posted
This is a great chance to help a Columbia student working on her Master's degree gain an insight on our personal experiences getting diagnosed & treated with Lyme disease.
If you have any questions, email Alison directly (her email is below)
My name is Alison Schwarzwalder and I'm a graduate student in Public Health at Columbia University. For one of my courses I'm conducting a survey with patients who have been diagnosed with Lyme disease as part of a larger project to characterize patient care and physician interaction with regards to this specific illness.
Why this topic? Let's just say both professional interest and personal experience. If you have been diagnosed with Lyme at some point in your life and have 15 minutes to spare, I would greatly appreciate if you would complete my online survey at:
I'm not collecting any personal or identifying information so your responses will remain confidential In addition, if you are in contact with other Lyme patients who might also be interested and willing, please pass along this email as well.
Please feel free to contact me with questions or comments at: [email protected].
Thanks so much!
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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bettyg
Unregistered
posted
i completed the 43 questions taking me 25 minutes!
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Okay Bettyg,
I finished that survey in 9 minutes and managed to write quite a lot.
Thank God for coffee!!!!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Up
Posts: 547 | From Maryland | Registered: Mar 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Thanks Gail, I did the survey yesterday when you posted. I think it took maybe 10 minutes. (I didn't actually time myself or count the questions. )
I'd love to see the results when she's done. Thanks!
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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bettyg
Unregistered
posted
gee, am i the only one with dial-up taking extra time going from 1 screen to another?
remember, i did turn 1 year older march 24? nope, i didn't think you would buy that.
would be nice if she came on here and explained why she is doing the survey and what she will do ith our answers. i have no time to email her directly. just a thought since someone emailed me by pm about this project.
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posted
Did it, hope it helps
Posts: 460 | From Illinois | Registered: Aug 2005
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
up for others
Posts: 2675 | From ct, usa | Registered: Jan 2004
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
done...
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Completed. Very good questions in there. I see what she is getting at. Glad to know it is being done.
Posts: 1034 | From North Carolina | Registered: Aug 2003
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posted
I also completed her questionaire. I am sending her info to other people so that they can access her survey. I see the direction in which she is moving with her survey. I wonder if she could post aliitle about the results she obtains. Would be really interested in that. C'mon everybody get on board.
Posts: 719 | From Delaware | Registered: Jan 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
up
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
Did it! Wouldn't it be great to see what patterns/similaries/conclusions she comes up with!
laurie
Posts: 136 | From North Carolina | Registered: Apr 2007
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livinlyme
Frequent Contributor (1K+ posts)
Member # 3773
posted
sorry i just PM'd you and then realized her email was lower I sent one to her as well.. so sorry... LindaD
-------------------- "Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it." Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003
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-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
finally able to take the survey. Very lyme friendly....meaning easy for a person with lyme disease to participate cognitively and visually.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Cobweb
Unregistered
posted
I don't know how long it took me, but I did it.
And I saw you on TV a while ago didn't I? We met on the bus ride up to New York.
Yes, I was on t.v. a few weeks ago, channel 21 out of Harrisburg........me and my chronic lyme dog ......plus they showed a family pic of all of us since we all have Lyme and TBD's.
Also the same day got to do a live program with WITF public t.v. in Hbg. with a well known lyme literate doc!! But I don't know if you get that where you live?? It was awesome!!
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
This survey is currently closed.
Please contact the author of this survey for further assistance.
whats up with that???
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Thanks Tree, I just emailed Alison to see if it's really closed or there are problems with the site.
Will post more info. when I hear from her!!!
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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