posted
Hi everybody, Well, it's been awhile since I've asked any questions, but I can't find any answer's, so I must break down and ask! So here it goes.
I've been sick for about 14 years, at least thats what my LLMD thinks anyways. I have recently been "officially diagnosed" with Lymes for 3 weeks. I have been on IV Doxy with a Piccline for 3 weeks and that is going ok, besides the creepy crawly's that I'm experiencing, but according to my doc thats called Hexing and according to what I've been reading on here others have been experiencing it as well. This last week my vision has been acting weird, going blurry and all, that was kind of scary, so I go into the doc this next week and he wants to check my eyes and maybe change my meds. I know that I've been feeling HORRIBLE AND VERY SICK. Does this get any better?
I know that I've been a member of Lymenet for awhile, but being on treatment puts me in a whole new ball park. I'm kinda lost!
I've also noticed that my speech is getting HORRIBLE! I stammer on almost all my words. Does anybody else have this problem? I can't even have a normal conversation without getting stuck on a single word. I've come to the point where I hate talking to anybody anymore. I avoid talking if I have to. If this is normal, please tell me? Please someone tell me if they have experienced this? I don't think I can take much more of this!
I have also noticed that my "brain fog" is worse than normal, is this because of the medicine or just the Lyme? I don't know if I'm staying or going anymore? I thought I got lost driving before, I really get lost now! I got lost in the grocery store, I completely forgot how to grocery shop! I just walked out to my car and cried, I couldn't do it! I couldn't remember how to put things into the cart, keep track of prices, and just focus on the simplest tasks. I know it sounds simple and easy, but I couldn't do it! I ended up going home empty handed and completely helpless!
O.K. if anybody can give me any insight on anything that would be wonderful, because I don't know.
-------------------- Best Friends Are The Siblings God Forgot To Give Us!! Posts: 24 | From Wabasha, Minnesota | Registered: Jul 2006
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Hang in there Mom of 3,
Give it more time,,ride out the storm. Its a long hard bumpy ride. YOUR going to get better!! Those are keets you are killing!!
Can your husband undrstand your ills?? Can HE go get the groceries 'for awhile'?? least wise go with??
How old are your kids,,,you can get them involved. No matter how young they are,,unless they are still on bottles and diapers I guess.
I used to live in a house that had only wood stove heat. It took a big pan on the stoves and ALOT of water, per day, to keep any sembalance of humidity ,,in the wintertime.
I still remember my 4 year old carrying 2 1/2 gallons of water in jugs from the bathroom tub wand,,,to the stove. Weighed about equal but she ALWAYS got them there!! It was HER job and she liked the accomplishment!!
I ONLY say that,,to point out that kids can take there turn with family responsibilties. Younger kids CAN run a washing machine.(NOT 4 tho)
And CAN transfer clothes to the dryer. AND bring them to you to 'help' fold while lieing down. And then finishing folding and putting them away!!
A pretty young kid can learn how to push a vaccum back and forth,,,and gradually learn how to do it better and better. And how to brush finish the edges and wood work!!
They can ALSO make simple meals depending again on age and experience. My kids all took turns cooking,,,and it was GOOD for them.
They already had a leg up when they left home,,,they could do things!! All too often todays kids know how to play video games,,thats it. Parents arent doing them ANY favors by NOT teaching them things!!
I hope this helps,,help yourself,,by helping your kids and hubby LEARN lifes hard lessons!!btdt--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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That's a Ray of Hope, but it's still very frustrating! My kid's are 14, 10, & 9.5! They help alot and Thank GOD for RAMON NOODLES they are a life saver!!
Since that episode in the grocery store I make one of kid's come with me grocery shopping, I'm afraid to go by myself anymore! HECK, I'm afraid to go much of anywhere by myself!
My husband is very understanding and very supportive. He feels helpless at times, and wishes he could do more. I broke down and ordered my walking cane on Friday, now that was HARD! A walking Cane for me @ the age of 33 years of age, now thats hard to swallow! I often wonder where my pride is anymore?
I often feel guilty of asking to much of my kid's and taking away there childhood. My oldest is a teenager he should be able to go out with his friends and such, but half of the time he has to stay home and help me with something because I either can't do it myself or I'm to sick to get out of bed.
I miss alot of sporting events that my kid's are in, and that hurts them. They say they understand, but I can see it in there eyes that they are disappointed that I didn't make it, or worse "I FORGOT!" I get tired of saying that excuse, "I'm sorry, I forgot!" But you know 50% of the time I really did forget, the other 50% I'm so sick I can't even get out of bed or walk!
Anyways, that's enough of the "PITY PARTY" on me! Thanks for the shoulder and the support! Hoping and waiting for the "Good Days!"
Take Care and Thanks for everything!
-------------------- Best Friends Are The Siblings God Forgot To Give Us!! Posts: 24 | From Wabasha, Minnesota | Registered: Jul 2006
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
You Deary are herxing!
Congratualations!
I herxed so bad on IV Doxy that my LLMD took me off of it last January...been regretting it ever since.....it hit my Lyme hard. We combined Zithro with it at the time and WOW!!!!!!!!!!!!!
You are on the right path now...so stick with it.
You go Girl!!!
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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