bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
I'm getting a bit tired of this, actually. You know what I mean?
I'm doing a modified Buhner with venex that is working really quite well, if you call being hit by a bus quite well, which I do, in a masochisitic sort of way.
The combination I'm on right now has had me down with pain and exhaustion for a good month, and holding steady.
I know it's a herx because when I take a break for a day or so I feel so good I turn into the green tornado around here.
I'm getting a bit too friendly with my own herx-driven despondence. It's getting too easy to just forget to dose.
When I treated Bart, I was hit relly hard for about two weeks, then gradually started to resurface.
How long can a cyst buster and keet zapper keep you down, do you think?
Somebody please lie if you have to and give me an arbitrary time frame, so I can hold on to it like a light at the end of the tunnel.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
"Somebody please lie if you have to and give me an arbitrary time frame, so I can hold on to it like a light at the end of the tunnel."
I hear ya I have been herxing since I started babs treatment and I just want reassurance that its going to end at some time in the forseeable future.
You asked about cyst busters.... for me the first time on flagyl I herxed for three months ... but it did help considerably.
Hopefully it wont be as long for you I had been sick awhile before I got any treatment at all.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
quote:Originally posted by bejoy: I know it's a herx because when I take a break for a day or so I feel so good I turn into the green tornado around here.
Have you thought that maybe it's not a herx, but an inability to tolerate part of the protocol?
One day off doesn't reduce a herx that much for me, because the herx reaction is usually delayed by a few days. In fact, when I went on cipro for a UTI, I herxed for a week after stopping the abx.
It took me months to convince a doctor that I couldn't tolerate an herb that is part of the Cowden protocol. Burbur is supposed to help you detox, but it was causing nausea and diarhea in me. I felt so much better when I didn't take it, while everyone else feels better when they do take it.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
It's possible that I'm just reacting to part of my protocol, but I don't think so.
I have a lot of confindence in muscle testing, and what I'm taking now comes up positive.
Others, such as cat's claw, I haven't been able to use.
I do tend to react quickly to going on and off many kinds of therapy. I've done lots of liver cleanse, so I think I move the toxins through rapidly.
I'll go with the three month offer. Let's see, that would put me into the first of November. Do I hear any better offers?
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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quote:Originally posted by bejoy: Somebody please lie if you have to and give me an arbitrary time frame, so I can hold on to it like a light at the end of the tunnel.
Well, I was going to tell you the truth, but now I see that's out!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
You're just around the corner from a break in sx for a few hours, maybe 1/2 day or full day relief. Continue to be patient. Even with doing muscle testing and treatment.....there are many peaks and valleys.
When it happens, don't go out and try to take on the world while you fell like it. It will make you crash. But I did it anyway. I can remember celebrating when I felt like running the vacuum cleaner.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi bejoy
sorry to hear you are herxing so much
For me the herxing would be intense for aprox a week or 2 ....then let up somewhat & cycle around.
It was like this till I ended up pulsing in my cyst busters flagel & then tinnie. In the beginning though I was on it full time it was the roughest time. But in retrospect it did alot of good and am doing better because of it.
Everyone's so different it's hard to say how long you will slammed...if the herxing is too much you can ask your doc for a few days off or back down a bit?
I did herx hard when I took the cyst busters, also had deep depressions with it. Which is highly unusual for me, so I know it was from herxing.
What are you doing for detox? Can you up your water intake? Have you tried the lemon drink or detox teas?
Don't know if my rambelings helped you at all but I will keep you in my thought & prayers
Hugs & healing Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
So tell me more about cyst busters. Why do people pulse them rather than taking them consistently.
I think it is the cyst busting properties of the venex and the proteolytic enzymes that are hitting me so hard.
It's easier to deal with when I pulse, but logically it makes sense to stay consistent and get this over with.
This stuff makes me so depressed that I have to laugh at myself crying, because it's not about anything other than chemistry.
It also makes me angry. I can't tolerate any drama whatsoever, and sent out a few less than PC emails today to friends/colleagues who just wanted what I thought was too much energy and attention. Now I feel bad.
Yes, I've upped the lemon water, and started doing sweats again, even though its still 95 degrees out.
I just have not started swallowing bile absorbers because I just can't stand to down any more sludge.
Lymetoo, do you mean the truth is out, or telling the truth is out? Please lie.
I think I'll just plan on being really, really angry and mopey for about three months.
Clean underwear for the family just oficially became a luxury item. Dinner, other than frozen entrees is optional, and I like dog hair on virtually everything.
I'm going skiing in December. If you think otherwise, you can lie about that too. Thanks.
I sure do appreciate you guys being there.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi bejoy
I personally had to end up pulsing everything, including the cyst busters because of stomach problems. I know others pulse for different reasons.
I have been threw alot of hard times in my life but the last 3 years of tx where, hands down the hardest thing I have ever done.
To answer your initial question: "how long can a herx last"...Wayyyyyyyy to long.
Just to put things in perspective ~ And not to poo poo chemo & cancer treatments but I think herxing is just as hard if not harder. I have talked to other friends who have had lyme & also chemo & they said chemo was a walk in the park compared to herxing.
If you take our existing lyme symptoms, then multiply them, you have off the scale sufffering. Pain emotional and physical. Don't think the average person can even begin to understand. My hubby watched me herx to heck & back but doesn't really know what it was really like.
I do have so much empathy for you & hope you can make it threw to see the light at the end of your tunnel soon. It sure must feel dim now but it's waiting for you there & someday soon you will be able to see it too.
Hang in there Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
My husband woke up with a sore throat this morning. So he says, "I know how you feel today. We're both in the same boat." Not. Then he went for a five mile bike ride and did some landscaping.
My worst now is still better than my best of a year ago. That's worth remembering.
Alright, I've got to take this in chunks. I can do this until December. Then we'll see what's next.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Cobweb
Unregistered
posted
I feel so fortunate because being on disability I can go at my own speed, or give into inertia if need be.
Other than the fact lyme has taken me out of participating in life, it's more manageable without schedules and pressures.
Actually my addiction to Lymenet is making my life a bit unmanageable. Like I woke up this morning and said "I'm not going to get on the computer until I :
I got up at 7am-it is now 11pm and I have not gotten one thing done on the above list.
I decided I would just take a quick peek first before getting to work. I'm all for pleasure before business.
But actually now I am going to discipline myself and tackle above tasks- which will probably take me a half hour-or less. Besides I am overwhelmed with guilt now.
I did have some free time between sitting at the computer or sitting on the couch this afternoon but decided to take a nap to rest up before moving dirty dishes from sink to dishwasher.
I am motivated to accomplish that task because I don't have room to stick the coffee pot under the faucet for my morning cup. Of course there's always the bathtub faucet.
I have also run out of anything disposable, like paper plates or plastic utensils. So it's do or die from starvation. However, I have a one touch can opener-it does all the work for me-and I could just eat right out of the can with my fingers.
Now I am going to exert the utmost effort, no matter the pain of withdrawal, and accomplish some things on my list, which I can't read now because it is above the scroll bar window, so I can't even remember what was on it.
Well at least I'll stand up and see what comes to mind.
-------------------- LITTLE LYMIE Posts: 29 | From Tamaqua, Pa, USA | Registered: Aug 2007
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Cobweb
Unregistered
posted
O kay- the sink is now clear-but that doesn't mean the dishes are done, it just means the dishwasher was loaded and is running.
Now if I want a cup of coffee in the morning all I have to do is clear off the stove top.
but how long did that take me. 11:23 till whatever time this posts, minus a couple minutes for standing up, standing in front of the sink for a couple more minutes trying to figure out how I was going to organize this maneuver.
Got it- anything I pick up with my left hand goes to the stove top, anything in my right hand goes in the dishwasher. but it wasn't all left up to chance- I made sure there was at least one of everything in the dishwasher-i.e.-one spoon, one fork, one knife, one plate, one coffee mug, one glass.
Any stinky, crusty Gladware I discovered I gladly threw out. Which does add another task to my list-take out the garbage.
Isn't that the way it always is-one thing leads to another.
You're right Bejoy- ther is no end in sight!
Speaking of Stinky-he's next on my list. but first I think I will go check at least one more thread before I get back to work.
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Lets hear it for stinky!
I gave up. Spot (our local guinea pig) got put out in the yard to eat grass all summer long.
He hops around placidly like one of those little bunnies on tellytubbies, and dives under the shed when he sees the four year old or the dog.
Spot hobknobs with the five hens when they all run out of water and escape their pen, and come pecking at the sliding door begging for a drink. This is nuts. We live inside limits of a major city.
But the high energy point of my day was filling their water can, splashing cool water on my legs, and squelching my flip flops through the grass,
and pulling a bunch of tall weeds out of the unmowed lawn to throw them, then listening to their little old lady voices telling me oh, oh, oh, there now, tsk, tsk, tsk, now, now.
Therapeutic squalor.
My husband is more gorgeous than ever, and buff from riding his bike everywhere because the car died and so did my income. And I just grin at him with my "do you still love me?" look as I herx wider and wider every day.
Carol, enjoy your fresh morning coffee. In case of emergency, I've learned that schwag from the day before still packs a pretty good jolt, if you mix it in with enough soy milk. In fact my husband and I have started to fight over those dregs. I'll think of you when I have my morning cuppa.
Sweet dreams.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Cobweb
Unregistered
posted
All chores completed! Thank you Bejoy-you've been an inspiration. Only casualty was a stick of butter that melted in the bottom of a grocery bag-from probaby about 3 dys ago. Not too bad.
Now tomorrow all I have to do is- 1. Buy another stick of butter 2. Sweep up the Timothy hay that fell onto the bathroom floor when I cleaned Stinky's cage. 3. Empty dishwasher. 4. Fill coffee pot before putting dirty dishes from stove top back into the sink, so I have a burner available to boil water.
I can go to bed with peace of mind now-just remember Bejoy-don't look at the things you didn't do-I'm sure there's a long list of things you did do- like -flush the toilet?, hug someone? take your medicine? open the door to let someone in or out? or just plain get on lymenet and give us all something we could relate to. Job well done.
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Well I've had two days in a row of better.
I'm not happy if I'm not herxing, but this is manageable.
I'm going to have to watch and see if this type of herx hits on a monthly cycle,
or if it just took this long to get through some nasty cyst busting.
Pam, I celebrated with my vacuum cleaner yesterday.
Thanks for the encouragement, everybody.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Cobweb
Unregistered
posted
WEll, I just did the dishes again-how many days has it been? Only three !
Wow I must eat a lot cause it sure seemed like a month's worth .
That's about the only laboring I did on this Labor Day.
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