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» LymeNet Flash » Questions and Discussion » General Support » Roll Call.....How are you doing today???

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Author Topic: Roll Call.....How are you doing today???
Lymetoo
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Where's everybody been lately??? Is it the fall season where everyone flares or what??

I've been yapping to myself all day!! [bonk]

Check in with us and tell us how you're doing, OK???

[group hug]

Me?? Going to an ENT tomorrow about this sinus infection.

--------------------
--Lymetutu--
Opinions, not medical advice!

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sixgoofykids
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If fall brings flare-ups that would explain a lot about my personal state ...

I did great last summer when I was briefly on Cipro ... so we're starting bart treatment .... one month into it and it's brutal.

It's discouraging not feeling as good as I did a couple months ago. [Frown]

I hope you get to the end of that sinus infection ... must be a bad one.

--------------------
sixgoofykids.blogspot.com

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AliG
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quote:
Originally posted by Lymetoo:

I've been yapping to myself all day!!


OK - NOW I'M OFFENDED!! You can yap to yourself the rest of the day!!! [cussing] [lol] [Razz]

I'm here and I feel like poop, thanks.

Sorry 'bout the sinus infection. [Frown]

Have a bowl of linguini with garlic & oil (use a whole bulb) and chase it with some chicken soup.

Follow with extra Vitamin-C and orange juice. (Maybe some Xango too [Big Grin] )

Then drink some nice warm chammomile tea through a straw.

Chew plenty of sugar-free gum (helps drainage) and take a nice hot steamy shower.

Then put some Vicks Vap-o-rub on your chest and snuggle up under some blankets.

Be sure to get plenty of extra rest!

Last, but not least, FEEL BETTER!! [group hug] [kiss] [group hug]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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Lymetoo
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quote:
Originally posted by AliG:
quote:
Originally posted by Lymetoo:

I've been yapping to myself all day!!


OK - NOW I'M OFFENDED!! You can yap to yourself the rest of the day!!! [cussing] [lol] [Razz]

Oops!!! and I HAVE enjoyed our little discussion!! [kiss]

back later!! [Razz]

--------------------
--Lymetutu--
Opinions, not medical advice!

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AliG
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[lol]

It looks like, if it weren't for sixgoofykids, you'd still be yapping to yourself! [Razz] [lol]

Just funnin' ya! [group hug] [kiss]

[hi]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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Geneal
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I'm finally here back from court.

That went about as poorly as I felt.

I swear I thought my heart would literally beat itself out of my chest.

To all of us feeling poorly, a prayer and positive thoughts for better days to come.

Hugs,

Geneal

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Lymetoo
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Geneal.....what did they say????

--------------------

Where IS everyone????
[yammering to myself again [bonk] ]

--------------------
--Lymetutu--
Opinions, not medical advice!

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just don
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Drowning in rain,,,broke the all time record for the month of October,,,previous record was in 1887 if that says anything. (and month is only half gone YET)

Had close to 4" in last 3 days and they keep saying tommorrow, then maybe two days from now, then---

This low just lingers and lingers and doesnt move,,,never saw puddles this big,,,more like lakes instead.

Got stuck where I never ever had today,,,had to walk home a half mile (in the rain)

take a big horse to pull myself out,,,then take that back home and walk back in the rain!! (quack quack!!) What you dont go thru,,,living and working all by your lonesome!!

Went to big town and did my bi-monthly grocery shopping today and picked up my tires that were waiting for me for months!! 6 of them and they only weighed about 100# a piece!! Tough lift for a OLD man!!

Course then again,,,who cares?? Rain rain go away!! Come again NEXT year when it CAN be used,,,like in July and August!!all wet and --just don--

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just don

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kam
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Read about your day in court. Don't know what to say...kind of left with my mouth open or like Goldie Hawn in Overboard....bla..bla...bla

Good post Lyme Too

My day started out poorly as it does at times.

But, it picked up after 3 pm.

I was able to bake some chicken and steam some fresh aparagus.

I also was able to go out on a trail for 20 min on foot.

My kitchen is clean again as a person came and cleaned it for me today.

I just feel so much better when things are clean.

I had really made a mess of it over the weekend.

I had tried to make some coffee and burned it and had coffee splattered all over the stove.

I cleaned that up.

Then, I had tried to heat up some chili and burned it and had chili splattered all over the stove.

I was done in by then and not able to clean it up.

Only had a couple of teaspoons that was OK to eat of the chili.

Then, I caught the kitchen towel on fire.

I decided I best get out of the kitchen and stay out.

I really do need to work in renters insurance somehow. [Smile]

Fading fast now.

Ah yes. I was able to get a summary off to my LLMD...faxed it.

Felt pretty sick while at the printers so cut things short and came home. I was in my power chair at that point.

A guy tried to talk to me at the dog park this am and I had to cut him off and head home.

I still have trouble taking things in at times.

He was trying to tell me about a friend who is in a nursing home with a stroke.

We have it much better than some and worse than others.

At least we have hope.

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just don
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Yikes Kam,

You beter have your cabanna pool boy make your food from now on!!

Otherwise I volunteer. I made a fresh pot of ham and bean soup tonight and be darn if it dont taste great just NOW!!!

Quit burning stuff,,,hard on kitchens and neighbors!!

I am a poor cook but cant remember when the last time I burnt something past eatting range!!oh my--just don--

--------------------
just don

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bettyg
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tutu and all,

i'm just getting on the board today! i agree with the rest of you.

my badly sprained wrist of 2 falls is throbbing like the dickens! wearing my splint all the time except when it's soaking wet inside; to dry off.

spent 2 hrs. at clinic, etc. today. my final incontinence session of talking only.

practice kegels 3, 10 seconds wait; repeat
built up to 5, 10 ...........
finally up to 10, 10 .............


i asked her for her recommendation to APPROVE a AIR-LIFT CHAIR FOR ME since the medicare form directly asks if patient had PT and meds to help them.

she will NOT approve; she didn't observe me having any problems getting out of THEIR chairs!
i'm going to buy it anyways; i need it in spite of what THEY say!

her solutions:
double up a blanket and put under chair cushion.
buy extra cushion to put on top of other cshion.


went to ER, and had them make a copy of NOT ACCURATE dictation of how i fell in that hospital when my sandle stuck to the floor. that was an interesting story he told. ER WAS FULL; so left aper asking that he initial/date it, and send me a copy for my records.

made a diabetes dietician appt. went for 6-9 months when i was diagnosed 3 years ago bt the dietician thought she knew it all, and would NOT LEARN ABOUT CHRONIC LYME DISEASE, EXERCISE, etc! so i stopped going. didn't need that stress too.

hubby last thursday found out he can't pass his eye exam to renew his dirver's license! he has 2 bad catarachts. the both need to come out in order for him to see better to drive. schedule oct. 25 in am.

so took paperwork into that eye office. had them copy dictation of my latest eye exam, and left for specialist! this one said i did NOT HAVE EARLY DIABETES RETINOPATHY!

dr. called me later; 1st dictation got lost in system, so she dictated from memory! when i left this one, they got my file over there and CORRECT VERSION WAS IN MY 3" FILE there. she will copy it and send to me.

friday, my new pcp's RN called, saying my thurs. ct scan of my sinusis showed "obstruction in right nostrel". they want me to see ENT dr.. too.

i've had 2 nose septoplastyiees for deviated septm that gave me long-lasting nosebleeds for years. i don't want to go thr that again!!

so i'll make that appt. after hubb's 1st cataracht surgery followed up by 2nd in 2 wks. later! he doesn't want surgery at all; but not wanting to give up driving either!

had a mole cut off last week; get the 1 stitch removed tomorrow and results of biopsy...good news i hope. my plate is full right now thank you. [Big Grin]

i've probably had 10 appts. this past 3 weeks!

thanks for asking tutu; good luck tomorrow on your sinus situation. [Wink]

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bettyg
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don, i'm sorry, i forgot abot you! [group hug] [kiss]

yes, when i was leaving the funeral for my acros the street neighbor, it was pouring; we had 2" plus 1//2 earlier.

i feel for you walking home, etc, in all that mud! reminds me of the days before the county blacktop came by our farm.

your soup sounds good; we ate hubby's homemade chili!


kam, i know you're enjoying your spotless home again, etc. [Wink]

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Geneal
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Dear Lymetoo,

I posted in off-topic about my court appt. Basically nothing really happened

As we didn't even get a chance to present our case.

The judge wants the Parish and us to "work" things out.

Okay. Yeah. Been trying to do this for over one year now (14 months to be exact).

Hugs,

Geneal

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merrygirl
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Well I feel crappy. I am in so much pain the last few days.

It is like burning muscle pain and like I fell 1000 times on my behind and hips iceskating.

Vicodin not helping too much! I was thinking about see PCP but you know how that can go.

My Lymphnodes are up and burning. My temp is up to 102 (it usually lingers around 100.5)

My fatigue is pretty bad too. I swear I would sleep 24 hours a day if I could.

I hope you all feel better soon!

Melissa

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CaliforniaLyme
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Wow Betty G!! Yikes!!Geneal, I am so sorry!!
Just DOn, I like rain but not mud so much!!!

I've just been petting our goatie and cats and taking the kids here and there and doing housework (yuck!). Never-ending laundry!!!!!
Dinner, girl scouts, pack lunches... humdrum*)!!
Nice though*!)!! It's raining here, too!!! All cold & dreary, I love it because we almost always have a fire going- cozy-
Take care all-
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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Cobweb
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Well, Sunday the 14th I took a nose dive back to bed, one of my "I think I'm really going to die this time" days. Head issues that immobilize me.

All you can do is sleep and wake up to pain.
I'm a certified crash dummy.

Monday was marginaly better-at least I was upright and somewhat functional. But day ended with an IV adventure when the cap came off the end of my picc line extension.

Long story-added to my IV A Cautionary Tale thread.

Feeling better today, in fact I have much to do to make up for the Lost Weekend.

The single most important thing I hold onto when walking through the valley of the shadow of death is "this too shall pass"- one way or the other-right?!!! [Razz]

I only have three medical appointmets lined up for this week. Besides visits from Nurses.

Take Care,
Carol

Actually the nose dive could have been due to the unexpected "procedure" I had done Friday for "mesh errosion". [Eek!]

(minor surgery-with anesthesia and cutting-by a doctor who jokes about LYMES and LIMBS DISEASE and when I correct him says to nurse she has LEMONLYME DISEASE and then grins like a ten year old who's just told a really funny joke.

He doesn't have a clue. Wanted to kick him in the head, but he already had me by the speculum.

Cobby

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Lymetoo
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Good to hear from you guys! Where's everyone else? Are they all SHY??? [Big Grin]

Kam....be careful in that kitchen, OK!? I used to have days where all I would do is drop things and/or burn myself. I'm pretty good at not burning food, but I have caught myself leaving the burner on after dinner....duh! [bonk]

don....mud,.. oh great! If it were warmer out there you could walk in the mud barefoot and let the mud squish between your toes! [Big Grin]

At my aunt's farm we would walk in the fields barefooted when it would rain. The black "gumbo" soil would stick to our feet until we could barely lift them! That was fun! [lol]

betty....your life is way too adventurous for me!! Never a dull moment at your place!! Hope things improve soon!! [Smile]

Geneal...I finally found your court report! I think you'll get something accomplished soon! I'll keep praying! [kiss]

Merry....Still running those fevers!? YUCKO! Are you treating babs yet?? I hope you feel better VERY SOON!! [You're faking those fevers, aren't you!?? psychosomatic stuff?? all in your head???]

CAlif... Sounds like good sleeping weather where you are! Kinda foggy and dreary here too. I feel a nap coming on!

Cobby....I'm very glad for your sake that you didn't kick the duck in the head! I think he was "one up" on you!! [lol] Hope you feel better soon!!!!

I saw the ENT today. He sprayed about a hundred things into my sinuses. Wants a CT sinus scan this Thursday. Probably will come back with nothing on it....no brain, no nothing! [Big Grin]

--------------------
--Lymetutu--
Opinions, not medical advice!

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treepatrol
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I just got back from vacation in the adirondaks rented a pontoon boat and lodge .
First night and next day I was in a lot of pain wife to so we laid around and watched dvd's/
2nd day raining 3rd day raining 4th day raining never got to use pontoon boat to fish bummer allthough I paid for it too left the park friday drove home to Pa clearfield county felt better untill lastnight ached all over also pulled something left side back ooooee hurt?
Its Gone this morning so I said what the heck went and got a flu shot 9:30 am still here. hahaha [Big Grin]

Usual crap [dizzy]

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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Michelle M
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I did not have any weddings this weekend. [Frown] However, on Sunday I had a 'Lifestyle' photo session lasting several hours for a very cool lady. Yesterday I spent the better part of the day working on her pictures...

Angela's Lifestyle Session

Great fun, but tiring.

My daughter enjoys having fun at my expense, finding the most unflattering moments to take pictures of me taking pictures, ha ha...

Michelle

 -

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Geneal
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Be Careful Lymetoo,

You know what you can catch up your nose?

I am sure they will find a brain......somewhere. [Big Grin]

I had an x-ray done once during a particularly bad sinus infection to be told

My sinus' were swollen. Uh, duh? Waste of my money for sure.

Dear Kam,

I can beat you. Went to the store with my son today.

I got very tired pushing the basket, so left it and went off with my purse to

Get a couple of things. I could not find that basket for over 20 minutes.

I had to laugh, but really. I can't believe that I am the same person who worked in acute care. [Frown]

There must be something in the air that makes us all feel so poorly.

Re-doubling prayers and positive thoughts for all of us. [Smile]

I envy you the fire Sarah. Prior to Katrina, we had one wood burning stove and two fire places.

I love the sound of crackling, burning wood and the glow of the flames.

Especially around Christmas (especially if it isn't 80 degrees here).

Bettyg,

Hope you get some wrist relief soon. I think we could all use a Cabana boy.

Don, are you up for the job? [Big Grin]

Hugs,

Geneal

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Lymetoo
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Those pics are great, Michelle!!

Ali....LOOK...A BORDER COLLIE, A BORDER COLLIE!!!!!

Tree....well, at least you got away and could totally relax!

Geneal...Hubby already told me they won't find my brain on the CT!! [Razz]

--------------------
--Lymetutu--
Opinions, not medical advice!

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AliG
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quote:
Originally posted by Lymetoo:

Ali....LOOK...A BORDER COLLIE, A BORDER COLLIE!!!!!


WHAAAAHHHHH(sp) [Frown]
i miss my Boomie.

Very nice work Michele! Thanks for having a good weekend. [Smile]

Everyone else- I'm so sorry! [Frown]
I've said prayers for all of you! [group hug]

TuTu- I hope they don't find any mangosteen trees growing in there! [Razz]

I hope everyone has a better, brighter, healthier, happier, more peaceful and restful tomorrow! [kiss]

(self-included [Roll Eyes] )

[group hug]
Ali

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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charlie
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....Border collie?? I was looking at Michelle's behind.

Charlie (Jenny knows I was looking)

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MADDOG
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Don has rain in Nebraska and we were so dry here all summer it looked like Nebraska.

The crops are off 35 percent.

The Briar next door mows his dirt and covers my trucks with enuf dust to grow blue grass on top of them.

Kentucky blue grass.

MADDOG P.S. That is when he isn't having a FIAR and drinking a case of beer a day.

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Lymetoo
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quote:
Originally posted by charlie:
....Border collie?? I was looking at Michelle's behind.

[lol] [Big Grin]

Ali and I still mourn our border collies. I can spot one two miles away....and I get happy and sad all at once.

Michelle's going to love this, Charlie! [Wink]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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quote:
Originally posted by Geneal:
Be Careful Lymetoo,

You know what you can catch up your nose?

PS...I did get the joke!! [Big Grin]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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OK Ali...I didn't get the mangosteen joke. Hate to admit it, but until that CT scan comes back, I am brainless. [Wink]

--------------------
--Lymetutu--
Opinions, not medical advice!

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merrygirl
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How is everyone today? Well that weirdo pain That had crippled me for a few days is GONE!?

So strange. I still have my psycosamatic fevers HAhaha! Se my LLMD on 11/4.

Yesterday when I was trying to take my afternoon nap I swear I either fained or was about to have a seizure.

I was just trying to fall asleep and it was like my eyes rolled back into my head and I felt like I was falling.

I remember saying to myself oh no! Then I woke up 2 1/2 hours later. So weird.


At least that terrible new pain is gone and replaced with the usual Lymie pain....

I was thinking about getting a membership to the YMCA so I could float around the pool and use the hot tub.

For a family membership it is like $90 a month plus $150 sign up fee! I thought it was expensive.

They do have a financial assistance application so I may try that. It is just hard for me to drop that kind of money when I haven't been working.

I know it would help me a lot though...

Hope everyone has a good day!

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just don
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Update, we are WAY past mud,,,have to get down thru the lakes to get to mud.

Last weekend they forcast 1-2",,,we got 4.5"

Guess what, that low finnally moved off,,,

ONLY to be replaced with another today. I always 'thought' lows were interspersed with highs and sunny days,,,never happened here.

Guess what it is doing right now?? Raining of course. They forcast another 1-2" in next couple days of this one,,,they ALWAYS last longer than they say!!

IF we get another 3-4 inches we are in BIG trouble. So law of averages if we were supposed to get 2" and end up with 4.5" will we get 1/2 this time to 'average' out??

OR will a pattern stay a pattern and be another 4-5"?? Creeks are full already and overflowing. Good time for canoeing but sorta cold!!

As to Maddogs dumb neighbor,,,me thinks he needs one of those 6' solid plastic pretty fence between them,,,,good fences make good neighbors. Maddog,,,maybe the neighbor would go with HALF the cost of same and put it right down the line!!

IF he has a dog,,,they are always wanting a fence for them!! keeps dogs,dust,dirt and fires on THEIR side!!Bounces noise off pretty good too!! Even IF you have to pay for it,,just DO it!! happiness is hard to quanify!!

Those are PRETTY fences to boot!!Solid bottom,,, lattice top!! lasts forever!!(no rot)for sure--just don--

--------------------
just don

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SarahL
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Hey Lymetoo (dearheart!)and everyone -

Well, I *completely* jinxed myself with that insanely positive post the other day lol.

I woke up yesterday from an unintentional nap completely confused, achy, headache from pressure, eyes foggy, fingers swollen... complete herx.

I have BAD leg cramps and I'm wondering if Lyrica does that. Hmmm. My arms are a little better (from neuropothy), but my hands are in agony with zinging stinging shooting um... zings. Don't make me think. lol

And I have to go get my poor little herxing five year old from school. (Lucky I remembered it's a half-day. Ugh.

Lyme has manifested in strange neuro-y ways in him. He wasn't potty trained (dx autism) until five days after we started abx for LD. Go figure. Now whenever he herxes we know b/c we hear "my throat hurts" and he frequently doesn't quite make it to the bathroom in time.

I thought it was bad when I was herxing, but both of us at the same time? Now that's bad.

But I'll get through it - I'll brew some detox tea, drink some lemon juice, take a few baths, etc. And my little guy will get through it too (darn Flagyl to the depths of Hades!!!).

A few gentle hugs might be nice!

So that's why I'm not on much, or if I am I'm lurking, or jinxing myself (darn it all) into a herx! My granddad used to write B+ everywhere to remind himself to BE POSITIVE. B+ B+ B+ B+ B+

Okay, Granddad, I'm trying!

xoxo
Sarah

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merrygirl
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Cave- Sorry aout your heart woes that stinks. At least the cardiologist isn't a complete knob.
(we hope)

Here is hoping everything will be peachy keen and that you feel better soon!

SarahL- I think I jinxed myself last week too posting about how much improvement I have made and that things get better. [bonk]

I mean I still have made improvements, but I am feeling like I took several steps back this week.

I guess it just comes with this stupid disease-
[shake]

Melissa

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AZURE WISH
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Geneal - hope you can get things settled soon. It is hard enough to be sick and have to fight the whole ``being sick'' battle.
[group hug]

The universe is not being kind making you fight another one with court appearances and probably paperwork ...bad universe. [Mad]

Kam - don't feel bad I have caught something on fire in the microwave and the toaster as well as the stove. [dizzy]

Bettyg - Two falls. Your poor wrist. I know what it is like.

In june I fell down the steps and tore stuff in my shoulde. About 2 weeks later I fell up the steps and reinjured my shoulder which was still pretty injured.

Leave it to me to fall up.... I didn't even know that was a possibility. Next june I am spending in bubble wrap. [bonk]

Michelle M - Cool photos. I really like them. The compositions are all well chosen and they each capture a moment. Its not always easy to actually capture the breath of a moment.

Cave - I hope your heart tests come out ok. Did you have your thyroid checked. From what I understand (which isn't much anymore) thyroid being off can cause palpatations.

Me.... Well lately,

Pain in my joints, muscles, head, chest, bottom of my feet

Lightheaded, dizzy

Fatigue- exhausted always

Balance issues, weakness

Shortness of breath

Pressure in chest

Tremors

That's the most annoying of it anyway. Oh and quite often I get that feeling that the majority of the cells in my body are dying.

Lyme sux. Babs sux. Herxes sux. Hopefully it will let up soon. Hopefully it is just a herx. Hopefully ...hopefully...hopefully.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

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Lymetoo
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Boy, y'all are just FULL of good news, aren't ya!?? Whew!!!

Cave, I hope the heart thing shapes up soon. Mine isn't very happy right now either. May be time for another echo over here too.

I think being on recent abx for the sinus infection has caused stuff to be stirred up in that area.

Going for my CT sinus scan tomorrow.

Sarah....I do imagine managing your son's herxes on top of your own is quite challenging!!! Just think of all the progress your little one will go through during the next year!!

Azure...Thanks for checking in with us!! I do hope you feel MUCH BETTER very very soon!! You've had a long haul with this.

See you all tomorrow!! [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

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bettyg
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azure, and others,

thanks for your nice comments on old "graceful" here. my wrist keeps getting worse! to push in the cd button on my modem, hurts so terribly. liting; trying to put on the seat belt, turning the car keys, or grabbing my pillow from right side .... uffda; terribly painful.

cave bet wishes on your heart..

tutu; did the ct scan of sinusis last week; "obstruction" supporssed to ENY docs next. will have to wait until hubby ets thru his 1st cataract surgery next thurs.

don, praying for you/others that rains will MOVE ON and not come bck until needed!

farmers got majority of their crops out erly this year 2-4 weeks ago..

bet wishes that we all can have some GOOD DAYS/WEEK and be in REMISSION. [group hug] [kiss]

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bejoy
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Decided to remove another toxic person from my life because the stress can't be good. But the stress of following through with that decision is hard.

Some toxic people can see you as a free waste dump site, and don't want to let you go. I have to remember that in the long run it's not easier to just give in and let them dump. I didn't have the energy to say no until now.

I'm getting back to normal. Normal for me that is. Everything hurts and I'm tired all the time, but that's all.

I can pretty much do what I want to these days. Quite a feat after several years of not knowing which end was up, after hobbling out of bed into my next panic attack, waiting for night so I could go to bed, then praying for morning so I could get up.

I'm both encouraged and sad about where I'm at. Quite a trip this lyme life.

Nice to see you all today.

--------------------
bejoy!

"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson

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merrygirl
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Hi everyone! I hope everyone is having a good day.

I am not feeling well. I think I jinxed myself last week telling everyone I am making improvement and functioning at 50%.

I have never had a herx this long so I am wondering what the heck is going on.

I slept 12 hours last night. When I woke up I was counting the minutes until my DS would take a nap. I slept for 3 and a half hors this afternoon.

I plan to go back to sleep when hubby gets home.

My fever is up and the bad sweats are back. I am nauseous and the thing that worries me the most is that the brain fog is back. It is not severe, but I haven't had much of this in a few months.

How can you tell the difference between a long herx and a setback??

I haven't felt this bad in a few months.

Oh well. I know Lyme is a rocky road but geez.

Anyway! I hope everyone is good.

I hope I can stay awake for ER and the Office tonight, oh yeah the Redsox are on too....

Melissa

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Lymetoo
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Bejoy...Sounds like you are making emotional progress at least! That's a start!

Merry...I hope the Sox win tonight...just for YOU!!

Cave....I meant to comment yesterday that I was impressed with your cardio doc! Maybe you are teaching him a few things he needs to know. [Wink]

WEll....I'm a bit unhappy. My sinuses are completely blocked on one side. This after being off and on abx for 3 months.

So back on the abx. Dr wanted me to go off until the CT then go back on if I felt the infection coming back.

The CT tech let it slip that I had a problem....and she ended up showing me the scan! She said, "I'm not supposed to tell you anything!"

So I guess I might as well start taking the stupid pills again. [rant]

--------------------
--Lymetutu--
Opinions, not medical advice!

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adamm
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Actually doing the best I have been since I went neuro--I'd say I've

been functioning at around 85% these past few weeks. And as

soon as my midterms are over and I can afford to start herxing, I'm

going to go on triple antibiotic therapy!

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Lymetoo
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Cave, it could be from the zith, that's for sure. My heart was having fits when I was recently on Avelox and then again while on Biaxin.

I'm running out of options.

--------------------
--Lymetutu--
Opinions, not medical advice!

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bettyg
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tppts.

was surgery mentioned to yo?
what would tey do?

mine is called OBSTRCTION so far; can''t wrk them in untio hubby's 1st cataracht surgery is over..

you can tell; this new keyboard and i are not relating to each other at all!! stubborn.. [cussing]

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charlie
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somewhere I remember reading that avelox is contraindicated for patients with heart arythymias....
Posts: 2804 | From Texas | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Getting Better
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Me, i am relapsing.

I am getting ready for a new round of abx.

I am making friends with this illness . . . I have asked it leave, but now I think the best I can hope for is that it moves into a room in the house and does not make too much noise, too much of the time.

--------------------
Jeff

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Doomer
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Hi everyone,

Hope today is a better day for all. I'm starting Alinia again today for 30 days. I did a 20 day course a couple of weeks ago and felt that I made progress on the babesia front.

I have done 5 months of zith/mepron/art and did not make any progress. Then did the Alinia and felt better after but still having babs sx. Then tried Clindamycin/Qualaquin and could not tolerate the side effects of Qualaquin so stopped that after 2 days.

I have been at this for 9 months, abx that is. The worst experience of my life. THere is nothing worse than to NOT have your health. I'm preaching to the choir here.

Hoping all the best for everyone. Just wanting this part of my life to pass.

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Lymetoo
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quote:
Originally posted by JeffM:
I am making friends with this illness . . . I have asked it leave, but now I think the best I can hope for is that it moves into a room in the house and does not make too much noise, too much of the time.

Good analogy, Jeff! I hope you find the key to the disease SOON!!

Betty, I haven't heard from my doctor yet. I only know from the tech that I have a problem.

Charlie, thanks for the info on the avelox. Guess I'll cross it completely off my list!

Doomer, hang in there! Better days are ahead!

[group hug] to all [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

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merrygirl
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Hi everyone! I hope everyone is feeling ok tonight.

I am the same except I saw my GI doc today who basically said that he has no answers as to why I am having GI issues!

So annoying. I am making some awareness ribbons and hope to raise a few bucks for my support group. I am selling the decent size ribbons for $1 or $2.

I am just going to sell them to friends and family. It will help pay for supplies (paper, ink, folders, snacks) I hate asking people for money, but I havent worked in 6 months and I need to be wise with money..

The support group is important to me so no matter what we will have what we need, but maybe it will help!


I am also making some ribbons for Lymies to wear at the hearing in MA in November.

Still have a fever and sweats. My right middle finger is completely numb. No idea why.

Maybe I have been "waving" it at too many people! [lol]

I think I slept about 18 hours. I know it is important but it feels like a waste of time.

The last few days I have woken up I really felt like I was going to die. I am still here! [Eek!]

Hopefully tomorrow is a better day foe all of us.

I am still waiting for an article about my story and the support group to be in the local paper.

Sorry to scare everyone, but I started Christmas shopping or my kids.

I bought my daughter this talking Mccaw she saw on TV. That is her big gift and another little thing.


I bought my son a fire truck. I usually dont start until December but now that I am sooo sick, I can't imagine fighting over toys at the store!

I will be doing most if not all of my shopping online.

lymetoo- Thanks for rooting for the Sox! They won!

Hopefully they will win tomorrow.


I am watching the dog whisperer and I love him!!!


I was kinda bummed out today. My family was going out to dinner for my neices 21st birthday.

I wasn't going to go b/c I felt so badly. It was important to my hubby so I went for about 45 min.


But I was sad because everyone was going out after for drinks etc.

I feel really left out. I used to have all kinds of fun. I don't remember the last time I had real fun.

I really just want my health and my life back. It amazes me that a tick has screwed up so much of my life.

Anyway-

Sorry for my crazy all over the place rant!

Take care Melissa [hi]

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Lymetoo
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quote:
Originally posted by merrygirl:
Still have a fever and sweats. My right middle finger is completely numb. No idea why.

Maybe I have been "waving" it at too many people! [lol]

[tsk] [tsk] Ever notice that this guy's finger looks a little "questionable?" [Big Grin]

You're welcome on the Sox! Since the Astros aren't in the playoffs, I have to have SOMEBODY to root for! [Razz]

Cave, enjoy your dinner! I love Thai food!

--------------------
--Lymetutu--
Opinions, not medical advice!

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