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» LymeNet Flash » Questions and Discussion » General Support » I KNOW IT IS LYMES EVEN AFTER A NEGATIVE TEST

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Author Topic: I KNOW IT IS LYMES EVEN AFTER A NEGATIVE TEST
pisces2
Junior Member
Member # 13779

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I'm hoping someone can give me a list of lyme literate doctors in the San Antonio, tx area or the closest to here. I'm positive I have been misdiagnosed for the past ten years. They say i have Systemic Lupus. I believe it is Lymes disease. I had the bullseye rash, but i also remember multiple insect bites, and that it was intensly itchy. I had the fever, stiff neck, jaw, and body aches, like a bad flu. Since then I've been going down hill. I now have what looks like multiple cysts inside my abdomen, doctors here are telling me the only way to get rid of those cysts is if they remove my entire intestines. That wont be happening. Please help me someone out therre who is reading this. I feel like I am dying.
Posts: 2 | From san antonio, tx | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Welcome, Fellow Texan!! I'm a native Texan, living in Missouri. I moved here from San Antonio 11 yrs ago.

I'm glad you found us! I think we can help!!!

There aren't any LLMD's in San Antonio, and hardly any in TX, period.

Your best bet is a dr in Louisiana, and my dr in Springfield, MO.

I know, I know....a long way....But you wanna get well, right?? Both drs will treat with return appointments every 4-6 months....So it's doable!

Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

============

PS....READ MY STORY BELOW!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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welcome aries; from another one!

i sent you a private message, pm, wth innfo you are wanting and also my newbie package of 81 pages of newbie links, advise, symptoms, tests, disability, and much more including treepatrol's archive of over 1000 links of good lyme info.

to find pms, go to top of left side under HELLO by flashing light and in my profile.


also we have LYME without the S on ok; thx [Smile]

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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

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I BELIEVE YOU PISCES!(*)!*)!*)!
!*)*!)*)!*)!*!)*!)*!*)!*!

They thought I had lupus at one point too and it went away with abx- you are lucky to have LYmeToo near- she is great and knows a lot*!*)!!

WELCOME*)!*)!*!
@*)!**)!*)@*)!@
Best wishes,
Sarah
100% symptom free

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Thanks for the kudos, CA! But I'm in Missouri. [Wink]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

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OH!!! I always thought you were in TEXAS!! I never noticed you live in MI!!! Weird!!!!!!!!!!!!

Sorry LT!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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I know....It's sort of a smoke screen and partly my need to say I'm a Texan through and through. Have no idea why I'm still in MO!! [Wink]

Oh...I think it's hubby's job! We love the weather here too!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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