posted
I had the bullseye rash in 1999 with major flu like symptoms. So bad my dad basically carried me into the clinic. They treated me for a spider bite - a shot and 10 days of penicillin. I saw and heard of the bulls eye rash for the first time 3 days ago watching Mystery Diagnosis. I still cannot believe that is how I learned of this.
Since then I have had so many unexplained health issues. I fear the damage done. Heart palpatations, Hive outbreak from Zpack treatment, Fatigue OMG the fatigue, Bells Palsy - leaving me with facial weakness, spasms, pain, weird sensations, mental fogs, short term memory issues, chest pains, rib pain, arthritis, throat issues, peripheral neuropathy, TMJ, vertigo, GI issues....i could go on, but I am depressing myself...oh yeah, depression, anxiety, panic attacks, neck pain, shoulder pain....and now my local doctors want to do an ELISA ONLY! I just found a LLMD in NC an hope to goodness he will see me quick. So much damage is already done.
I want to start on an antibiotic today. Every minute I realize this is still doing damage and I feel so &#%@ desperate right now. But know it could be weeks or more before I can even see someone for help. And I can only imagine my insurance issues ahead.
Frustrated in Tennessee......
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
| IP: Logged |
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Christy, Pm sent. So what is your present age?? Reason I ask is are you now considered adult treatment or pediatric?? thanks from --just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Hey CJ!*)!*)!
WELCOME*)!*)!! !*)*!)*!)*!)!*)!*)!*!)*!)!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
Don't waste your time with ducks. They'll probably tell you "it's all in your head".
Go straight to see a LLMD. You need to have the Western Blot test done (NOT the ELISA which is unreliable) through IGENEX.
God bless you. I hope this is the beginning on your road to recovery. Take care and don't give up. It WILL get better, but it takes time.
Posts: 8984 | From Illinois | Registered: May 2006
| IP: Logged |
posted
Thank you all so much. My Internist wants to do the ELISA. I already requested the Western Blot through IGENX and he balked. Wants to send me to an infectios disease dr locally. Fine and dandy but doubt I will get much more there. I have a few leads on LLMD's and plan to start there Monday am. I sure hope that this does put me on a road to recovery. I am scared about the damage already done....the spasms, facial, throat issues, etc but most of all the palpitations. They get so darn bad. It is sooo scary. I am grateful to have found this place though. And I am so sick and tired of hearing it is all in my head too. I have left the drs so many times balling with another script for antidepressants and suggestion for counseling. I have questioned my sanity one too many times....NO MORE!!!! Thank you Thank you Thank you ALL!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
| IP: Logged |
Just to say welcome. Sounds like you have found the answer to your own mystery illness.
Good for you for finding this board. You will find lots of helpful advice here. Most importantly it is worth finding a good LLMD. I know how you feel, wanting to start abx straight away but with this illness it is the tortoise that wins the race....
Here's to your better health (but it will get worse before you get better - that's the way with lyme treatment)
Chiz
Posts: 67 | From UK | Registered: Oct 2006
| IP: Logged |
posted
Oh wow I love that show. So far I've only been diagnosed officially with Fibromyalgia and CFS, and I watch that thing all the time just in case...
Haven't seen the chronic Lyme one, I do hope they rerun it.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
| IP: Logged |
posted
I seen that episode, it was very informative, while watching it my 15 yr old daugter was telling me that I had a lot of the same symptoms that the girl had, and I was like DUH, I just can't get the drs in Florida to accept the fact that I had the bulls eye rash and the major flu symptoms because its not common in Northern Florida, and I keep telling them its bull.
-------------------- OK...I'll play your silly games.
Finding my happy place.
Brenda-Lee Posts: 126 | From Florida | Registered: Aug 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic