lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
I WAS starting to feel better - but today my back is extremely stiff and it's hard for me to move my neck.
I feel like crying. But I won't, yet.
I'm getting my rife machine today. I sure hope it helps me.
My son is home from school for conference day - and watching cartoons and eating junk food again. Sigh.
The dishes are piled up in the sink, there are about 8 loads of laundry to do, and my commode is FULL.
Some days I just don't want to be here, or anywhere.
And, I feel so deflated about the New England Journal article. I feel like this is too huge. A setback of enormous implication.
But, I read some posts from Tincup that made me smile. Thank you, Tincup!
Thanks for reading my ramblings.
Lymelady Julie
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Julie
I am sorry to hear you are feeling worse today
Maybe you are herxing from the IV? I hope your new rife machine will help
Re: the recent articles `~ It's been up & down in the medical debates over chronic lyme for a very long time now. Every time we took a hit in an article I used to get really depressed. Not good for out disease & getting better.
I have been getting "lyme times" for a while now. They report alot of positive things in the way of lyme activism. There are alot of good people working on our behalf. I think one day it will turn in our favor and the truth will be told. They can't hide forever. Helps alot for me.
Hang in there, so long as there is life there is hope Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
posted
Hang in there, sweetie! I would suspect a herx too. The Rocephin has GOT to be helping you!
Go easy on the rifing!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Congratulations and oh, I'm so, so sorry.
Feeling worse usually does mean getting that much closer to feeling better in lymeland.
I have wept on lymenet support many times with feeling like I don't wanna play this anymore.
I hear you. We hear you. Hang in there.
You're on your way to brighter days!
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
| IP: Logged |
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I'm sorry to hear you aren't feeling well. Is there anybody who could come in for a day and help you catch up on house work?
Family member, friend, or if you can afford to pay somebody? I have to have somebody come in once every 2 weeks, because I can't physically clean the bathroom and kitchen. I consider it part of my medical bills.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Being in pain and sick is just no fun.
I am sorry to hear you are not feeling well at all.
It is okay to cry. Sometimes just the release helps me.
Remember too, that God hears all prayers.
Don't sweat the article. It's just the same old story(SOS) on a different day.
Now to make you feel better. I can beat you in the messy home department.
I have at least 9 loads of laundry to do.
Tons to put away (hate this job).
We won't even talk about the floors that need to be mopped or vacuumed.
I hate it, but just don't feel well enough right now to tackle it.
It will still be there tomorrow.
Maybe both you and I will feel better then.
Sending you healing thoughts and prayers.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
posted
If I didn't have a wonderfully supportive husband I don't know how I would manage right now..he has been so great in taking over the extra chores around the house. But unfortunately he is not working, and now neither am I. But I can relate. I hope you are feeling better soon...take care of yourself, my thoughts and prayers are with you. Sending warm wishes and internet hugs...
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[group hug]](graemlins/grouphug.gif)
![[Big Grin]](biggrin.gif)
![[Smile]](smile.gif)
![[hi]](graemlins/hi.gif)
Printer-friendly view of this topic