posted
I have been diagnosed since last July and am taking two abx, Biaxin and Doxycycline. Feeling worse now than ever. Severe headache, nausea, severe anxiety depression. Every day it seems like I get new pain or sympton. My LLMD is great but is 5 hours away in another state. Also there is no support group near me. Just need a little reassurance that there is a light at the end of the tunnel. Feeling very "crazy" right now and my endurance is wearing thin. Friends and family especially husband are great but when you don't "look" sick sometimes don't realize how sick you feel. I am new to this site , glad I found it for some support. I really miss my real life. I hope I can get at least part of it back. This disease really puts the brakes on life doesn't it. Renee
Posts: 33 | From Ohio | Registered: Feb 2007
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posted
Welcome to the site Renny! You will find lots of support and answers here. Be sure to check out the Newbie Links towards the top of the Medical info page.
Sounds like you are off to a good start with your treatment. Just make sure you stay on it long enough! Many folks have been treated for only 3 months or so, and we all know now that that is not enought time.
Good luck and hope you're feeling better.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Renny.
It sounds like you are experiencing a long and drawn out herxheimer effect... with some serious staying power! Please don't feel like you're not making progress. You ARE. Each day of feeling bad marks what is hopefully further eradication of the bacteria from your body.
While I've HEARD of people recovering sooner, it's far more frequent that it takes longer. At six months I was nearly as wretched as when beginning in treatment, so you mustn't lose hope! Brighter days will start to pop up here and there. In the meantime, support yourself as much as possible, eat well, rest MUCH, detox and stay on top of a good probiotic like Theralac.
And visit often!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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I'm so sorry you are having such a hard time but please know that you are very fortunate to have a good LLMD and are being treated.
So many posters here are unable to receive treatment yet and watch themselves grow sicker. The things you are feeling, though scary and very hard, mean you are hitting the bacteria and
it wants to give you a one-two punch before it is irradicated! It might help to visualize your body in a fighting match with big, mean borrelia
and though borrelia might seem to be hitting harder than you can, you will ultimately win the boxing match! Stay tuned in to the support here.
It will get you through most anything. Wishing you better days soon,
Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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bettyg
Unregistered
posted
welcome renee!
i'm going to send you a PM, private message, with my 45 pages newbie links, advise, symptoms, SSDisability insurance benefit info, BUT YOU LOOK NORMAL info ... look for that ok!
print it off and email to relatives!
i was on doxy/biaxin too PULSED: 3 days on one; 2 days of; 3 days on other; 2 off; and then began 1st abx again.
keep a daily chart of what new develops and how you are feeling. i didn't; would have been helpful.
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I am new to this site as well,but you can get some really good comforting advice here.
Three and a half years ago my husband was lead here for help for me. I was so sick, I couldn't see. With advice we made an appointment for a Lyme test and one with an LLMD 500 miles away.
For the first time I had heard from someone who was experiencing symptoms like mine and could relate to what I was going through.
For the first four months I thought I must be dying a slow and very painful death.
I had visited Drs. all over and all they could conclude was either I was crazy or I was a Dr. shopper looking for a supplier for a bad habit.
Thank God we found that I just have Borreliosis. I have taken about twenty antibiotics in the past three years to get here today. I am still taking antibiotics as apperantly we haven't targeted all of those nasty bacteria yet but they are so tricky they hide in fatty tissue, they migrate into a cyst form which takes Flagyl to kill, there is something else for water-soluable and so on. Not to mention the numerous diseases ticks carry.
The entire story is here if you would care to see:
Detoxing, to me is one of the most important things to learn. If you are not familar or just want to ask more questions I will be happy to share my knowledge with you.
I am sorry you are sick, may God bless you and guide these Drs. in getting us well.
It is hard to smile, but we must keep clean, happy thoughts. That is easier to do when you know there is light at the end of the tunnel.
If I can be of any more help I'll be happy to return the good deed that someone did for me.
Sherry Posts: 69 | From mississippi | Registered: Feb 2007
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posted
Renny, hang in there! u r blessed to have a llmd. I went through 8 docs for treatment. just remember when u go on the antibotics u get sicker than better. Many of us have to travel for a llmd. right now I dont have a doc to see, she gave up on me! In a polite way. I know the feelings and emtions u r going through, they will slow down and u will start feeling better! There is alot of good people on here that will help u! I am a newbie on here too! try going to the chat room on saturday nights too my thoughts r with u... hang in there!
Posts: 8 | From Frankford, DE. | Registered: Feb 2007
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[ 27. February 2007, 12:13 PM: Message edited by: Cathy DeVoe ]
Posts: 88 | From Carnation | Registered: Feb 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
W E L C O M E ! ! ! !*)*!)*!)! !*)*!)*!)!*)!*)*!)*!)*!)!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
welcome and yes, there IS light at the end of the tunnel.....that's the good news....the bad news is that it IS a very, very long tunnel.
each and every one of us had to find out own methods of hanging in for that very, very long time.
i wish you peace of mind to the degree that is possible and a speedier than most recovery.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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I was where you were a year ago. Herxing so badly, every cell must have been inflamed. I had been on abx for 7 months and thought the hell would never end.
Tell yourself, this too shall pass, because it will. Use whatever coping strategies you can. Most important, be kind and gentle to yourself. You are in the very worst stage and are a very sick woman.
I am 19 months into therapies. Abx are not the only ones I use. I have just taken up yoga again (I NEVER thought I could do it again). I could not walk a year ago due to pain, fatigue, and lack of stamina.
So things will get better, but just take care of yourself now.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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