posted
CAPE COD & PROVIDENCE BUS to Dr Jones' Thur Nov 16th CT Hearing !
Thanks to the graciousness and generosity of Marjorie Roswell, we have a bus that will be traveling from Cape Cod, Massachusetts and stopping in Fall River, MA and at the Providence (R.I.) Mall enroute to Dr Jones' next hearing on November 16th in Hartford, CT.
This hearing is VERY, VERY important. Accordingly, Dr Jones is asking: "that we make an extra effort to be there." Dr Jones has also asked me to say that he is "encouraging" parents to "bring their children if they would like to do so."
Dr Brian Fallon and Nick Harris, PhD are scheduled to testify on Dr Jones' behalf at this hearing. The room currently scheduled has three times the seating capacity as the room used for the last hearing. So please do come and bring as many well-behaved family members and friends as possible! And I trust that I need not reiterate what others have already stated so eloquently about the importance of a GREAT TURNOUT for Dr Jones on behalf of our children and all other LLMDs nationwide. We can only imagine the devastating impact and subsequent domino effect should we lose him!
The bus will be making four stops enroute to Hartford as follows:
1. West Barnstable, Burger King Parking Lot 2. Sagamore Bus Station (for people west of the Cape) 3. Westport/Fall River, Hampton Inn (off Route 195 next to White's Restaurant), & 4. Providence Place Mall, Rhode Island
There are a number of seats still remaining. We are asking for a donation of $15.00 per adult and all children and teens ride at no charge. The adult donation is waivable if money is an issue. Contact persons to make your reservations ASAP are:
Just a reminder that the next hearing session for Dr. Jones is scheduled for Thursday, November 16 at 9:00 a.m. It will take place at the Legislative Office Building at 300 Capitol Avenue in Hartford, CT. They have a parking garage where parking has been free and available:
For those who need lodging, you may want to check out the following:
Hotels near State Capitol & Legislative Office Building in ...
We are being asked to pack the house - overflowing into the rafters and out the front door. Seriously.
In Massachusetts, Kay Lyon is arranging a bus from the North. This has been largely subsidized - no one should stay away due to lack of funds. Please contact her asap if you want to sign up for it - she may need to cancel it if more people don't sign up by November 4 (see information from Kay that I've reposted below).
Is there a bus from the Cape? Other areas?
After the recent publication of the IDSA revised guidelines, and in view of the predicament facing Dr. Jemsek in NC, it is now more important than ever to demonstrate strong and unwavering public support for Dr. Jones, the thousands of children that he treats, and all that he represents.
Many, many thanks, Sheila and family
Information from Kay Lyon:
The bus will leave from the Northshore Shopping Center at the intersection of rtes. 114 & 128 at 5:30 am SHARP!
We can make 3 stops on the way. We will travel down 128/95 to the Mass Pike then take 84 into Hartford.
We can make any 2 or 3 stops that are best for the majority of travelers. I am tentatively thinking of: 1. Burlington Mall 2. Marriott Newton 3. Auburn, Mass Pike park & ride.
Please let me know if you would like a seat on the bus, there are only 41 left (out of 47), and also where you would like to be picked up, one of the 3 stops above or feel free to suggest/ request a different stop.
Please send name, cell number and preferred pick up location to: [email protected]
Sheila M. Statlender, Ph.D. Clinical Psychologist 53 Langley Road, Suite 330C Newton Centre, MA 02459 617-965-2329 Kay www.LymeSite.com www.TheFlyingLyon.comPosts: 733 | From CT | Registered: Oct 2000
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
okay, i'm gonna try to get that day off work and take a greyhound from nyc the night before.
Some of you may know that I have been writing summaries of every one of Dr. Jones' hearings. The following is the summary of the 5th hearing day.
Please keep in mind that our presence at these hearings is vital to presenting Dr. Jones', and ILADS, and OUR point of view, and PLEASE JOIN ME AT HEARING DATE #6. Dr. Jones has gone out on a limb for your children, and the children of your communities. Let us all make the effort to stand behind him.
Sandy
--------------------------------------------- Dr. Jones' Hearing - Day 5 - Summary
September 28, 2006
Well over 100 people were present in the tightly packed room, for the 5th day of the hearing against Dr. Jones (estimates say between 120 to 175)
There was just one witness testifying - R, the former wife of the man who had filed the complaint against Dr. Jones, with the health department of the State of CT. She testified regarding Dr. Jones treatment of her two children, and specifically addressed the charges against Dr. Jones, clarifying a number of points involved in these charges. Her two children, who had been diagnosed and treated by Dr. Jones, were in the courtroom with her.
One point in question has been whether Dr. Jones prescribed antibiotics to treat Lyme disease in children he had not seen. R's testimony indicated that he had simply renewed a prescription for antibiotics for an illness diagnosed by a Nevada physician. No Lyme diagnosis had been made until the children were seen and examined.
Another point, the question of Dr. Jones' involvement with the school prior to seeing the children, was also clarified. The school psychologist, faced with the problem of expelling R's son due to an uncontrolled chronic cough and multiple behavior problems, telling the mother that she did think there was something wrong with the child, beyond simply behavioral issues, called Dr. Jones to discuss the matter. He did not diagnose Lyme at that time, advising the psychologist that the children did have an appointment to be examined and evaluated for Lyme, and suggested that an interim measure, instead of expelling the child, might be to place him on homebound instruction. The school did that, the child, who was failing everything, received instruction at home, was eventually diagnosed with Lyme, and, once treated, returned to school at the beginning of the next school year. R testified to how well her son was now doing at school, both behaviorally and academically, telling the panel that her son began to like school, and look forward to going, for the first time in his life.
R poignantly told of her children's medical history, ill from birth, and her valiant efforts to pursue answers, to find out what was causing their array of symptoms. Her own diagnosis of Lyme, by a physician in Florida, who thought the children might have been born with Lyme, led to her seeking out Dr. Jones, learning from her doctor that he was the best in the country where pediatric Lyme disease is concerned.
R's extensive background as a nurse, with both ER and trauma experience was very impressive. She testified that, in addition to the possibility that her children were born with Lyme, she had told Dr. Jones that there had been tick-bites. Her ability to recognize ticks carrying Lyme disease, previously called into question by the health department attorney, was answered well by R when she advised the panel of her professional background. In addition to her work as a nurse, she had worked for the forest service for 5 years, and had, in fact, written a report that included identification of ticks, including Ixodes Scapularis. Clearly, this supported Dr. Jones' testimony that R was able to identify the type of tick that had bitten her children!
R testified as to the extent that the children's father went to in order to discredit her. She felt compelled, due to financial problems, to pursue shared payment of medical bills, and she had to address her children's expressed concerns about their physical safety when with their father. Actions R took led to her ex-husband's threat that he would seek sole custody, and allege that R had mental problems. R's testimony also attested to the children's father making threats against various physicians, if they were to treat the children.
R painted the picture of a punitive father, with a background of abuse of his ex-wife, then his children, who did not become involved with the children's medical care until he was threatened with the possibility of having to pay for the cost. There was no attempt on the part of the health department attorney to challenge the picture of a vindictive father whose agenda was contrary to the best interests of his children when he filed the complaint with the health department. Again, one must question why the CT Dept. of Health would file charges against Dr. Jones without investigating the source of the complaint, particularly since they claim the pursuit of Dr. Jones is NOT about Lyme disease!!
R testified regarding the problems her son was having in school - academic, medical (among other things, the persistent cough) and behavioral. The school did not know what to do. R testified that she would have home-schooled him, but knew that her ex-husband would not agree to that. The school psychologist, to her credit, sought out Dr. Jones, to get input, in her attempts, it appears, to do her job - provide an education for a complicated, difficult child. R was grateful that Dr. Jones made a suggestion that could work, and provide an education for her son.
R testified as to the thoroughness of Dr. Jones' medical examination of her children. She testified that she "was very impressed with his examination.I have never seen a doctor do that, except in trauma." She testified regarding the thorough record keeping she did, in order to provide Dr. Jones with the feedback he needed during the course of her children's treatment. She had approached doctors regarding locally monitoring the children, and two agreed to do it, until they received threatening phone calls from her ex-husband, and that led to their backing down.
R refuted any allegation that the cause of her children's symptoms was psychological. She said, "You can't alter an EEG, or the blood test results (anemia)." She spoke of the times when her children were playing happily, then would suddenly be stricken with headaches so bad that they lay on the couch crying for hours.
R gave testimony regarding the severity of her children's symptoms, and the wide array of symptoms (certainly supporting what is known about Lyme being a multi-system illness). Her testimony of the years and years of pursuit of medical diagnosis and treatment for her children, brought tears to the eyes of many. She certainly presented herself as a highly educated medical professional, and a compassionate mother, who did a wonderful job of parenting, in pursuing answers ever since the birth of her children.
She testified as to the current good health of her children, and their ability to function well, and attributes these facts to Dr. Jones' diagnosis and treatment.
R's testimony ended the 5th day of the hearing.
Sandy Berenbaum, LCSW, BCD
Family Connections Center for Counseling
Brewster, New York
Posts: 733 | From CT | Registered: Oct 2000
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bettyg
Unregistered
posted
Sandy, OUTSTANDING, detailed notes again; I felt just like I was in the courtroom hearing this all 1st hand.
God bless R; with her RN detailed recordkeeping helping Dr. Jones also! She's one strong, tough lady to have survived an abusive husband who doesn't care who he hurts as long as he doesn't have to pay his kids LLMD bills/test/labs, etc!
Thank you for ALL YOUR HARD EFFORTS in reporting to the entire board; this finally was a good session for Dr. Jones! It's about time.
PRAYING this one next week will be the END of this lynching party from IDSA members!
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I wrote the first part of this last summer, and send it out again, with additional notes in italics. I ask that you realize the magnitude of the problem, and our need to be involved.
We all need to realize that Dr. Jones' struggle is our struggle, regardless of where we live or whether we have children with Lyme. It is very clear to everyone who heard Shapiro's testimony that he has an agenda far beyond any individual doctor, and the agenda involves the complete destruction of the credibility of the ILADS guidelines, and the doctors who practice using these guidelines. His assertion that those who have only neurological symptoms don't have Lyme, regardless of whether they have a positive blood test, his discrediting any possibility of cross-placental transmission, and on and on.
Our right to have Lyme-literate doctors is at risk here. Our right to have guidelines that address chronic Lyme is at risk, as well. Our right to have laboratories that will aid the diagnosis with reasonable and accurate testing is also under attack.
I wrote these last paragraphs months ago, before the new IDSA guidelines came out. With the new guidelines, we know with certainty that the problem is far deeper, far more incidious, than the destructive goals of one man. Shapiro represents an organized, carefully scripted, attack on our right to choose effective medical care for ourselves and our children. Dr. Jones is the current target of this attack. There have been other LLMDs under attack in the past, and with the new IDSA guidelines, there are sure to be more.
I urge you all to join me in attending Dr. Jones' hearing on Thursday, Nov. 16th, at the Legislative Office Building, in Hartford. It is the responsibility of all of us to support Dr. Jones' in his courageous struggle to keep his license, so that he can continue to restore the health of the children in our midst.
Sandy Berenbaum, LCSW Family Connections Center for Counseling Brewster, New York 10509
Posts: 733 | From CT | Registered: Oct 2000
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