posted
Just dx'ed and clueless, is there a chat site somewhere? would really like to talk to someone. thanks. Lorraine
Posts: 16 | From Kentucky, USA | Registered: Nov 2007
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bettyg
Unregistered
posted
welcome lorraine to the site! glad you found us and you will learn A LOT!
they have sat. night chat here; i've never participated but it is posted in GENERAL SUPPORT about it, and the site they use, you might like to try it for others who use it not on that night/time.
i have just sent you a PRIVATE MESSAGE, PM, with 82 pages of newbie links, advise, symptoms, tests, disability, and much more including a link for treepatrol's archive of over 1000 links of good lyme info.
i know the confusion in your mind right now...been there done that. misdiagnosed for 34 years of my 38 yrs. this xmas!
it was a tick off folks' LIVE XMAS TREE that got me. i didn't see him nor get a rash! 40-50 drs. later, i finnally heard of this disease and tested.
i'm OVERWHELMING YOU WITH STUFF! just SKIM it and highlite what will be helpful to you right now.
print off dr. burrascano's 06 lyme treatment guidelines,
print off ILADS GUIDELINES!
print off 1ST DRS. APPT. WITH LYME LITERATE MD, LLMD!
do you have a LLMD? post in seeking dr. section, and show largest city near you.
i just checked; NO llmds; but 1 neurologist shown for your state.
now, i'll let you get to reading the beginning of WHERE to start! we'll see you on the board lorraine!
thank you also for what you do for a living!!! god bless you/others like yourelves saving lives!
did you see an embedded tick?
have a RASH?
how long ago have you been sick? IF IT'S RECENT YOU HAVE A GOOD CHANCE OF BEING CURED, AND NOT LIKE THE REST OF US!
FIND THE LLMD NOW! don't put this off! ***************************************
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Hi and Welcome.
There is a lot of information. I still learn something new and
I've been treating Lyme and co-infections for over a year now.
This is the best place to ask questions and "talk" about Lyme with someone.
Hang in there.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
hi, here is the info on the lyme chat.
Hi all, Lyme Chat, Saturday evening 8:00 p.m. Eastern time
Wait a minute for the applet to load. This is a text only chat.
If it won't let you type in your name, close everything down and restart your computer. Then try again.
You don't need a password, just type in your screen name. It does help the rest of us if you include your state, saves a lot of questioning "Where are you from?"
Suggestion: Open the chat window to full screen, for easier reading. You can bookmark the room for future reference. The chat room is open all the time.
This chat room was organized by Josh in New Jersey, who has a radio station. You can request to be on his email list by clicking on the link on the main page.
I have been reminding people about the chat, because it's a great way to get to know some of your fellow Lymies. We do talk about Lyme Disease, but we can get silly, too.
For the people in California, this will start at 5:00 p.m. or check in when you are able.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
WELCOME*)!*)! !&*)!*!*)*!)!*!
WELCOME*)!*)!*!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You can also go to the Support Groups on the left side of this screen and click- and find your local support gorup- and call your local support group leader and GO to a support group or just met the leader for tea sometime or call*)!*)!)!!!!!!!!!!!!!!!!!!!!!!!!!!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Hello Lorraine. There is a chat, but only on Sat night. I always forget it. I need to put a post it note on my forehead or something.
I'm from Kentucky too. There sure has been alot of people joining this site in the last few months from KY or surrounding areas.
I'm confused. I thought we didn't have lyme or tick borne illnesses in KY or surrounding area???? That was a joke Lorraine. I've met about 100 people in the last 7 1/2 yrs since I became ill.
Welcome and you have come to a site that will help answer many questions. Probably will cause you to look for far too many answers too.
Pam
P.S. The local support information at the left for Ky and surrounding areas is very outdated. Old info that I really wish would be changed. I need to write that done on a note and take care of it soon, also????
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
Welcome Lyme Pie! Yet sorry to have to meet here under these terms!!!
BettyG should be along with newbie links for you and you can find one also under Medical Questions page at top.
Kentucy, huh!? I am in East TN! You will find willing and helpful support here!!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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posted
oops! I missed that she was first there! Told ya she could be counted on, LOL!!!
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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