posted
I have chronic lyme and have been reported to the CDC. My system has gotten worse due to I am on the mim. of antibiotics because of overwhelming stress. It all started in June of 2003 when my son graduated from high school, joined the army, was mobilized and finally was deployed to Iraq in March of 2004. In January 2005 I was finally diagnosed. It took 2 years. They think the Lyme stayed dorment until that point. So I went on the antibiotics. Two months ago I started to have blackouts and falling down and running into walls. I was sent to the neurologist who ordered 3 tests. He said I may be having seziures. I had the MRI done last week. I had the tilt table test done this week. Here is where my problem is. I told the cardiologist that I have chronic lyme and have been report to the CDC. He chewed me a new "you know what". He said there is no such thing as chronic lyme and that it being reported to the CDC is a bunch of bull. He said it had to do with my inner ear. He then proceeded to ask me who my lyme doctor was and I told him. He said if I was still going to him I was stupid and there is not a doctor in the world that would support that man. He told me to find another doctor. Granted my doctor has been in the news and is working now with a mim. license to treat lyme. I had full confidence in his staff. I was so upset about the test and then this just made things worse. My husband has been by my side helping me in any way he can. Now it has him wondering. He knows that something is seriously wrong but does not know what. What can I do? Does anyone have any advice? I was tested positive for lyme. I have not worked in 2 1/2 years and still trying to get disability.
[ 24. April 2007, 11:00 AM: Message edited by: countrylyme ]
Posts: 4 | From North Carolina | Registered: Apr 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
W E L C O M E !*)!*)!*)*!)*!)! !*)*!)!)*!)*!)!*)!*)!*)!*)!
You have a great doctor as far as I know if he is Doc J from North Carolina!!! One of the sad realities of Lyme treatment is if they bother to go after your doctor you KNOW you have a good one*)!*)! Seriously. Sad but true!!!!!!!!!!!
You definitely belong here!!! Welcome*)!)*! Best wishes, Sarah in CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Virtually every LLMD is disrespected by the "medical establishment"....you know... the ones with the closed minds??
You have to decide if you want to be treated or not. Then do it. You can not afford to continue to go downhill.
If possible, it might be wise to find a dr who can treat you without the constraints this dr now has imposed on him.
Either way, you NEED to be treated!!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
I'm so sorry for what you and your children have suffered through. You poor dear.
Please do not pay any attention to the doctors who deride your LLMD. All of us have similar stories. We can thank the IDSA for that disinformation.
You must arm yourself with information. Read everything you can. Read these boards every day. Keep in mind that it's not just a few "nut job" LLMD's who have dreamed up chronic lyme. Every day new studies are released demonstrating the devastating effects of this disease. I'm sure there are many such studies even today on here. This is called "Science" rather than politics.
Have faith that you are in good hands with your LLMD. He's known to be very thorough. Your particular case -- being CDC positive!!! -- ought to convince a duck, but being CDC positive myself, I can tell you it doesn't make a whit of difference to a closed mind.
If you'd like to be pointed toward scientific studies demonstrating the persistence of the lyme bacteria, just holler. We got tons!
Come often and keep working at getting better! Ditch the ducks!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Welcome,
Unfortunately, the pattern is that exsisting symptoms can worsen initially with treatment and new ones tend to crop up.
We have been treated by your dr and you are in good hands. I think it is best for you to stick with an expert and less stressful to go in-state; especially if you are having these serious issues.
Stress can bring on lyme symptoms and make them worse. Not saying at all it is in your head. That said you are under so much pressure that counseling with a llmd professional could help your recovery.
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