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I am a newbie. First time to find this website. I have had Lyme since June 2002. Sure hope I can find others who have this disease, need to know that I am not the only one feeling like this. Somedays I wonder if I am going crazy.
Posts: 4 | From NC | Registered: Nov 2006
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Hi there dixie. Welcome. You bet there are other lymies in NC. Some on this forum, and more you can contact via support groups in the state. Click on support groups line in green menu box left side of this webpage and follow the yellow brick road.
Posts: 8430 | From Not available | Registered: Oct 2000
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Welcome, Dixielady! Sorry you have Lyme, but glad you found LymeNet.
Lots of people in North Carolina have Lyme, ....and lots of people in South Carolina have it, too.
Last week, the Lyme Disease Network of South Carolina mailed 200 letters to people who have Lyme, suspected Lyme, and/or needed LD info. In addition to that list, there were many others that we don't have their mailing addresses.
Example - the young mother that saw my Lyme disease bumper sticker & followed me into the grocery store to ask questions. I gave her a brochure & urged her to call the Hotline. She never did. I learned from that experience that I need to always ask if we can add them to our mailing list.
The sad part is - so many people are not being diagnosed. Consider yourself blessed to have a diagnosis. Now the next hurdle is to be sure you get adequate treatment. And...have you been evaluated for Co-Infections?
Check the "Links for newbies" for anything that may fit your situation.
Again, welcome to the LymeNet Family. Feel free to ask as many questions as you need to. People are very willing to share what they've learned from their experiences with TBDs (Tick-Borne Diseases).
Posts: 4638 | From South Carolina | Registered: Mar 2001
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Thank You so much for your reply. My best friend died of cancer in June 2002. I went to his grave after work. Three hours later I found tick on my back. That was on a Friday, by the next Wednesday I was sick as a mule. I went to Winston Salem Health Care - to the clinic. I had the perfect bulls eye on my back. (red with red circle around it) They called in 5 Drs. to show, some to agree it was Lyme and some newbies to learn what to look for. I took the antibotics but it got into my brain anyway.
Lost half my hearing, still have ringing in my ears. Most days my head is like foggy. Can't get started until after 12. I know it could be a lot worse. But was wanting to talk to people who had Lyme to know I am not going crazy.
I was turned down for life insurance a few days ago because of Lyme. Thats when I realized these feelings I have are still effects from that dang tick bite.
Sincerely, Dixie
Posts: 4 | From NC | Registered: Nov 2006
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Hi Dixie, I am so glad you found this forum. You will be part of a huge group of people who have felt as you do now and who have proven that there is hope for us Lymies.
I have been made to feel crazy for over ten years as I sought to find out what was wrong with me. I went from a very high achiever and socially quite active to a bed-bound, terribly sick person.
Over the years I have been diagnosed with so many illnesses, most of which have no known cause. I have lived in areas where Lyme is endemic and have had numerous tick bites.
When I have questioned physicians about the possiblity of having Lyme I was dismissed by every single one. It took quite a while to find a LLMD and get tested through a lab that is more accurate in Lyme diagnosis (IgeneX.)
Now I have a Lyme diagnosis as do three other members of my family. I was relieved to find out what has made me so ill all these years, but now I can't find a LLMD to prescribe the antibiotics I feel I need.
So there have been a number of people here who have held my hand through this process. And by becoming part of the activism going on here and on the LDA website, I feel impowered.
I am not on the road to recovery yet, but I don't feel so much urgency anymore.
I hope you will continue to post your thoughts and questions here and do not hesitate to PM me or anyone you see here who you think might be helpful. In my case, it's one thing I can actually do for others and that makes me feel useful and needed.
Good luck with your journey. None of us need walk it alone.
Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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