LymeNet Flash: How long have you been sick

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»	LymeNet Flash » Questions and Discussion » General Support » How long have you been sick

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Author

Topic: How long have you been sick

sick
LymeNet Contributor
Member # 9143

posted

Was just wondering how long everyone has had lyme disease and if they have gotten better.

I beleive I have had it for 43 years which is most of my life.

I started treatment in August with antobiotics but have not seen to much improvement yet.
My worse complaint is fatigue and sleepiness.

sick

Posts: 538 | From Iowa | Registered: Apr 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Hang in there. It's been 48 yrs for me now and I'm 56. Uh oh....just told how OLD I am!!!

It took 4 yrs of abx to get me well, so hang in there!!

( I think alot of us may have even been born with this %$#@! )

I'm doing GREAT! [Smile]

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--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Cassie
LymeNet Contributor
Member # 2106

posted

Wow, Sick and Tu-Tu, that's along time for both of you

have you had symptoms all those years [confused]

I was bitten in 1988, was ill for a few days.

In 1996 was when all the Lyme symptoms reared it's ugly head.

DX, 2001, Not on any antibiotics at this time. Getting more good than bad days recently [Smile]

Take care your friend Cassie [kiss]

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Posts: 564 | From Toronto Ontario Canada | Registered: Jan 2002 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

Hi. I had no idea Tutu was so young!!!! You go girl!

This question gave me something to be grateful for. I am extremely blessed that I have only been sick since July of 2006.

It took me till October to get the right dx. and get started on antibiotics.

Good luck on your recovery.

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

sick
LymeNet Contributor
Member # 9143

posted

I had been fighting fatigue and extreme sleepiness for all those years.

I have been accused of being lazy but the ones who know my family know I come from a very workaholic family. The day I got my drivers license I went looking for a job. I love to work and be with people but haven't ever been very successful on the work part.
Still hoping to feel better someday.
sick

Posts: 538 | From Iowa | Registered: Apr 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by sick:
Still hoping to feel better someday.
sick

YOU WILL!!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

posted

I got sick sept 1987... have been sick since.

Finally Diagnosed in 2000 by the time I got treatment I was disabled ....

and I still am disabled and not anywhere near being able to work or have any kind of real life.... but someday I will.

I am 30 years old now.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner

http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001 | IP: Logged |

Andie333
Frequent Contributor (1K+ posts)
Member # 7370

posted

I had a bullseye rash in 1996 and was given 15 days of antibiotics.

Almost a decade later, the disease surfaced full-throttle with a brutal vengeance.

Andie

Posts: 2549 | From never never land | Registered: May 2005 | IP: Logged |

serendipity
LymeNet Contributor
Member # 8474

posted

I developed my first symptoms in 1989

Until 2002 I was able to go to college, graduate school, work full time and some, travel, volunteer, date and well basically have a full life.

In 2002 I began to have serious symptoms . I had to stop working in the Spring of 2004 and wa finally diagnosed with Lyme in the Fall of 2004.

I began treatment in 2005 and have made progress but still worry about how much I will be able to recover. [Frown]

Posts: 628 | From the south | Registered: Dec 2005 | IP: Logged |

5dana8
Frequent Contributor (1K+ posts)
Member # 7935

posted

20 years. Went the first 7 undiagnosised sick as a dog. Then had IV abx followed by oral doxy & 9 years of 80% better in remission.

Major relaspe 4 years ago. Three years of abx & now 7 months on rife. Am feeling somewhat human again in partical remmission. My main 2 symptoms has been neuro lyme with fatigue.

I know its hard but try not to listen to much to what other people say who don't have lyme.
No lyme no idea at all.

Your are not lazy you are sick. There's a huge difference. People sure can't help getting sick.

I hope you can feel better soon [group hug]

here's a links on the abx & the Blood brain barrior - hope it helps:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=033298

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5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005 | IP: Logged |

trails
Frequent Contributor (1K+ posts)
Member # 1620

posted

bitten 1991, bullseye rash and textbook symptoms.
treated 2 weeks tetracycline. herx and got better right away.

Had 10 great years---college, travel, love life, worked as artist and teacher.

Relapsed or re-exposed in 2000. dx 2001 with nuero lyme 6 months abx iv and oral and got to 90%.

had 4 medium but not very healthy years.

complete fall on my face relapse in late 2004. been very sick since. been on orals now for 15 months. Simptoms mostly word recall problems and muscle pain, twitching, fevers, dizzy, no stamina.

have tried treating babs and bart but prolly not successfully. Did not treat these prior to 2004.

Posts: 1950 | From New Mexico | Registered: Sep 2001 | IP: Logged |

Aniek
Frequent Contributor (1K+ posts)
Member # 5374

posted

I got bit about 20 years ago. I was 12 and had the typical EM rash around a bug bite.

First symptoms, besides the rash, started when I was 14. Arthritis symptoms in my knee.

Symptoms came and went most of my life from there. Got bad when I was 27, leading to a diagnosis about 3 years ago, when I was 29.

I'm better, but not perfect. I'm having some GI problems which are new in the last year so I'm off abx.

I'm actually thinking I need to detox my body and take care of my autonomic nervous system before I got back on abx. I'm hoping if I take care of my ANS, I might discover I no longer need the abx.

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"When there is pain, there are no words." - Toni Morrison

Posts: 4711 | From Washington, DC | Registered: Mar 2004 | IP: Logged |

5dana8
Frequent Contributor (1K+ posts)
Member # 7935

posted

Here's another link sick up today provided by tree,cave,tincup,minoucat on abx that cross the bb:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=051093

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5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005 | IP: Logged |

bettyg
Unregistered

posted

been sick for 37 years, dx w/mono/epstein barr virus at age 20; yep; 57 now.

worked 28 yr. 7 months AFTER being bitten until i left work 8 yrs. ago due to this mystery illness.

during this time lost 6-7 immediate family members which really put me in a spintail to rock bottom.

was losing my only sister, 40, when i quit work without any benefits since i was only 49 but had enough years in!

dx correctly 6-04; in lyme treatment...abx/supplements for 2.5 yrs.

i'm WORSE than i've ever been before my correct dx! [Frown]

IP: Logged |

koryn
Member
Member # 10960

posted

I got bit when i was 16, didn't have symptoms till i was 18 and im now 21 with symptoms coming back. So.. 5 years i guess.

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Koryn

Posts: 13 | From Pocono's, PA | Registered: Jan 2007 | IP: Logged |

Lisianthus
LymeNet Contributor
Member # 6631

posted

Been sick for 41 years now. And been on abx for the last 2 years, and doing much better.

although I don't think I really know what it feels like not to be sick.... ahhhh that would be a great feeling, I imagine.

Lisi

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yahoo 360 http://360.yahoo.com/my_profile-UqSNGiA9crUMRW.lFNGN5Jk-?cq=1

Posts: 986 | From Michigan | Registered: Dec 2004 | IP: Logged |

trueblue
Frequent Contributor (1K+ posts)
Member # 7348

posted

My best guess is 26+ years, not really sure. I was diagnosed 14 years ago, almost exactly.

I have been better and worse. Unfortunately, this is one of the worse times. I do expect and plan to get my life back.

I have just started treating again, again, but have every intention of succeeding.

In all this time no one has ever let me treat a coinfection. I'm finally getting to treat the Babs I tested positive for 8 years ago.

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more light, more love
more truth and more innovation

Posts: 3783 | From somewhere other than here | Registered: May 2005 | IP: Logged |

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