LymeNet Flash: Lyme/ALS

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»	LymeNet Flash » Questions and Discussion » General Support » Lyme/ALS

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Author

Topic: Lyme/ALS

JulieF
Junior Member
Member # 13710

posted

Hi Everyone! I have just spent a huge amount of time reading thru some posts and must say that as a newbie I am overwhelmed! I have gone from uplifted to comforted to so worried for some and finally to frightened. My journey went from misdiagnosed carpal tunnel surgery to ALS misdiagnosis within about 9 months...then by the Grace of God and a determined mom a Lyme literate dr was found in AL who is treating me for Lyme. [woohoo]

I have had ups and downs but all with steady improvement and he is quite certain ALS is not a factor. All that brings me to my fear - that ALS and Lyme seem to go so well hand in hand. Is there documentation about this somewhere either proving or dis-proving? Lyme is such a nasty thing on its own that we don't need the nagging fear of ALS added to our fight!

Wow! Nothing like a newbie whining first post out! One good thing about the first dr saying ALS - I am bound and determined to prove him wrong and then perhaps dance a little dance at his retirement party!!

Stay strong, all, and know that you will all be in my thoughts and prayers.

Posts: 8 | From MS | Registered: Oct 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Glad you found us!!

ALS/LYME
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=037392#000021

http://home.goulburn.net.au/~shack/lyme.htm

You may want to introduce yourself over in Medical Questions. That is where everyone is!

Just copy and paste this [what you wrote] in a new post over there.

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

posted

Welcome Julie!! I'm so glad you found us. I second Tutu's advice to post in Medical. Please do a search for "ALS" in the subject line and you'll find tons of posts. Also, hunt up CaliforniaLyme (you'll find tons of posts by her). She used to head up a forum for Lyme/ALS'ers. Hopefully you really DON'T have any type of ALS presentation to your lyme as that really needs some wicked-intensive treatment!! But I'm glad to hear you've found a great LLMD! We look forward to seeing you 'round LOTS!

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005 | IP: Logged |

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