posted
Thank you to everyone for you kind words of support to Greg. It's greatly appreciated!
Just to update you - Greg had a dr. appt this week and we found out that he is not only allergic to gluten, but also milk, dairy, eggs, rice, cukes, and soy. Just to name the major foods.
So now he will go without these foods for a month to see if he can get over this final hurdle of fatigue and leg pain.
Kathy, as always, Posts: 64 | From MA | Registered: Mar 2006
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posted
Is this found out by a general Allergist? I'm wondering because I need to hit all angles, and possibly treat the symptoms(while treating the Lyme).
-------------------- Never walk through a cornfield backwards.
char
Frequent Contributor (1K+ posts)
Member # 8315
posted
My son and I are off dairy and wheat. and me chocolate. (ouch)
The first week can be very hard as some people go through withdrawl symptoms: intense cravings and mood changes.
Once we got through that with my son, he is happier than when he was eating wheat. Actually, he has been off wheat for years; but we were letting him cheat with restaurant chicken nuggets and such.
I have been off for a year and I feel much better.
Biggest challenge for me is to not run out of things to eat in the house; you do develope a taste for veggies and all over time.
You can buy gluten-free pretzels, bread, and rice and pecan crackers at Whole foods. Safeway is now carrying some bread mixes and such.
char
Frequent Contributor (1K+ posts)
Member # 8315
posted
My son and I are off dairy and wheat. and me chocolate. (ouch)
The first week can be very hard as some people go through withdrawl symptoms: intense cravings and mood changes.
Once we got through that with my son, he is happier than when he was eating wheat. Actually, he has been off wheat for years; but we were letting him cheat with restaurant chicken nuggets and such.
I have been off for a year and I feel much better.
Biggest challenge for me is to not run out of things to eat in the house; you do develope a taste for veggies and all over time.
You can buy gluten-free pretzels, bread, and rice and pecan crackers at Whole foods. Safeway is now carrying some bread mixes and such.
posted
having celiac and casein food allergies, is BIG BUCKS $$$ buying gluten-free and case-in free foods!
bad enough we have chronic lyme and we pay a fortune for our LLMDS, meds, supplements, out of state travel expenses, and then to buy special foods! uffda; good gracious.
i sure hated the spaghetti; will never try that again. save your money there.
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posted
Greg was tested by the dr. treating him now. It's not his pcp or lyme dr. This "new" dr. works with the body as a whole. He did find out that Greg was gluten sensitive. This is hereditary. So far I have also been diagnosed as well as my older son who didn't have any symptoms (an endoscopy confirmed celiac disease).
I think I'll eventually be tested for other food allergies and will probably get the older son tested too.
Char - if your son has celiac, even cheating now and then is harmful.
Yeah, the food is expensive. I actually paid $8 for 6 sweet cinnamon buns!!! But if this it what it takes, then so be it.Eating healthy or organic is always expensive. Guess you just have to weigh the price.
And yes, it's very hard paying for the food and paying for services that most of the time are out of pocket. We spend around $10,000/year on medical for Greg. That is out of pocket $$ for office visits, treatments and suppliments. It does not include gluten free food.
Like the commercial says - price for seeing my son functioning in life - priceless!!!!!!!
Kathy as always, Posts: 64 | From MA | Registered: Mar 2006
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