posted
Dar's Toy Story Part 2 --- Part 1-of-3 & It Get's Better------ NO, Worr'ser..............!
A Look at Life, With Lyme , Threw Dar's Eye's.....................!
"What It's Like Living With Lyme" Or Any Other Chronic Illness Compromizing the Immune System. Lyme has taken away my life as I once knew it back in 1992. And starting on Augest 21, 1999, I now get to stay at home all day and every day and watch every one else get to have a life, and go to work. With Lyme, I can no longer go for those nice walks in the evening's.
I can't carry the vaccum up the stairs without having to stop at the top and catch my breath. It's just a memory when I could mow the yard, or weed eat it. Living with Lyme, there's times I'm right back in bed by 10:45 and having to sleep, or rest, till 4:30, because I just can't keep my eye's open. And I got out of bed at 8:30. There's times I'm awake, but can't focus, or think straight, because of the "Brain-Fog".
With Lyme, I'm forced to sit on the side, while the grandkids play, because I'm to weak to try and keep up with them. Once around the block is more that I can muster up on my bike, because I'm winded, and have to go take a time out for 1/2 hr, just to try and do the next thing. Just washing the car or van is more that I can handle, and I'm aching for the next day and a half, and so stiff just walking is a major chore.
I once could play flat-top guitar for hrs. on end. Now I'm lucky if I can make it for 25-30 mins. before my arm's are so stiff and aching, almost like I was hanging by my hands from the horizontal-bar, suspended above a pit of alagators, before I fall in for their main meal. Like they do on Surivor.
In the recording studio, most of the time on the flat-top track's, I have to do a retake 25-30 times, because my arms get so stiff & tence they just lock up. I just can't keep going. I think I'm going to have to do 10-12 takes, and when I cramp up, pull that slider down, where I left off, and push up the next one, and so on, and so on, till I have that one track done. Playing bass, is ok soooooooo far. When I can't play bass, I'm done recording music.
But I'm eating "Raw-Garlic" 3-5 times a week, and it's helped me more that all our money in the bank did, till we were broke, and no more appointments with the Lyme Dr. Dar eat's about 1 bulb a week of"RAW GARLIC" in pickled beat-juice, to add flavor,
and it's sooooooo Hot, Ya'll's have Fire-&-Smoke-&-Steam coming out of every-orfice from yr body..........!!!!!!!!!! BUT, It will do ya-a-fixer-up-er, on yr insides and boost your immune system. Saw Dr. yesterday, and my cholestral is down again. Bad has gone down over 100 points in 1 1/2 years from it. Good up 30 points.
My tour bus Mech. Ken, in Wis. said just " BUCK-UP " and eat a raw clove every-day. And 2 years later, I'm eating a "Bulb"-of-Garlic-a-Week-Raw,"and feeling better than ever and Recording music once again. With Lyme, we got to spend all of our life's savings trying to get Dar a little bit of health and strength back, and
we sold our Tour Bus, and put that money towards it too, to no avail. And now were "Flat Broke", and with the rest of ya's Lyme-People, begging for one -two-more dollors cuz it's the 28th of the month and thAre's no-more-money-left. Should of bought that Parachute Air-Plane, with the bus money, like I wanted to, and get back into flying. Every thing's gone now, and NOTHING to show for it, That Hurt's............!
With Lyme I have people tell me I look good enough to go get a job, and if they only knew that by the time I would get to work, I'm ready for a nap, because on the good days, just staying awake is a chore. I spent a day with friend's,
Don-&-Teri, from "Rt. 5", a band I worked with back in Waupaca Wis., walking around Bass Pro, in Springfield Mo., and could barely walk for the next 2 1/2 days, and that's with 4 extra strengh pain pill's. ( Tramadal ).
With Lyme, I no longer get to look foward to getting older, and retiring, and enjoying life, and spending time playing with all the grandkid's. Doing those fun things that retired folk's do. I'm already OLD, and can't do the thing's my 87 year old dad can still do.
My dad, is in better health, and has twice the strength I do, and I'm only 56 years old. NO, Wait, I'm only 48, & Lying Threw My Teeth. Life stopped being fun back in 1992, when it all started with that "Tic Bite"...................! And things have gotten a whole lot worse over the years. Got so many broken-toy-part's, it ain't funny.
2007 is as bad as it get's ! Living with Lyme, I feel like I'm a 98 year old man, at the age of 48, (I'm Remembering Here Folk's) and I have the rest of my life to live with nothing to do but watch all the healthy people ( Toy's ! New Cars & Good Parts ) get to have a life, and go to work, and do the very things they take for granted, because with, NO health and strength, just ain't nothing ya CAN-DO ANYMORE.
I'll live the rest of my "Horrible-Life" on Prozac, Tramadal, and a few more med's, to keep from going NUT's-O, because I'm stuck in this young looking body, and can't do much of anything anymore. Every day I wake up still alive,
I have to do what I still can barely do and wait to see if I awake tomorrow morning. Ya'll don't want to take yr self out, but ya can't stand having no quality of life anymore, either.
And Lyme has gotten so bad that I can't get the corn-flake's to my mouth any more because of the shaking of my hands and the stiffness in my arm's. Pouring from a gal. of milk is only by leaning it over the table. To try and pick it up and pour it, would make a mess all over the place. Living with "Lyme", is living with no quality of life at all.
Living with Lyme, is almost not worth living at all,,,,,,,,,,,,,,,,,,,,,,,,,,but ya just keep on living,,,,,,,,,& living,,,,,,,,,,,,& living,,,,,,,,,,,,,,,,,,& ya never die, but you sure think it would be a better choice.
BUT, No,,,,,,,,,,,,,,,,,,, every day is just one more day of TORCHER, to get through, while the healthy ones ( Toy's ) keep having a life, and worse yet STILL-HAVING-FUN.................................... () I DONT LIKE HEALTHY TOY's ! ()
[ 31. May 2007, 06:00 PM: Message edited by: Texas TixanDar Dar ]
Posts: 39 | From Branson Mo. | Registered: May 2007
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
very interesting, a natrupath doc. I met did say garlic is a fantastic antimicrobial. It's great garlic is working so well for you.
Thanks for filling us in.
By the way, it is Lyme not Lyme's Disease. Whenever I hear or see it written as lymes, my guard hairs go up. grrrr
Posts: 2675 | From ct, usa | Registered: Jan 2004
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posted
Well, it may be for you, and that sounds like you only have 1 Lyme infection in you. I have 5 knowen in me,and a bunch of other things going on inside of me. I am thankfull for thoe's that are so lucky to only have 1 broaken part to worry about........! Tex Posts: 39 | From Branson Mo. | Registered: May 2007
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posted
"Look's Like Dar, dose not belong here". I seem to say most every-thing "Wrong", Spell, "Every-Thing" Wrong, and "Think, Every-Thing-Wrong".......!
But, that's OK, and just the way it's been all threw my life, Evan before I got bit by that "" Dam-TICK ""..........! So, just like saying,,,,Illionies,
( & I dont give-a-CaaaRap, if im spellin, it Wrong....! ) If you say the state, or say I've been in 8 differant city's in Illionies''''''''''s, It's still "Pronoced", the same.........OK ?
Kinda, the same thing thAre, if you have more than 1 pathagin's, from a single "Tick-Bite", or so it seem's to "Duff's-Dar....!
Soooooooooooo, "Chastize-My-A*ss, I could care LESS. Im stuck with so many "Broken-Toy-Part's, and No-Life, Stuck@Home-dAR,
looking out my front window. Soooooooo, if I have afend'ed anyone,,Im,Soooooooo, Sorry. Dar, neaver ment to afend, ANYONE. Guess my life is deeper in the "Toilet", than evan I thought.........?
After I enter Dar's Toy Story, 2 Part 2-&-3, I'll just fade-a-Way, Unless im told not to send-it.
Just like I had to do, with my Fan-Club, and the many folks, that came to see our show in 4-5 states.
Maby my life is a lot low'er than I reallized. And,,,,,NO, Gail, I had a Horiffic-Good-4-Caa-Rap...! weekend at the dock....! Thank's to Mary, who lived next to you in the Resort,
I was forced to Kill, "Tom-Kitty", becouse she started feeding him, this spring. Now, she dos'ent want him hanging-a-round, seeing her kitty, on her screen porch.
Soooooo, come Thursday Night, I had to trap, "Tom-KITTY", and take him to Pat Parnell, on Fri. morning, and have him Kill'ed, so Mary dident have her friend give him Poisin.
I heared threw the vine, she had a friend that would give "Tom-Kitty" some Raidior-Fluid, to drink, and he will go away. That is a "Horific" "Death", and I could'ent stand to think how bad He would Suffer, till he was DEAD?
I'll take 10-12 Tick's, anyday, to save him from that kind of Death...............! Soo, being Chastize'ed for not being able to spell right, or not able to say the right things right, is Nothing, Compar'ed to walking in my shoes, with what I had to do to my Best-Friend....?
knowing what I did, on Fri. morning. "Tom-Kitty", was my Best-Out-Side-Friend, being a out-side, Kitty. I thought I hat'ed my life before Thursday Night.................? If ya's only knew how Sheepish's I feel now?
I'll try real hard, to not say "Lyme's", evan thoe Dar has 5 differant Lyme thing's going on. Maby I should say,,,,,,#1 Lyme, #2 Lyme, #3Lyme, #4 Lyme, #5 Lyme,
and just maby I have #6 Lyme, in me,we stoped checking, cuz, were sure Im infect'ed, with......." Lyme". CRAPppppppp...!
So, I'll Pray, for ya'll,with ""LYME"" and "Tom-KITTY", and try and go-a-way Quietly. Sound's like, us Entertainer's, are Held, to a Higher Standerd, than ya's normal-people's Pain...?
Im, OK, with that, but were all in the same "Boat", when thAre's Lyme, in us. I've came to the Bottom of the Pickle-Barrel, with the rest-of-Ya's....!
And I've trad'ed in my Hand-Made-Western Boot's-& -Black-Stestson-Cow-Boy-Hat, for Flip-Floop's,& ABX's Bottle.
Just when I thought I found some folk's, that knew how bad I feel, or would under-stand, in this broaken-Part's, Body, With the rest of my life sweerling-in-da-Toilet, living in Pain, that Normal-People, just dont get........
Ohhhhhhhhhhhhhhh-Well,,,,,,,,,,,Like We Say, Here in the Ozark's............!
...........! Unless, you live with some body, or have a close friend, with "LYME", ya, just dont have-a-clue, how bad life can get,evan living just one day,,,,,,,,,,,, in our Shoe's.
It's time to go sit whAre I sat and gave "Tom-Kitty", his supper, and told him how much I Love'ed Him. He had thoes Eye's, that looked back at Dar,
and Said, I Realy-Trust You, Knowing You Wont Hurt ME, I've Neaver Been Close to People Before.
He was a Wild Kitty, off the Ozark Mtn's, and was about 6,1/2 Yrs Old, till last Friday morning. Guess, I,ve tread water, whAre I have No Buiness, Treading, and letting my stay@home, life, get into others live's and have struck-a-nerve !
Seems like they dont want-to-know, how bad it gets, when the going get's real-bad, or how low, life Realy, get's.....?
dmc probably has more than "just" Lyme ... most on this board are blessed with many coinfections. It's still Lyme though! ok,,,,,
Okkkkkkkkkkkkkk,Dar, stand's corected, but dont hold me to it, or hang my Butt, becouse, im Dar, and not used to doing thing's the way all you normal, "Lyme" people do.
My "Broaken-Part's-Store, Ann, still try's the best she can. Corecting me when she can get-a-word,in, edge-wise, and tells me I dont fit-into, the Real-World Any-More.....
REALY,,,,,,,,,,Me,,,,,,Dar, Yr-Kiddin, When Did That Happen....? I know I do every-thing, Wrong,,,,,,,,,,,,,,,,,,,,,,,,,,,,,But..?
I'll keep "Praying" for Ya'll's, and find some-thing better to do with my life. I've got nothing-2-do, &, All-day-2-do-it.!
"Tom-Kitty", Princess Kitters, Tiffany, Wingnut, Kaitlyn, Brrrrrrrritany, LugNut, Miss Chasey, Miss Beau-Jon, "The Part's Store" &
dAR.............OuT..........! As, if what I say, Makes Any Differant's........! Like, Ya'll, All I feel is ,
Pain, Weakness, Sorrow, "Lost'ness, Cuz we Dont Fit Into the Real-World Toy-Box, Anymore.......!
Junker's, NOT, Wellcome Here. Go Fit-In, With Yr Own-Kind..................!
When Ya'll get so Low, Ya's Know Yr Wellcome to Come Join Me, on the bottom of the "Pickle-Barrel".....!
Every-Thing, is up from heAr..........! "Poor-Tom-Kitty" , at Least, He's in a Better-&-Safer- Place, than We-Are.........!
I Hate Dar, for what I did. I will try so hard, to make sence of all this,,,,,,,,,,Tommrow...?
I could stand the pain for of all of us, if I could of taken in "Tom-Kitty".....! Dar would trade places with "Tom-Kitty", cuz what do I have to live for...................? Not Much.?
God, let us take on pain, a bit at a time. So, we dont know how bad, it hurt's. At this point,& im hurting for us all !
Could You "Please", God,let us with "Chronic Illness'es,and a lot of broaken parts, Please-Have-a-Break........? We Need-a-Lot-Of Help-Here !
I HATE What ..........................dAR.......Did..!
[ 31. May 2007, 06:04 PM: Message edited by: Texas TixanDar Dar ]
Posts: 39 | From Branson Mo. | Registered: May 2007
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Well, we all cringe here when folks say Lymes....sorry if WE offended YOU.
Seems everyone in the Ozarks says Lymes. We just try to educate.
I'm REALLY pained to hear about Mary and Tom-Kitty. That must have been VERY hard for you. I KNOW how much you and Ann LOVE cats and animals in general.
I'm thankful that you saved him from being poisoned! Thank you for being brave enough to do that. I know you already have "too many" cats to handle. [is it possible to have too many??]
Hang in there, Dar.... We'll try to lighten up over here!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
Dar,
That sounds real messed up to me about your kitty. Sorry.
I'm in show business myself and always have been. Now that performing isn't as easy as it once was I am in production. Work p/t but the money goes towards my social security and medicare and I still involved in the world I love.
Lyme changes us but we can grow with, or wallow in what we can't do anymore. It is a choice. It takes awhile but you can remodel yourself and have a life again.
You should be happy you can still play the slide guitar as some folks (me included) couldn't even walk for awhile. We have been there!
I am kind of at a loss for your lyme 1 and lyme 2 and so on. You had multiple tick bites or have multiple symptoms? Don't quite get what you are writing about sorry. There are other illnesses ticks carry but they are not lyme they have there own names. I have lyme disease and had a side order of relapsing fever. Thought I was dying of malaria and I was pregnant at the time.
So please don't think you don't fit in here because you probably do, but we do expect people to know what illness they have and to pronounce it and spell it right especially if they want to educate us or tell their story the way you do.
Lymes is just so wrong and people shutout and do not listen or read further once they see that. We also do not want other people hearing that and thinking that is correct. We want to be taken seriously and if you can't even get the name right.......well? You know what I'm driving at.
Dar said; Soooooooooooo, "Chastize-My-A*ss, I could care LESS. Im stuck with so many "Broken-Toy-Part's, and No-Life, Stuck@Home-dAR,
As for the Toys, I am sure they have their own problems. Just being healthy doesn't mean life is good. This a common misconception among folks in general not just lymies. Everyone had troubles and no one gets a free pass everyone must pass go and we don't always get the $200.00 either.
Please hang around here and befriend some other lymies. You maybe surprised how far you can go, and how supportive folks can be.
I would like to know more about your music. Playing the slide I will assume it is country. But what type Blue Grass or Texas Swing?
I've seen many musicians in the studio and taking multiple takes is not unusual. Things go wrong. You must keep practicing even if you feel you can't otherwise you will lose the ability you love. So don't give in! You must be tough!
I couldn't walk and refused a handicapped sticker. I didn't want it - no way - no how. I am glad I didn't take it now because I am walking and hiking and doing the things I always did. Maybe not to the same extent but I didn't give in. I walked into the doctors office in pain, and it took me forever to do it but it kept me moving. I had lyme arthritis hit me in the pelvis which was excruciating but the lyme did not win!
I can be a tough old bird sometimes and that is one of my strong points. Stubbornness usually isn't a good characteristic but it was this time around. I had folks trying to make things easier for me but if I would have given in I'm sure I would have wound up in a wheel chair. I fought all the way back to where I am today.
Am I what I once was. To be honest, no. But I'm alive and my baby made it. He is ten now and my struggle was the struggle for him to be born.
There wasn't any support group for me back then. I didn't have lymenet all I had was self resolve and doctors who really felt bad for me. They had never seen anything like me before and did there best for me and my unborn son.
The ID I had took my fate personally and he fought for me. Which is why sometimes I'm offended by the blanket comments made about all the doctors in this specialty. He had compassion, empathy, and the determination to help me see the healthy arrival of my son.
My son and I both have lyme and we are a thorn in the IDSA's side. A ghost that haunts them and that they wish they could exorcise, but they can't. That is why I hang here because congenital lyme does exist.
I also know that just maybe someone has been helped by my experience, because I have been helped by others. I hear and read other peoples stories and most times I can relate and sometimes I can't, but I always walk away with a new understanding.
So please stay around. You do not say everything wrong, or do everything wrong. You are just another lymie trying to fit in a world that is different from the one your used to. It isn't an easy transition but you will make it just like I have and the many other good folks on here.
I hope you stay around and tell us more about yourself. Your story is of interest to us. As an entertainer myself I am especially interested. All I kindly ask is that you call it Lyme.
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