posted
Hello all, My name is Julia and I am new to the forums.. Im 23 and living in the mountains of NC just recently diagnosed with late lyme and a week ago started oral antiobiotics. Most of my symptoms of nuero... foggy brain, depression, floaters, panic attacks, social phobia, anxiety, vision problems, tremors..etc etc..also have problems with balance, food alergies etc etc.. A week ago I began oral antibiotics (under dr J. advice) taking minocyline 100 mg 2 x daily and amoxicillin 500 mg (2) 2 times daily.. I had read about herxing but didnt expect w orals i would have such a hard itme. Today is my 2nd day off and i go back on tommorrow.. while taking them i can harldy even walk..running into walls, severely depressed, paranoid, whole body feels as though its vibrating and buzzing, ringing ears, etc etc.. and the thing is noone wants to be around me...and hoenstly i dont blame them. Im just so sick im a downer to be around. My dad has been sick for years with his own problems so i cant really find solace there or burdon him with this and my mother and i have a really rocky relationship and she isnt showing much support through any of this.. So alot of this has been falling back on my boyfriend and sadly I see it ruining our relationship.. He has even hinted around at his loss of attraction due to how sick i have gotten. all of this is just heartbreaking to me.. i feel so depressed and i dont really know where else to turn. i feel like this disease has already taken so much from me and my life and now im feeling powerless over my love and losing my partner. I have turned into this emotional wreck needy of a girl and im just scared.. Im hoping if i can find some support elsewhere it will take a load off of him. i dont know how long i will be herxing for.. i live alone and will be housebound for a while i assume so if anyone is in a similar boat and would like to share support please let me know.. my email is [email protected] Also if anyone has any advice with the herxing..how to ease it or speed it up so the process is over faster it would be great. i already dont eat gluten/wheat. Ok well i guess thats all for now. Jules
[ 01. February 2007, 10:20 AM: Message edited by: FebuaryGirl ]
Posts: 1 | From asheville, NC | Registered: Jan 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Jules,
I'm so glad you found this place. Having lyme leaves us all in a very lonely place. And even when people are around, I think we still have a "lonliness" that looms over us.
Your symptoms from the antiboitics sound so much like mine did with my herxing as well. I started herxing 4 days into my amoxicillin and I wondered if it ever would end.
Things that I do think that help along the way that I got from notes here was to DETOX, DETOX and DETOX.
Things like lemon and water and when it was horrid, I use to squeeze fresh lemon in a glass and drink it out of a straw, to protect the teeth.
I also did alot of warm epsom salt baths and rested every chance I could get. There are also some various herbs I was using to detox. Sadly, there is nothing I know that works at a guaranteed "magic bullet".
But I too was out on these boards wondering what I was suppose to do just 2 1/2 months ago and even though I'm still herxing like crazy, it does change and ease up so you need to focus on getting through one day at a time.
As far as the boyfriend issue...that's a tough one. This alone is going to make you stress and stress makes our symptoms worse, so it's a horrid circle.
Perhaps if you boyfriend knew that the way you are right now, WILL lift, perhaps he could agree to be patient with you and try to help you through this. I'm sure he's scared, just as you are.
Please continue to write. I noticed you said you were from Asheville. We thought of moving to that area before my diagnosis, but now that I'm settled in with my LLMD, we are going to stay put for awhile.
Have you always lived in Asheville? Please try to hang in there and keep writing to us. We honestly have been through what you are going through and DO understand. Good Luck!
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Julia
I sent you a pm
Blessings Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
When you get the chance, please edit out the dr's name. We only use initials here to TRY to protect our docs.
One tip I would give you is to eat low carb....no white foods. NO sugar, etc.
Going gluten free IS a good idea!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Your boyfriend sounds self centered. I know you're here asking for support, but consider letting this guy go.
It may open the window for other opportunities.
Carol
[ 01. February 2007, 03:11 AM: Message edited by: Carol in PA ]
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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bettyg
Unregistered
posted
welcome jules to the board.
i'll send you my pm, private message, with my newbie links/advise
tutu mentioned editing drs. last name; here's how to do it.
click on PENCIL ICON in your post w/drs. name listed. it will open up topic line and text. show only drs. LAST INITIAL of last name.
while you are in there, may i ask you to break up your long, solid block of text into paragraphs. look at how others responded back to you ok. mine are an idea as well.
hit the enter bar twice after each paragraph which helps us read and comprehend for all us neuro lymies; we'd like to help you IF we can read it easily.
otherwise, we'll scroll on by, SOB, without reading or helping....
also go to bottom left, mark box to receive all replies! click edit send, and you've edited your 1st post.
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I know how tough this all is but hang in there things will get better.
Does your boyfriend really understand about the concept of a herx...
I have found alot of people have a hard time believeing that getting worse is really me getting better when I first tell them.
Most people are used to taking medicine to feel better so I have found some people take a little while to believe it.
Also I know personally when I am real real sick there are times when I have pushed people away and shut them out...
Sometimes I knew I was doing it ... sometimes I didnt realize it till it was kinda to late...
I am not saying you do ... am just saying realize that it is one of many responses to being so sick and if you are doing that your boyfriend may be reacting to that.
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Jules,
My LLMD has me take benadryl 25mg every four to six hours when I have a bad herx.
I have found that the best support I can get is from the members of this forum.
If you know that there is always someone here to catch you if you fall, then you know that you are never truly alone.
I'm glad you made your way here.
Sorry about the boyfriend.....my husband is not the most understanding either, but things are turning a little as he just tested positive for Lyme on the ELISA.
I try very hard not to let all the negative distract me from getting well. I have days that I fail miserably at this, but I can always come here and get the information and support I need from others who know what Lyme is about.
Give your boyfriend the info on Lyme. Maybe he will be more compassionate and supportive if he knows more about Lyme.
Hang in there. Sending you positive thoughts and prayers.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hi Julia,
I hope you begin feeling better soon. I had all of your symptoms too from late stage untreated lyme, and just started antibiotics in july.
The good news is, although it takes time and alot of patience, you really will start feeling better in the next couple of months, most likely. It is a good sign that you are herxing strongly at the start, it is telling you that you are really killing off the bacteria in your system.
Lymenet has been a great support, you should read old posts widely. There is a great book, Healing Lyme, by Steve Buhner, and his suggestions for herbs and supplements have helped me alot.
Lots of the non-traditional things suggested by lymenetters have helped me while herxing; essential oils, epsom salt baths. I hope you can take it easy for the next few weeks while starting treatment, it may well get easier after the first month or two of treatment. Everyone's experience is different, but it got alot easier for me as each month progressed, although there are ups and downs.
Lyme is a serious illness and can be very isolating. So be sure to check in and let folks know how you are doing!
Posts: 2557 | From home | Registered: Aug 2006
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I advise you to call your doc, minocycline causes dizzyness/vertigo when it is ramped up too fast. I went through the same problem a few years ago when I was on it.
I'm sorry to hear about everything, I know it sucks... been there a few times and just found out last week its back
All the best!
Posts: 41 | From Toronto, formerly of CT | Registered: Apr 2003
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