Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear MsZoo,
Knowing how these studies are set up.....I wouldn't be suprised
If following a Spect scan, you were then diagnosed with a mental illness....
Not chronic neuro Lyme.
Just another opportunity for those who don't believe in chronic Lyme
To "dismiss" it via Spect Scans and call it a psychiatric disorder.
I wouldn't put myself out there for further bashing.....
I've been told so many times that I had Post Traumatic Stress Disorder or Panic/Anxiety attacks.
No way would I volunteer to let someone publish something that would "support" this camp of duck thinking.
However, I applaud you for considering doing something that may be helpful for others
With chronic Lyme disease.
Also, this is just my jaded, humble opinion.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Geneal, I absolutely appreciate where you are coming from and with other studies I *could* see that happening!!!
Yet- I trust that Doc F who runs the Columbia center would never let that happen!!!
He is a good doc!!! We need that center and people to volunteer.
If I was East Coast, I would!!!!!!!!!!!!!!
I tried to get in the other study he did actually even though I am West Coast!!@! but that was when my blood was hemolysing and they couldn't get it to separate to test it!!
Best wishes all, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
posted
Geneal, I'm hoping Sarah is right, tho I understand your view. This study was mentioned on the local news and the reporter made it clear that doctors are divided on their views about lyme. Some thought short-term abx were sufficient treatment (quack quack)and others recognized that chronic lyme does exist (LLMD). The patient that was on the newscast had been on longterm abx a number of times. She was depicted as a resonable, sane person suffering from a horrible disease. Very interesting IMHO.
The study sounded like Columbia acknowledges chronic lyme and is trying to prove a difference between lyme and other diseases that affect the brain.
Posts: 204 | Registered: Sep 2002
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
You know I read the study without realizing it was Dr. F.
That definitely puts things in a slightly different prespective.
My apologies for not noticing this up front.
My brain functions on half on/half off at times.
It must of been half off when I wrote this.
I still applaud your effort and willingness to participate.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic