posted
I am going to go see a ID doc today. My doc wants me to try out one more doc seeing that this doc is her friend.
The last ID said I was just suffering from depression and it was all in my head. She also said since I only tested positive with band #41 it cant be possible.
I have talked to people that also only tested positive for band #41. I also know that could mean I have syphilis or gingivitis. But I know I dont have syphilis because my I just had a baby and my ob would have told me. Also I dont have gingivitis because I just went to the dentist and everything is fine.
The last thing that could be possible my doc said is Lyme. So this time I want to be prepared and have some info to back up Lyme.
I dont want them to tell me it is all in my head because or it is from having a baby because I have been sick before I had my baby.
What should I say if the ID says it is all in my head. I am going to fight back this time!!!
-------------------- Naysmommy (Elaina) Posts: 12 | From Souther CA | Registered: Jul 2007
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
quote:What should I say if the ID says it is all in my head. I am going to fight back this time!!!
BUH-BYE!
Don't waste your time, dollars and increase your stress levels.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I think you should take a chronology of what has happened to you, your symptoms and any procedures you have had done. I would also take copies of any tests that were done. Make a copy for the doctor and one for yourself and look at yours while he/she looks at the copy you give them. Then you can call their attention to anything they aren't considering.
You can go to my website (below) and make a copy of the FDA paper on the fallibility of testing and take that along as well.
posted
I am trying to save up the money to see a LLMD and my insurance covers ID docs. My doc said if that ID dont do anything for me so was going to treat me herself because she believes me. She said something about IV treatment.
I have to take what care I can afford right now. Unless you guys know of an organization that helps with medical costs?
-------------------- Naysmommy (Elaina) Posts: 12 | From Souther CA | Registered: Jul 2007
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Itsy_bitsyone
Unregistered
posted
I'd bring a bottle of Xanax, personally.
I have never been to an ID...I doubt I would bother...but I have Ologistaphobia (fear of heading to any doc whom has a title ending in -ologist).
Well, its not really fear, I guess. Its disgust, bitterness, and ire. Maybe fear of being parted with several hundred all-mighty dollars to have someone ask me which I would like, Lexapro or Cymbalta.
I got dx'ed by a small town doc by accident (I wasn't looking for Lyme. I always thought that if I had it all this time, I would be dead, and never really entertained I could have an infection this long without buying the proverbial farm)and currently on doxy for going on three months. I'll be seeing an LLMD soon, but we'll see what happens when I get there. I have very low faith in doctors and never get my hopes up about stuff like this anymore.
Bottom line, ID's have to stick togther, even if she believes you she's probably not going to treat you and you will be, alas, dismissed. If you come back and say otherwise, I will be very happy to eat my hat. Actually, I will be estatic for you and humbly say I was wrong. (THAT rarely happens, but in this case I will make an exception)
Expense is a huge issue. There are entire threads about the fairness/unfairness of the expenses. We'll see how much my new one charges me, and whether her office will submit to my insurance, and whether or not she is worth it. I have a decent plan once deductibles are met...not everyone has that. I have been dirt poor and out of work while sick and I know that sometimes its impossible to pay for what you need.
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
I would just go to the doctor and hear them out. I wouldn't bring anything but myself, any tests that may have been done, and an open mind.
My DOCTOR is an ID and is quite satisfactory.
I live within the vicinity of quite a few LLMD's, and never have gone. They do not have anything different to prescribe from any other doctor.
If you are lucky to find an ID who will treat you go for it. Much better to have it covered by insurance, and less trouble on the home front with the family too.
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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posted
"What should I say if the ID says it is all in my head. I am going to fight back this time!!!"
Tell her that you've done plenty of research and know that it indeed COULD BE Lyme. If she says you can't believe everything you read on the internet, Say " You mean I can't believe what I read on PubMed [the government's research site!] or Medline??"
I saw a dr once that I had to argue with and when he would tell me some nonsense, I would say THAT IS your OPINION!!
I ticked (!) him off by saying that several times!
MAYBE you'll get lucky and this ID will treat....but don't hold your breath waiting for it!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I don't recall who said it on this site, but the quote went something like this:
"You've read it and I've lived it" as they walked out of the office.
i have had one ID that told me I would find that many docs will not believe in lyme disease when I was first dx.
He was right.
I went to the ID that the insurance provided at the time and was refused treatment.
He was the one who trained interns from UC San Francisco Medical Center.
It became a paper war. I would show him documentation and he would tell me he could come up with opposite documentation.
This happened with several docs that insurance provided.
I have learned if there mind is set before you get there, there is nothing you can do to change it.
Afterall, insurance is paying their bill. You are not.
Your health second. Business first.
It is such a joy to find a doctor who is willing to learn or/and is lyme literate.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Convincing an IDSA doctor of the truth about Lyme disease is like trying to convince an atheist of the existence of God.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Well It is worth a try if your doc is going to treat you anyway. I just have had BAD experiences for the most part.
I got into an argument with a Rheumy I was referred to. I told him that I understand there are 2 camps regarding the treatment of Lyme yada yada.
He was furious! He was yelling at me there are NO two camps!!! I made the mistake of mentioning the LLMD I was going to see (never do that, I never will again) And he was even more mad.
He started yelling at me telling me this doc should be stripped of his License and he is crazy.
He said I really wouldn't see him If I were you. He said that many times. I never went back to him. Idiot A-hole!
I understand the financial hardships, I am sorry.
I am lucky that my LLMD takes my insurance.
Good Luck, Let us know how it went. Melissa
Posts: 3905 | From USA | Registered: May 2007
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posted
I don't see the point in going to/trying to "convince" the ID doc...if your PMD is going to treat you anyway, why see the ID doc...In my experience, you can't get an ID doc or any other IDSA type doc to "see the light," so why waste your time and money...
just my 2 cents
Posts: 217 | From New Jersey | Registered: Apr 2007
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quote:Originally posted by hshbmom: Convincing an IDSA doctor of the truth about Lyme disease is like trying to convince an atheist of the existence of God.
I think that is the quote of the year!!!
Kam...I liked your quote too!!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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