posted
I started abx on June 6 and added plaquenil on July 20th.
I have had some good days but mpst of the time feel wretched and it scares me (feel worse now than before I started abx).
Just need reassurance that this is normal.
Read somewhere the first 3 months are the worst because of constant die off and no real herx pattern.
Posts: 24 | From Massachusetts | Registered: Apr 2007
| IP: Logged |
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
bettyg
Unregistered
posted
yes, it's to get much WORSE before we get better, and you are herxing!
my right arm started from day 1 until 20 months later ... felt like i was a punching bag for everyone; it hurt like crazy! kept frozen ice bags on it and used MOISTENED heating pad as well.
hang in there, but if things really start happening you QUESTION IF THEY SHOULD BE DOING THIS, CALL YOUR LLMD PROMPTLY or get to local ER if necessary!
IP: Logged |
Just wanted to say that if it's any consolation, I'm in about the same place as you.
I started abx on June 15 and I have yet to see any real progress. In fact, I seem to have acquired even more bizarre symptoms after treatment.
It's strange: I have a few rare days where I feel better than ever, almost normal, and then wham-- the next day I'm flat on my back and it hurts just to roll over.
Like you, I can't identify any pattern to my herxes, though I did feel something immediately after my first dose of Rifampin.
Hang in there!
Trying to be patient,
Ellie
Posts: 390 | From Oakland, CA | Registered: May 2007
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
herxes are a pain.. sometimes literally
for me over time on an abx they decrease over time....
but when I add a new abx they kinda start all over agiain...
posted
I had a very similar experience. The first time it happened I was still under the ...'care'... of webbed-footed waterbirds. They told me "You feel worse?" - - "hmmm-there must be something else going on..." Yeah, right... So at least you know what's going on, for whatever consolation that is.
I tried various "analgesic"s without much luck. Ultimately, I discovered that saunas helped immensely with the physical pain and discomfort. They may have given me slight neuro "herx"'s, though. In all, I felt they were helpful as a treatment, as well as a pain relief measure.
I hope you feel better soon! I can't thank you folks at Lymenet enough!
DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I think this is one thing about treating Lyme that for some reason
Is hard to assimilate.
All of your life when you get sick and get on antibiotics
You usually start to feel better in 48hours. Not worse.
Here comes Lyme disease. You go on antibiotics, expecting some type of relief from
Symptoms, except you feel worse. And stay that way for some time too.
It started for me fairly slow. Thirty bad days followed by one good day.
Twenty days followed by another good day.
The good days start getting closer together.
Then you get two good days in a row.
I am sure you get the picture.
My neighbor and I (both have Lyme) talk about this a great deal.
How you can feel pretty good for a couple of days and then wake up BAM!!!!!
Feel like dirt again.
I still tell myself that if I am feeling worse and my liver enzymes are normal,
That I am killing something. Small consolation when you are ill, but
One I hang on to with both hands.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
posted
It's hard when you feel worse but it seems a rite of passage with Lyme. My son found the first 10 weeks tough but then got dramatically better before relapsing due to co-infections.
You will get better but it's hard when you initially feel worse.
Prayers, persistence and perseverance are called for. Plus faith in your doctor.
Best wishes til you have more good days than bad ones
Chiz
Posts: 67 | From UK | Registered: Oct 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[Wink]](wink.gif)
![[Roll Eyes]](rolleyes.gif)
Printer-friendly view of this topic