kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I have been overwhelmed and focusing on the negative stuff lately so thought it was time to focus on the postiive stuff once again.
1. I was able to bake a spaghetti squash last night and heat up the sauce while on my feet.
I was exhausted and breathing hard and the heart was pounding but I was able to get the job done. The brain was talking to the limbs.
it is nice to be able to fix myself dinner.
The other night I was able to fix some butternut squash.
I also was able to get to the grocery store and pick up a few things this am. Again, had the flu like symptoms going on and needed to keep it short and simple, but I did it.
I also was able to do a little price comparison and was pleasantly surprised to see it was actually cheaper this week to shop at basha's than it was Walmart for what I was getting at the time.
I had the money for the senior van to take me to the grocery store. This is good.
And I had a few bucks for groceries. This is good.
I am thankful for the roof over my head and the pleasant people that also live here.
I am thankful for the power chair. It makes such a big difference in my life.
And Rosie. Yea Rosie
I was able to put two or 3 things away at a time when I got back from the grocery store.
This is new. In the past, I would need to sit in my power chair and do one thing at a time. I would also need to rest before being able to put something away.
Then, I would do the refrigerated items and leave the other for later.
It helped I only had two bags this time that were half full.
I did purchase some wrinkled cherry tomatoes though. I wish I had seen this before bringing them home. My vision was not working well enough while at the store.
I do have the receipt so I think I will keep them and return them next week sometime depending on how much they are and if it is worth the energy to do so and brain power.
I have a lyme doctor. This is good since the insurance I have is not doing much to help me get well. They are providing the amoxy and other abx...just not sure for how long they will continue this.
And my primary did give me some samples for lunesta last time I was in.
OK My brain is starting to struggle so I will stop now.
Ah yes. I was able to kind of work on a budget sheet in pieces. Not sure why I did that. It was very depressing and anxiety ridden.
And the apartment manager was able to let me know what my new rent payment is going to be for next month since I misplaced the paper for that.
Rent has doubled since moving here 6 months ago. That is depressing but it is still a good deal.
Ah yes. I am thankful for the xango. Yes. Yes Yes.
And I am thankful for the supplements that others provided for me.
And the computer. yahoo
And I am thankful a friend is paying for the ISP service and cable for the TV.
I am thankful for the car and hope to be out driving it again soon.
I am thankful that someone from church is going to be filming Rosie's public access test for me when I am well enough to get the job done.
I am thankful that when I am well enough I have a beautiful place to explore with lots of greenery.
Hoping to find a hiking trail along side a stream soon.
I am thankful I have clean clothes and clean dishes.
Ok Don't want that brain to do the inflamed thing so I am going to back off now.
how about you? Anything you can focus on that is good in your life?
Ah yes. I am thankful the maintenance guy around here said he would put some air in my tire that is going flat. Sure hope that is all it needs.
I also am thankful for the new underwear and bra I was recently able to get. I have needed these things even before I came down sick in 2001.
Then after 2001, I just didn't have the funds or the money to get the newer sizes.
I also am thankful for the sheets that fit my bed. I finally figured out I needed pillow top sheets.
it took me long enough to figure out why the sheets kept popping off.
Brain is working better now to figure these things out I guess.
I kept going to the thrift shops and purchasing sheets hoping it would help, but they all keep popping off.
I finally figured it out one day when I was not in a big brain fog. Over 6 years to figure that one out. Sheesh.
and to think there are people actually working and functioning everyday with the same lame brain.
I can't count the amount of people who helped me change the bedding since I have been sick.
None of them figured it out. They just kept telling me my sheets didnt' work. Like me, they didn't figure it out.
I also am able to come in from an outing with Rosie and hang the keys up on the key hook, put the glasses on top of the TV and hang Rosie's leash up.
In the past, it took all the brain power i had just to get in the door. I would then scatter things wherever and not be able to recall where I put them.
Sometimes I just dropped things right next to the chair.
I still do this when I have over done it but those times are few now.
I like being able to be organized. I like it that that part of my brain is coming back.
I also was able to do something else the other day that surprised me, but I can't recall what it was now.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Hi Kam,
I find that focusing on the positive does help dealing with all this stuff (being sick and the way being sick has altered my life)
I know it is not always easy. I admire that even with the numerous obstacles you have had to face you still look to the brighter side.
It reminds me of that saying that is something like If you want to be happy, smile.
Here's some of mine.
Glad I am getting treatment for lyme. Glad I know I have babs and am treating it now.
Grateful for my cat, Twilight, who just loves me no matter what... stays by my side through thick and thin (actually he is sitting on the computer desk right now)
Grateful my mom lets me live with her and drives me. (Grateful I have hope that I'll be able to drive again)
Grateful the my artwork always waits for me.
through all the periods I was too sick to work on my art it never left just waited. I am too sick to work on it now and I find it comforting to know when I get well enough to work on it, it will be there waiting.
Grateful I dont crave the chocolate candy we have for trick or treaters. I look at it and just see "sickness" now... and when I was younger I loooooooooooved chocolate.
Grateful my mom has comcast internet. Speedy connection is good for a fatigued body and brain
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Azure,
That was fun to read.
I just got back from being able to go on the trial with Rosie for about 5 or 10 min on my feet.
If it had not been for Rosie taking my mind off of my body struggling with each step, I most likely would have turned back.
I also was able to get the car to an air hose and put air in the tire.
I am thankful for that pole by the tire or I would not have been able to get up. I forgot and left Rosie in the car. She usually helps me get up.
Yep. You read it here. I did a pole dance today.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
bettyg
Unregistered
posted
CONGRATS KAM on all your accomplishments today! happy for you.
negative comment to come...
we waited 1.5 hours for the dr. to see hubby for his pre-surgery cataracht surgery yesterday. she was NOT AT THE OFFICE nor did anyone know where she was! she came in, did NOT APOLOGIZE or acknowledge she was late, and gave a 4-minute PRE-OP EXAM! boy were we disgusted! we were hoping to make her our NEW PCP since ours of 28 yrs. retired in aug. so disgusting!
was going to take 4 months to get into a NEW DR. replacing 2 who left!!
positive now!
i'm happy hubby's cataracht surgery went well; no problems at all, and that he got his eye patch off today. hoping it clears up and he can read out of it and PASS HIS VISION test to continue to drive!
otherwise, they talked of doing other eye in 2 weeks.
he mentioned going home, he's thinking of GIVING UP DRIVING at age 70 today due to his severe tremors, and mild parkinson's setting in.
so happy for a wonderful, thoughtful hubby who loves me AS I AM; sickand all! who took our wedding vows seriously 33 years ago, IN SICKNESS AND HEALTH.
happy to have close classmate friendds i get together once a month to go out for supper, and go back to their homes visiting and belly-laughinng to a comedy movie.
blessed for other neighbor friends who took me to all my des moines appts. these last 9 months!
IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Kam,
Keep that hope and positive thinking.
It is so hard to turn things around and see the positive some times.
You are doing a fantastic job!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Kam, I'm thankful to learn there is such a thing as pillow top sheets. I've never heard of them, and my sheets have been popping off for exactly 6 years too.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Tracy,
Haven't tried searching for them myself. That is just what a new friend said when she came over with the sheets for me.
Good news is they are working.
Betty,
Enjoyed reading your post too. Needed it this am.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
posted
Kam...I loved reading this today. Made me smile. I'm grateful for people like you who force me to see the positive in my life on the days I'm feeling sorry for myself. Thank you.
Bettyg... your negative, positive story made me think of when I was a nurse supervisor and I would tell my nurses they could not make a negative comment without a positive one. One day a nurse came to the desk and said, "I'm going to go choke Mr.______ until he turns a BEAUTIFUL SHADE OF BLUE! There, negative, positive." I told her that wasn't exactly what I meant. (The patient had been driving her crazy all day)
But it is better when we can focus on what is good in our lives rather than what is bad. I am guilty of remembering the bad lately and appreciate the reminder.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[bow]](graemlins/bow.gif)
happy for you.
![[Wink]](wink.gif)
Printer-friendly view of this topic