posted
Why is it that people don't get it! I'm tired, sick, sore, miserable. I got a comment from someone today, "I think your just being lazy, you need to get up and start exercising again." Sounds great, if you could just get me out of my bed, I'll just run to the gym! I get so tired of people. I hope I start feeling better soon, I went for some bloodwork today, cause of course lyme couln'd possibly make me feel this bad. So my doctor thinks. Just needed to vent, thanks!
Posts: 25 | From PA | Registered: Aug 2007
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posted
hang in there cmty....i know where you are and how you feel...Just because someone doesnt believe it doesnt it make it all less TRUE!
You know your body....that is all that matters here.
Just think...one day they might get sick, really sick and they will think of this day with you. Time has a way, my friend. So be patient and let it play out. Life can be quite entertaining over the long run!!!!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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posted
cmty....I do hope you have an LLMD or are looking for one as we speak??
Vent any time!!
Non-Lymies will never "get it"...until they GET IT.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by Lymetoo: Non-Lymies will never "get it"...until they GET IT.
I am afraid that is so true! It has been difficult enough for ME to understand lyme and TBD's, it seems almost impossible for those who do not have direct experience to understand what we are going through.
Posts: 2557 | From home | Registered: Aug 2006
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Cobweb
Unregistered
posted
quote:Originally posted by cmty: I went for some bloodwork today, cause of course lyme couln'd possibly make me feel this bad. So my doctor thinks. Just needed to vent, thanks!
You must not be going to an LLMD- a doctor truly familiar with Lyme has seen it all and would fully understand.
BTW- Once you do loose your mind-go to Off Topic and have some fun.
posted
Try to find some support system / people / person.
While I was going through the worst my boyfriend could have been more understanding / patient. Especially when my symptoms changed day to day. But try telling a guy you have no sex drive and you're always tired and constipated and can't be in sunlight, and it's enough to mess up any relationship!
He was there, though, and learned about the disease. And my mom (I'm 23) would come stay with me in my apartment, or bring me back home, and get books about Lyme, etc.
You'll see who your true friends are. If people really care, they'll try to learn about Lyme to support you. And being as social as you can (even if it's just having a friend over to watch a movie) helps you to feel a little normal.
Hang in there; it IS frustrating that it seems that someone can't truly understand the disease without having it. Don't be afraid to express it.
Posts: 17 | From MD | Registered: Aug 2007
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bettyg
Unregistered
posted
been there, done that like everyone else on this board.
i have 3 non-supportive brothers
i sent you a newbie package of info; look for these things in it; good reading to forward to others!
lymedad's letter to family/friends;
DAR'S TOY STORY;
spoon theory are all together in one area in middle.
if you copied it into your word processor; i use EDIT/FIND and then type in what i'm looking for, a real timesaver finding things in my 62 pages!
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posted
Thanks everyone, I'm having a better day today, I really don't have anyone around me who tries to understand what I'm going through. Sometimes I feel like I live in a different universe than my husband, family is kind of busy with their own problems now, I hate to even bother anyone with my problems. It really helps to be able to hear that others have been there. Thanks again
Posts: 25 | From PA | Registered: Aug 2007
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posted
I understand completely. My family doesnt understand either. I need to print out some stuff for my hubby to read and email my daughter and others some info. My hubby was patient in the beginning and then he slowly got sick of me not doing things. I was only diagnosed about 2 weeks ago and am a week into my abx. Today I felt so tired that I didnt do a thing all day but read about lyme disease on the puter and fix meals. I think I MIGHT be starting to herx just a bit cuz tonight my ankles and feet hurt sooo bad and now the stabbing in my fingers and wrists is starting.Who knows what tomorrow will bring. I wish I could feel like i'm getting my **** together, cuz I homeschool, and it starts Wed. I'm also awaiting results of thyroid scans.
-------------------- LITTLE LYMIE Posts: 29 | From Tamaqua, Pa, USA | Registered: Aug 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I am sorry you are having such a rough time.
I also have a basically non-supportive/non-believing family.
My Mom is my one and only real support in the family.
However, there was a time, prior to diagnosis',
That she told me if I just had a positive attitude , I would feel better.
Thank God for lymenet and all of it's wonderful, compassionate, knowledgeable members.
This is part of my "family".
I often feel as if I am loosing my mind.
When I do, I come here, and someone always "finds" it for me.
Hang in there. Sending you positive thoughts and prayers.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Hi Cmty, I too understand what you're going through right now. It's so very difficult to explain the answer when someone really doesn't want to know. I'm blessed enough to have a very supportive spouse, but there are still lots of times I have to just go deal with it myself. I am only just now being taken seriously by the rest of my family. Hang in there!! Life will get better!! It has to when you are this ill.
-------------------- May we all find peace one day and may peace prevail on earth ~ Traveler Posts: 66 | From traveling the U.S. | Registered: Aug 2007
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I was infected 5 years ago and misdiagnosed with CFS for 3.5 years. I was diagnosed with Lyme last year and my family thinks I should now be cured, but I still feel absolutely awful.
My cousin is the worst, she is completely against antibiotics and she literally asks me once a week when I will be stopping them - I say "when I am better and the infection is killed" and she would say "hmmmmmmmmmmmmmmm, ok, well are you sure it's not because you don't get out enough? or because you read about it all day?"
She has now started to tell ALL of my family this... that she thinks the Lyme has gone and I am just lazy - and now my dad is saying exactly the same thing, my brother just doesn't care and even my mum, who has been absolutely AMAZING for the last 4 years, is now starting to distance herself from me - so I feel like I am completely on my own, I lost all my friends when I became ill and now I am gradually losing my family support and my LLMD lives 300 miles away - I have NO ONE!
The problem is, I look no where near as ill as I feel, so no one takes me seriously.
Posts: 263 | From UK | Registered: Mar 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I recall being at a friends house while either coming or going to see my lyme doc.
It was so good to get on line with saturday night lyme chat.
I really needed to know i was not going crazy and others understood and where going through what I was going through.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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