx?
I discovered after two years that your immune system won't rebuild itself on its own. Abx may kill bacteria, but it doesn't fix the immune system.
I'm taking amino acids, based on my own deficiencies, and high volumes of vitamins/minerals to rebuild my system. After a few months I already started feeling the difference. I still have a ways to go though.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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I'm taking ora mune max, cell food, vitamin b. I have my appt tomorrow with lyme doc.
I need to discuss this with him. It's certainly is a long road to recovery.
take care of yourself
karenb
Posts: 151 | From Massachusetts | Registered: Nov 2006
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bettyg
Unregistered
posted
I don't feel any better after 2 yrs. 3 months of treatment: 20 mo. abx, 4 mo. of supplements leaving me overwhelming fatigued that I did NOT have until put on supplements.
Good luck on your appt. tomorrow! Bettyg
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quote:Originally posted by bettyg: I don't feel any better after 2 yrs. 3 months of treatment: 20 mo. abx, 4 mo. of supplements leaving me overwhelming fatigued that I did NOT have until put on supplements.
Betty, Maybe the key is that you were taken OFF abx, not that you were put ON supplements. Just a thought. [oops...or did i read that wrong....you're on abx now or not??]
Karen...It took a full year for me to feel ANY better at all. And another year after that before I thought there was really light at the end of the tunnel.
Now 6 yrs later, I have my life back!!
Karen, I agree that anything you can do to help your immune system is going to be a plus. Also make sure you don't have yeast causing you trouble. You'll have a VERY hard time getting well if that's an issue.
Good luck with your appointment. Let us know if we can help in any way.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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