posted
My Doctor wants to put me on IV Claforan. Is this better than Rocephin has anyone had any success with Claforan. I need Patient Assistance Program for IV. I can't afford it. I tried calling PPA but they need manufacturer or what is another name for Claforan that PPA can identify with?
How much does a nursing agency charge to put in IV? I do not have money or insurance. What do u do? I'm debilitated.
Posts: 48 | From USA | Registered: Oct 2007
| IP: Logged |
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Cuddles,
I used it back in 03 or 04???? It is a 'safened' form of rochephin,,,same thing BUT it is safer for the gall bladder.
Think back then it was like 300 bucks a day,not real sure. In MY opinion,,,if you dont have the money for the expensive stuff,'Clafran' then common rochepin would be the way to go with GOOD gallbaldder protection,,like actigall and anything else that would help that.
How long are you going to get that?? 10-14 days is hardly WORTH the effort,in my thinking. Canm YOU get them to approve a long term deal??
Insurance cut me off JUST when I turned the corner and it started working. So IF you can get rocephin approved for a MUCH longer time cause of cost,,,go THAT way.
I know rochephin has come down in cost ALOT since I had it!! NOW I dont have insurance or the money to buy it out of pocket so there goes that idea of getting well!!
Thats all I know about it,,,hope whatever works for you!!! Better be sure of who pays what and costs involved or it can get REAL costly real fast!!! They LIKE to sue or send to collections,,they dont care how sick we are they just want MONEY!!! Hopefull for YOU--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Claforan is gentle on the gallbladder. needymeds.com has them by brand name too-!! Here, looked it up for you- DARN!!! Not on any lists for now!!! Neither Rocephin or Claforan- Sorry- Call PPA- they may be able to help- the non-brand name for Claforan is Cefotaxime Sodium. But you CAN get IV Rocephin very cheaply these days- it is off patent and it's name is IV Ceftriaxone. Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Hi cuddles - love the name. Anyway, I had to respond to your question about claforan because I had a bad experience with it.
It was Christmas Eve 2004 and I had been on IV claforan for about 3-4 weeks. That night, after administering the drug, I felt like all my bones were breaking in my body.
I had been sick with a fever for several days prior to this and was screaming in agony.
My husband called the ambulance and they ran blood tests at the ER. I was delirious.
Suddenly a nurse came into my ER room with a mask on and said I'd be admitted. I had almost no white blood cell count.
The fever I'd been experiencing is called a "neutropenic fever".
I spent Christmas day and 3 more days in the hospital sicker than I've ever been. They took me for x-rays and I briefly lost consciousness and stopped breathing. I revived on my own and fainted on the way back to my room.
The only time I've ever fainted in my life.
Low WBC is a rare side effect of claforan. It makes you very susceptible to opportunistic infections. My kids had a cold and it was their cold virus that nearly killed me.
So, this is what happened to ME with IV claforan. It took several months to recover. But like I said before, it's supposed to be a rare side effect.
Just thought I'd let you know. - Julie
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic