posted
I am so frustrated by my family. Ten months ago I had a healthy (tests for Lyme neg, thus far) baby girl, 5 months ago we all moved several states away. I started a new job, and wouldn't you know I started getting symptoms again. Being in a new area, I don't know where to go for a new LLMD.
I did get some god advice from here nd called to tell m parents about it. After several years (over 10) of going through this with me, you would think that they understand some things.....
Like the fact that I will have to travel some distance, most likely, for a good doctor. When I told my dad that the dr. was 3 and a half hours away, he said "no...you need someone local." WELL, DUH! If I could find someone local that would be great!!! Granted, I used to live more than 2 hours from the nearest mall and airport, and now I live in an area where I'm only 15 minutes, but I still don't know that I'll find anyone closer.
I'm in NC, by the way. Anyhow, I'm just having a low moment and needed to rant to folks that I know understand. My shoulder and hip are killing me lately. I don't want to mess up the new job (I'm bread winner for our family).
[ 04. December 2007, 07:41 PM: Message edited by: fetz ]
Posts: 49 | From Holly Springs, NC | Registered: May 2007
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Im with you. Even throughout this horrid illness, I have learned one thing:
I am on my own. It should not have to be that way. I should be able to depend on someone else, but lo and behold, I cant.
So I learned to depend on me. I stuff their opinions back in their face and go on my way taking my antibiotics. If I need driven somewhere, I can take greyhound if they won't step forward.
Its HARD to do this alone, and I know what you are going through, but my family has decided that my problems are all on me. So, ok.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I am sorry that your family doesnt understand that it is still difficult to find a dr that is willing to treat tbds.
It must be hard to deal with a baby,new job, and a move while feeling symptoms reemerge. I think that once a person knows what lyme is meaning has lived with it, through it ... it makes the symptoms more diconcerting.
Try not to worry about what will happen. I know that is really difficult but stress isnt good for the immune sytem.
I put heating pads on my worst joints.But that wouldnt help you at work but
They sell these heat packs that you can stick on and no one should be able to tell u are wearing it unless ur clothes are real tight.
ThermaCare makes them in different sizes. You can get them in Walmart or probaly any drugstore.
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Im sorry you are going thru this. Thermacare does have these arthritis wraps now too, so they might help. When i was first sick I was forced to work, and had a back wrap and a pelvis wrap on daily at work.
And i sat wrapped in a blanket all day. So, i really feel for you, I do.
First thing you need to do is find treatment,and quickly.
My family dynamics is one in which I was the breadwinner and I still am, on disability shoulder it all. parents still dont understand it, they have their own lives.
I do it on my own now, drive myself, so I wont hear the complaints. My goal is to get well again, they dont seem to care about my plan.
So, do whatever you have to to get well.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i have absolutely zero family support, emotionally speaking; i know just what that feels like. i'm so sorry you're dealing with it too.
and i have to agree with everything crimeoflyme said; ultimately, we're in this alone. it sucks and it shouldn't be that way, but you'll amaze yourself by how strong you really are.
posted
Thank you all for your comments. The heat wraps are a great idea. I'm a teacher at a high school so I rarely sit all day, but that should really help.
No, I don't have an appointment yet. I know,that since I'm 29 and been dealing with this for over 10 years that I should just ignore my dad when he says something that makes no sense, but it's still hard to just ignore his disapproval.
My husband seems to go in waves with his support. Sometimes he's great, other times he thinks I should just toughen up. Mostly, I think this is because he didn;t know me before and has only been dealing with this for the last four years. Two of those I was completely symtom-free.
One and a half I was of and on the picc line. And now I' jut dealing with this chronic pain and candida as well (I think). I will also look into transportation. My other concern is taking the time away from my baby girl. As it is because of working, I only see her a couple hours a night and on the weekends.
Posts: 49 | From Holly Springs, NC | Registered: May 2007
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