posted
here's a suggestion i have and sent it to mo.
gigi...
we've got many newbies who want to help here/there, another idea:
your posting in medical stating we want to check treepatrol's newbie's links and make a listing of ALL GIGI'S POSTS ALREADY IN HIS ARCHIVES.
several people could take on this assisnment splitting up the huge volume of links by pages since tree has page NOS. he assigned all the way thru.
they click on every link there, if GIGI's name pops up as the person ORIGINATING THE Link, TO COPY THAT AND PASTE TO THEIR WORD PROCESSOR for an ongoing list ofALL her links in tree's archives .
for them to SAVE IT each time they add another new link so it doesn't get lost, and even make a BACKUP of each link so if one fails ; another is there so they do NOT have to start from scratch again.
then for this team of collectors to start ONE post showing: GIGI'S MEDICAL LINKS .. ALL KNOWN!
then for each person to PASTE their collection there until each person has this done.
then asking jenifer to make this MEDICAL "FEATURE" so it stays up to the top.
THEN PRINT OFF GIGI'S COMPLETE LIST OF TOPIC LINKS THAT HAVE BEEN COMBINED.
then for anyone who has EXTRA time to bring up GIGI'S MEMBERSHIP NO. and it will list up to 300 posts. click on posts she ORIGINATES, and compare that against "GIGI COMPLETE LIST OF LINKS IN TREEPATROL'S LINKS".
NOTE: they should then add on MORE links as they are found! to GIGI'S COMPLETE LINKS and to their word processor again SAVING EACH link they will ADD to ALL GIGI'S LINKS .
i think they can then indicate a DIFFERENT TIME FRAME to search, and come up with another 300 posts?? not sure on this but they could check with jenifer and/or toby for their help on this search feature.
what do you think mo?
did i lose you; hope not as this is the best i can explain with my neuro lyme mind!
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I think it would be a good idea to have all Gigi's posts organized in two ways, incl your way which would be like the "Gigi gold standard of hollistic treatment for LD".
However, since she has so many posts and since sometimes her information is a little difficult to comprehend, I think her information should also be represented in the form of a high-level summary of everything she said.
As I understand from your post, it seems you're suggesting to add a separate sticky post for all Gigi's information. That I think is a good idea. For sure, I don't think it belongs in the "links and info for newbies" post. Cause it is way over the head of most newbies. It might even turn them off as they may regard it as quackery, as many people do about hollistic/naturopathic medicine.
I have sort of suggested this before wrt to all the other information that is contained in the "links and info for newbies" post...cause this post represents overload to any normal person, let alone a lymie.
Newbies, in general, need to be guided through the process. There's a lot of shocking information that many people simply won't believe or can't understand. Same thing is true for Gigi's information.
For example, one piece of information that I personally struggled with was wrt to my PCP. I just couldn't believe that he didn't know squat about LD and that he wasn't critical about Elisa and WB. I mean, this is not even spelled out clearly anywhere in the "newbies" links...is it? And it's one of the main things to come to terms with before moving on.
Try to go back and being a newbie again. Forget what you know now. Think about what little you knew back then; how much respect you [probably] had for MDs; and how much faith you had in lab tests and antibiotics .
Then all of a sudden you get diagnosed with chronic LD. And if you wanna stand a chance in hell to be cured, you better forget everything you ever thought about antibiotics, lab tests, and qualified MDs and start all over and prepare yourself mentally to accept that there's only one person who has your health as their top priority...YOU! Not your doctor, cause not only does your doctor (even if LLMD) have his own personal agenda and precious little time; but in the end there's actually precious little this doctor can do for you, except to prescribe abx and guide you into some general direction wrt supplements, diet, sleep, exercise, etc.
This is shocking information.
Wish I had the time to help you guys out. But my 2c is the best I have to offer at the present time.
Good luck!
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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