In addition to IV rocephin (14 weeks) and IV zithromax (12 weeks) and now IV cleocin instead of the zith (2 weeks), I pulse oral flagyl every 3 weeks. I have been plagued with all over muscle spasms that are pretty consistent since my diagnosis, but after having been on these drugs long enough, I've been able to see the pattern that while on Flagyl (5 days), my spasms disappear, and as soon as I finish my pulse cycle, they are back with a vengence...any ideas?
ABOUT ME: This is the second time that I have posted on LymeNet. The first time was to find a Lyme literate doctor in Atlanta. Since then, I have come on this site more times than I can count to find advice, seek comfort in familiarity, and to be informed and encouraged. All this while simply reading posts. The first thing that I wanted to say was thank you to all those who find the energy and strength to continually fight this disease and encourage others in their journey.
I am a 27 year old female born and raised in Rhode Island, now living in Georgia. I was diagnosed with Lyme disease in March of this year. Unlike others, I think that I contracted it only 8 months prior (as oppossed to years and years). My story is so similar to so many that the details of the past (unsupported by my employer, had to resign, "there's no lyme disease in Georgia", diagnosed with sinusitis, chronic fatigue, fibromyalgia, depression, anxiety, acid reflux, allergies, etc.) seem less important than the present. I am still fighting and still have hope. Moreover, I hope I will find the energy to continue to post more often as I want to offer to others what so many have given me, voices that need to be heard.
So thanks much.
Posts: 10 | From Georgia | Registered: Apr 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
Have you told your doctor about the spasms and Flagyl? It sounds like maybe it would be better to be on it longer instead of just every 3 weeks! I was on Flagyl for 3 months no pulsing so I know you can do it!*)*)!!
I hope you get gains quickly*)!*)*!)!!! The important thing is having a good LLMD.
Nice to meet you*)!*)!*! Sincerely,
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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bettyg
Unregistered
posted
welcome hillwood! glad you have found the board very helpful to you before and now!
what grade or subject did you teach? we have a lot of former teachers here on the board!
have you or are you thinking applying for SSDI, social security disability insurance benefits? if yes, there are 25 pages at the end of the newbie's package i sent you earlier to assist you on that.
posted
Welcome! I agree with what Calif lyme said about the flagyl. Speak to your dr. I never pulsed it either.
I'm so glad you found us! I do hope you continue to improve and can spend more time here!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hi Hillwood,
Good advice above. What is your nutritional support? Magnesium supplements and hot epsom salt baths with baking soda have helped my muscle tightness and pain, but I do not have all over muscle spasms, that is more severe.
Posts: 2557 | From home | Registered: Aug 2006
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
I've had all-over muscle spasms and what helped me was levaquin. It seems mine was as a result of bart.
Magnesium is very helpful, and when my muscle spasms get very bad I take valium.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Welcome Hillwood20, Sorry, I don't have anything helpful to say about flagyl except that your LLMD would likely have some idea about what is happening so it would be good to bring it up at your next appointment.
Your question would be a good one for the medical forum.
I'm sorry your employer was not informed or understanding but very happy to hear that you are on the road to recovery.
Looking forward to seeing you around lymenet.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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