posted
Dear CT Residents Concerned about Lyme Disease,
This is an urgent call for action! As we are preparing for Dr. Jones' hearing on Tuesday, we're also preparing for other events on our agenda that day, the first being a brunch for legislators. Representative Jason Bartlett, Dr.Cameron (ILADS), Pat Smith (LDA) and Sandy Berenbaum (LCSW,BCD) are speaking at the Legislators Breakfast, and we need good attendance there as well. We need our legislators to come!
Below is a very user friendly website, where you can plug in the name of your town, figure out who your state representatives are, and send them an email. Please send EACH of your legislators an e-mail (perhaps one from each of your family members), asking them to attend and getting it around to others to send e-mails. EVERY E-MAIL COUNTS. WE NEED TO GET A LARGE LEGISLATIVE ATTENDANCE-MEDIA WILL BE THERE.
It is also prior to a meeting that was called to talk about Lyme prevention, and NO ONE FROM THE LYME COMMUNITY WAS INVITED. WE NEED TO EDUCATE OUR REPRESENTATIVES BEFORE THEY RECEIVE INCOMPLETE INFORMATION AT THE "LYME PREVENTION" MEETING!!!
Below sample letter you can use as a sample, or template:
Dear Rep. I am writing to urge you to attend the Legislative Breakfast, sponsored by Rep. Jason Bartlett, on Tuesday, December 18th 9 am to 10 am, held in the Private Dining Room - 1st Floor / Connecticut Legislative Office Building in Hartford. The topic is "Access to Care", a very important issue for many of us in your Town who have chronic, debilitating Lyme disease, or have loved-ones who are stricken. Speakers will present information to inform the legislators regarding this issue.
Please be there, and ask your colleagues to come, as well.
We thank you for your help!
Newtown Lyme Disease Task Force
Ridgefield Lyme Disease Task Force
For further info on ridesharing, directions etc.go to LymeRights.org http://lymerights.org/
Press Release:
PHYSICIANS, LEGISLATORS AND PATIENT ADVOCATES TO DISCUSS
LACK OF ACCESS TO CARE FOR CONNECTICUT LYME PATIENTS
HARTFORD, CT -- Dec. 13, 2007 --Jason Bartlett, Connecticut State Representative for the 2nd Assembly District (Bethel, Danbury and Redding), will host a breakfast conference at the Connecticut Legislative Office Building on Tuesday December 18 to discuss the importance of access to care for people suffering from Lyme disease. Leading experts on the affects and treatment of chronic Lyme disease will join Mr. Bartlett to lead the discussion, including Dr. Daniel Cameron President of the International Lyme and Associated Diseases Society (ILADS) and Pat Smith, President of the Lyme Disease Association, the largest Lyme patient advocate group in the United States.
Access to adequate care for Lyme disease is one of the most serious issues facing the people of Connecticut. More than 34,000 Connecticut residents are diagnosed with Lyme disease every year and the number of cases is increasing. Because there are no accurate diagnostic tests for Lyme disease, many people are at risk of developing chronic Lyme, a highly debilitating form of the disease.
The discussion on Tuesday will focus on the impact of Lyme disease on the people of Connecticut and the need to increase the number of doctors who understand the complexities of Lyme disease and are trained to practice a new standard of care focused on patient quality of life.
This breakfast conference precedes a Lyme prevention forum being held by Connecticut legislators to educate their members and then the final hearing on Dr. Charles Ray Jones, a Connecticut doctor, whose treatment of children with Lyme disease has thrust the access to care issue into the spotlight.
Members of the press are invited to attend the 9a.m. breakfast conference event in person and open to public.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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