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» LymeNet Flash » Questions and Discussion » General Support » disability, private and social security

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Author Topic: disability, private and social security
grace1
Member
Member # 10347

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can you please share your experience with applying for disability? and dealing with both private and SS?

what are the chances of qualifying? what gives the best chance of qualifying? is it easier to qualify with a diagnosis of chronic fatigue, or depression and anxiety?

do they send you to get checked out by one of their doctors?

Posts: 98 | From San Francisco | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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grace, i'll resend you a pm with all my disability info/experience from me, disinissues, and connie mc's info!

easiest to get disability for: depression, anxeity, affective disorder.

they don't want to deal with fibromyalgia, chronic fatigue, and lyme disease!


if you get enough MEDICAL DOCUMENTATION that meets the criteria of SSDI:

why you can't sit, stand, walk, climb, reach, lift, work with your hands, cognitive skills, crawling, etc. for more than 2-3 hrs. a day max .... you've got a great chance winning if you follow all the excellent advise i'm sending you.


sign up promptly for FREE DISINISSUES, disability insurance issues; you'll learn a lot, have access to files/links! best wishes! [Big Grin]

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8man12
LymeNet Contributor
Member # 7664

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i think some on here are fine and dont need disability.
Some could work from home,typing, etc.
Alot of lymies get disability due to strokes,and
severe heart problems etc.

Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
TNJanet
LymeNet Contributor
Member # 10031

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I have to take offense to your assertion that a lot of people here don't need disability insurance. I wonder what drives your opinion?

I wish to goodness I didn't NEED SSDI! I would much prefer to be making the salary I once did, have active friendships and fun family gatherings,

do volunteer work, and drive circles around people half my age. It has never made any sense to me that after paying into this INSURANCE program, most people must prove they are practically dead or near death to receive the

benefit coverage they are entitled to. And I know of not a single person who lives WELL on SSDI. Being very ill is quite a challenge for anyone, but the stress of trying to make ends meet makes it all

much harder. If you know of any jobs which would allow me to work in increments of 15 minutes at a time for a few periods during the days I can still think clearly enough to trust my own judgment, I would very much appreciate you letting

me know. Do you think I gave up my career earning over $150 per hour just so I could sit home and stare at a television set? Come on! Your comments perpetuate the myth that people with

chronic diseases are just lazy. Surely you do know better than that! Most people come here to learn, to give and receive support. No one deserves to be shamed because they can no longer

be part of a workforce. By the way, are you hiring? [Roll Eyes]

Janet

--------------------
DISCLAIMER:
No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research.

Posts: 287 | From Tennessee | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
Pa Lymie
Junior Member
Member # 11020

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I also take offense to that comment. I wish to God that I could have gotten some help from a system that I have contributed to every pay. Thank God I just happened to be laid off for the time my symptoms were the worst. I really never thought I would work again..apparently you have never been in that boat. wake up! this is real- people are suffering. I can understand why some decide they cannot go on..so sad
Posts: 7 | From North East Pa | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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8MAN12's comment was uncalled for! VERY OFFENSIVE!

gang, this is the type of post that needs to be reported to:

[email protected]


don't waste your time arguing with this person; they've been very negative, wanting to fight for last week or 2!

this person said she wasn't brian, but brian's wife; for your info only! 2 people using same nickname to post. [Frown] [cussing]

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kelmo
Frequent Contributor (1K+ posts)
Member # 8797

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BettyG...It looks like my daughter will need to apply for SSDI. It breaks our hearts, but my husband will be losing his job of 34 years (and four years away from retirement and full benefits) at the end of the year. She turns 19 next month.

So, you say it's best to go with depression/anxiety than fibro or CFS? I'm surprised, but you have been there/done that.

I've been recently searching the newbie links for information. So, I appreciate all you hard work posting that!

Kelly

Posts: 2903 | From AZ | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
TNJanet
LymeNet Contributor
Member # 10031

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Kelly,
I am sorry to hear that your daughter needs to apply for disability. It is a difficult decision, but it doesn't mean that she will have to stay on SSDI for the rest of her life.

Once approved, she can work some each year if she feels able and still maintain her coverage. The Social Security Administration's website discusses

all the stipulations of SSDI. As far as what you are going to try to get SSDI FOR: you just need to present ALL the medical evidence you have access to.

I still don't know what I got disability for....
I had fibromyalgia, chronic fatigue, interstitial cystitis, depression, chronic anxiety, sleep disorders, etc.

I included EVERYTHING in my application. I used to help people with HIV/AIDS file for SSI or SSDI. There are some key words to use when filling out the disability forms.

First, it is very important to say BEFORE I GOT SICK I COULD ___________ and list all activities of daily living that we take for granted.

Then you say SINCE I GOT SICK I NO LONGER CAN
______________ and I have to rely on ___________.

The Social Security Admin. will look at all the medical records and will probably set up appts. with one of their nutso doctors who are hired to find nothing wrong with your daughter.

They will also send her to a psychological examiner for testing. I ended up sobbing at this visit because I had given these tests to people myself and knew exactly what they were looking for

and no matter how hard I tried I couldn't come up with some answers. It was humiliating for me. Maybe that is how I got approved over ten years ago. I'll never know.

Also, most people receiving SSDI are re-examined from time to time. I was sent a short questionaire asking about my current level of disability about a year ago. I answered the questions honestly and then received a reply that

I did not need to provide any other information. One benefit to being on SSDI is that if a person begins to feel better and wants to work, that is possible. The SSA will even pay for school to people who want to be trained in another field

through vocational rehab. I have thought that if I can ever get better I would go back to school and get a teaching certificate and become a teacher. Since I have post graduate education, I

would only need a few classes. Anyway, filing for and then receiving social security disability benefits is not easy but it certainly is doable and a person doesn't have to remain on this insurance forever if they get better. So that allows

for hope that treatment for Lyme will improve a person'a ability to go back to work when they get better. I hope I have given you information that is helpful.

All my best,
Janet

--------------------
DISCLAIMER:
No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research.

Posts: 287 | From Tennessee | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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kelly, i just sent you by pm same info i sent to grace earlier today; it's a lot of STUFF!

take your time looking thru it all just to become acquainted with WHAT'S ALL IN THERE to help you/daughter!

1st thing to do is sign up for FREE DISINISSUES WEB SITE!

There are many more links, as well as advice and "useful" messages in the Files area of the website. Go to

http://groups.yahoo.com/group/Disinissues
and click on Files

YOU WANT TO SIGN UP FOR "DIGEST" mail daily; not individual posts! saves you time skipping things you're not interested in but learning about things as they go. good luck.! [group hug] [kiss]

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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

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quote:
Originally posted by 8man12:
i think some on here are fine and dont need disability.
Some could work from home,typing, etc.
Alot of lymies get disability due to strokes,and
severe heart problems etc.

Perhaps this is a reflection of your own disappointment with SSDI?

The fact that some of us log on here in an attempt to help others is not an indication that we are "fine."

I often fall asleep in front of the computer, sitting up. I did this at work, too, guiltily. For the last two years. I stopped work in September.

I have never been off work in my life except long enough to have a baby. Thus, having paid into SSDI for almost 30 years, it's appropriate to feel I might need it when I can't remember what I did yesterday or where I went.

One needn't have a stroke or heart attack to be disabled.

I hope that you can get the help you need and perhaps then some of the bitterness will fall away.

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244

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if i had stuck with trying to type at home, i would have starved to death some years back. i don't think anyone needs to feel guilty for having access to funds they themselves contributed to over the many years of working. i was fortunate enough to be able to go back to work within a year. typing at home?*&^(*^&(&*
ha! [cussing]

--------------------
some days you're the bug, some days you're the windshield  -

Posts: 1160 | From NY | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
   

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