Topic: Things I would like to do once lyme is under control
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
1. I would like to go on a covered wagon journey.
2. I would like to have Thanksgiving Dinner at the hotel in Awanee Yosemite.
3. I'd like to spend two weeks in Yosemite during the off tourist season of the park.
4. I'd like to spend two weeks in the Grand Tetons/Yellowstone National Park Area.
5. I'd like to be around water, but I need to be more specific about this...before lyme I was thinking I would like a convertible for my next wheels...I ended up with a power chair...not exactly what I had in mind..but it is a convertible.
I also was thinking I would like to swim with the dolphins...looked at the wall of the therapy pool recently and....you guessed it...I was swimming with the dolphins.
So...for number 5...I would like to actually be in some sort of controlled environment where real dophins are use to having people join them and swim with them. I have heard of a couple of places that do this but can't recall the names or places now.
Still haven't decided what convertible I would like to have or even if I would like to have a convertible now. Somethng that is good with gas mileage, comfortable, reliable, and has a cover that is easy to put on and off and is available at all times.
[ 18. May 2007, 08:22 AM: Message edited by: kam ]
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Andie333
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posted
I want to go to Africa and back to India.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
What did you like about India?
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
1. Start my carreer as an art teacher
2. get to work on my art and use power tools again
3. Submitt my work to galleries so I can start collecting rejection notices
4. Work on ideas I have for a couple kids books
5. rollerblade again
6. get my masters degree
7. get my own house and decorate it how I see fit and grow lots of dandelions in whatever yard I have.
8. Go to first friday in philly ( lots of art galleries have their opening the first friday of each month)
9. Go to the beach at dusk/nite and listen to the waves, feel the breeze rip through my hair, feel the wet sand squish inbetween my toes, and just breathe it all in.
10. wear stilletto heels again
11. Go back to paris. Maybe check out the south of France and I think Amsterdam would be cool too. Maybe go back to Italy ... maybe Florence or Rome definetely not venice though.
12. Learn how to weld
13. Learn french
14. Build my mucles back up so I am not so weak... I was pretty strong for someone my size before I became disabled.
15. Visit gugehiem (sp?) and the met in NYC
Believe me I could go on and on but I think I have bored you all enough
posted
Get Ph.D., teach college, work out again, go back surfing--go to beach more, write book that is revolutionary(unfortunately, it would be an economic theory or finance theory--you know boring stuff, but I love anything theoritical and numeric--numbers are the most beautiful art), learn foreign languages(again--->more)marry, have kids, live life, get some new sandals, laugh, laugh, and laugh, get drunk, and laugh.
-------------------- Never walk through a cornfield backwards.
posted
I would love to own a home and travel again and perhaps live outside of the USA.
I would like to start designing again - more.
I would love to start earning a decent income again too.
I would love to swim laps and have my energy to hike for hours again.
I would love to get rid of this disease so I could have a boy friend again.
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I would like to:
Have more quality time with my family & travel to see them more often
Work at a pet shelter
Make more friends & get outside my house more.
would love to paint again.
Have the strength to have a puppy
Swim again
Make some money so I can feel like I am contributing to my family's finances
Read a book, from start to finish
Get up early in the morning with a cup of coffee & a danish & watch the sun rise....and have a full day.
These are my biggies. Dream ,wish, sig...
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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bettyg
Unregistered
posted
good one kam as usual!
since i'm 58 and disabled/retired, my working days are over and i'm content with that
wish hubby's health was normal vs. essential tremors and i'm afraid now parkinson's which we'll find out end of month.....
so i don't have much on my wish list....
be able to walk without walker and cane after my hip has recuperated more so i feel steadier, and can walk like i used to for exercise and enjoy all the gorgious yards of flowers!
i'm content to watch the travel channel and see thigns up close vs. the pain of traveling since i can't get any delta 4 sleep....
what i'd really like to do WHEN i get my lyme under control:
LOBBY CONGRESS ON LYME BILLS, SUPLEMENTAL MEDS, HEALTH INSURANCE PAYING FOR US TO BE TREATED BY LLMDS, THAT WE ARE ELIGIBLE FOR LONG TERM CARE INSURANCE....
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Wow. This is fun to read. Lots of good things.
Betty wrote:
LOBBY CONGRESS ON LYME BILLS, SUPLEMENTAL MEDS, HEALTH INSURANCE PAYING FOR US TO BE TREATED BY LLMDS, THAT WE ARE ELIGIBLE FOR LONG TERM CARE INSURANCE....
Let's hope we do not forget those who are still struggling once we do get a life again.
We do need to get the above and other things like better testing, education, etc. in the main stream of things.
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
HELP OTHERS!!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Amen Just Don!
And on a selfish note go to The BAhamas and drink a Pina Colada!
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Don,
Help others is a given for me too.
Lisa,
went to the Bahamas on Carnival Cruise lines years back.
Went snorkling at the site that they filmed the James Bond Movie...For YOur Eyes Only.
That in itself was worth the trip for me. I looked off to the shore from the reef and wanted to just swim over there and stay.
I really regret not purchasing the video's they made of us swimming the reef..it was my daughter and I.
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
get my MSW, become a social worker and work with homeless youth (i'm applying for grad school for fall 2008!).
learn guitar (already started!).
write and perform my own songs (voice/guitar).
start performing violin again.
write lots of poetry (starting to..), maybe even a novel someday.
become a yoga master.
travel, travel, travel!! (latin america, india, africa, nepal, turkey, iceland)
become fluent in spanish.
live, love, adopt a couple kids, change the world!
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Don't know why...but reading all these things is putting a smile on my face.
Hope it is putting a smile on your faces too.
heiwalove...for some reason I can picture all those things coming true for you.
Andie,
that bike trail in Canada sounds intriging.
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
1. Go back to teaching.
2. Go hiking again. My goal is to hike to a waterfall in each of the 50 states. Only a few more to go.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8922 | From Illinois | Registered: Aug 2004
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posted
1. Swim with daughter 2. Stay out of bed for one whole day
I have simple wishes
Posts: 347 | From WV | Registered: Jan 2007
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livinlyme
Frequent Contributor (1K+ posts)
Member # 3773
posted
I would like to get back to earning my way through this stupid not being able to live my life with lyme rut..
I hate not being able to earn a decent living and relying on everyone else..
I can make my own life great if I could only earn a pay check.. I was doing alright .. I wasnt rich, But I know I could have been ,,, this illness sucks!
Right now I would love to be able to bend over without pain.. or even get out of bed without pain.. so without Lyme there is nothing I couldn't do ..
so it would not matter what I would like to do cause I would be able to do it all again! but that is just a dream.. a pipe dream
because right now even if they found a cure the damage is already done and there is no reverseing that part.. but man give me 10 years ago before the real damage.. and I would have everything again!
OH reality just shot me in the head again!
-------------------- "Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it." Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003
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1. Finally goto nursing school. I have been pushing it back for 10 years. Was supposed to start this fall but I will be waiting 'till next fall now. I wanted to surgical but I have changed my mind and now want to do mental health.
2. Go parasailing again. It was the most peaceful and beuatiful thing I have ever done.
3. Show affection to my husband instead of just passing out every night.
4. Start a support group in my area for not only lyme suffers..but others who are living with a disease that no one understands.
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Hiker...I had a goal of seeing all the waterfalls I one point in my life too. I had forgotten about that. I had wanted to take pictures and write a book.
I also wanted to do the same with natural hot pools.
...Many moons ago. I think others have accomplished this now and published.
yourtrouble...i really like the idea of keeping it simple and realistic and taking small steps at this time.
1. I'd like to have a clean, organized home 6 months from now. Since this has not happened since I came down with this 6 years ago this would be a big thing.
2. I'd like to be able to go to the movies only leave because I do not like the movie, not because of my health.
3. I'd like to be able to sit and watch the sunrise and the sunset while drinking something ...non alcoholic of course...never have been a alcoholic drinker or soda pop or anything carbonated.
4. I'd like to be able to walk to the lake that is within 15 minutes via my power chair....not sure how far it is on foot.
5. I'd like to be able to walk to a local restaurant and have breakfast but for now, I would be content to go via the power chair.
6. I'd like to be able to attend church regularly and be able to sit upright and take things in while I am there...for now..I would be OK with reclining while I am there if need be and taking the provigil if it would help me to take things in and be able to attend Bible Studies, etc.
7. I'd like to be able to travel via Amtrak to see my lyme doc successfully.
8. I'd like to be able to rinse the dishes off and put them in the dishwasher and empty the dishwasher out routinely and put them away.
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posted
I want to be able to hold my first grandchild (to be born in July) safely and without pain.
I want my daughter-in-law to be able to know the person that I was before neuro lyme hit me hard.
I want to play with my grandchildren and not be irritated by their loud, happy voices (sound sensitivity-neuro)
I want to live out my plan of being an active, vibrant , young grandmother, since I was married and had children young (all with the plan of not being an old koot when the grandkids arrived)
I want to be "Fit by Fifty" and do all of the active things (hiking, biking, etc.) that my husband and I had planned on doing together and with our children , when they arrived.
I want to give back to my husband a hundred fold throughout the remainder of my years the love, patience and and support that he has given me since contracting Lyme.
I want to be able to read a book again and actually comprehend what I am reading.
I want to mentor high school and college age girls like I did before neuro symptoms became too severe to do so.
I want to be an encouraging person to people on Lymenet who will still be suffering.
I want to be an advocate for those who cannot afford proper lyme treatment. I have been fortunate- I can afford whatever treatment is available - which perfectly illustrates that money can't buy you everything
I want to be able to help care for and encourage both of my ailing parents, which I have not been able to do the past few years.
I want to be able to adopt my 4 year old neice who is in the custody of my parents due to my sister being a meth/crack addict. I want my parents to enjoy the few years that they have left.
I look forward to not being startled so easily at every little thing, which happens now,due to my neuro symptoms that have developed .
I want the HOPE that I cling to, of feeling well again, to be a reality and then be able to pass that hope on to others.
I want my husband to have the peace of mind while at work during the day, that I'm OK and that he doesn't have to worry about me.
I want to enjoy nature again without the paralyzing fear of an additional tick bite.
I want to entertain in my home again.
I want to travel with my husband and enjoy vacations at the beach with my kids and grandkids-to-be.
I want to take a more active role in educating and getting proper treatment for Lyme patients.
I don't want to be so obsessed with "catching up" on what I have missed out on in my life that I put my last "I want to" on the back burner.
I want to meet, in person, many of the people that I have either pm'd with on Lymenet or have contributed so much to this board and that I have come to admire.
Posts: 70 | From essex fells, nj | Registered: Jul 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Bugged by lyme...great list. I do believe it is possible.
Looking forward to hearing about you actually doing these things.
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TheCrimeOfLyme
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Member # 4019
posted
1.) Get my Master's Degree and perhaps my PH.D. I only have one year left for a Masters.
2.) Breed dogs.
3.) Open my own herbal/natural/beauty ( organic) company- something in the works of a Natures Way, but better.
4.) Invest major $$ in real estate.
5.) Walk the March of Dimes. Lyme took away my ability to walk without having Neurally mediated hypotension. I live to walk without it.
6.) Do seminars, etc, whatever on domestic abuse.
7.) Buy my OWN home, finally.
8.) Get a helluva better job.
9.) Buy a new car.
10.) Find someone and get married.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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3. help support others with lyme through their journeys
4. Wake up politicians and the ducs.
Posts: 719 | From Delaware | Registered: Jan 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Ice Skater,
What a happy day that will be when you write into lymenet and let us know you are ice skating again.
Very Cool!
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Don't know if I posted this or just thought about it one hundred and one times.
I'd like to..darn...can't even write it out yet..but it has to do with being around the grandkids and doing things with them.
This is the toughest part of having lyme disease.
Not knowing what I will be able to do with my grandkids.
Not being able to be around them much and when I am around them needing to keep it very short.
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bettyg
Unregistered
posted
adding to skater's list...
skating professionally again and earning a spot on OLYMPIC FIGURE SKATING TEAM...go skater!!!
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Run and walk 6 or 7 miles a day be down to my best weight 210lbs lean and mean again Look out wife hahaha and my sence of humor back
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
i am much better than i was, but still get real tired real fast and go through too many moments of not remembering words like flurescent. not the spelling, the word. so, i guess i am wishing for more energy to stay out late a couple of days a week. late like 10 and go to work the next day.
also, i would like to have some more of my brain back to do creative work and to read and to appear brighter at work.
i am grateful that i have made a lot of progress, however no matter what i may wish for.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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