posted
Hi Everyone Well I am at exactly 6 weeks of IV Rocephin and 4 weeks of 250 zithromax. I am trying to be positive..I swear I am. I have no idea what the new sed rate is since they forgot to run it but the other blood results were okay. I am sure the sed rate is still high so I am kind of glad I do not know what it is.
The neuropathy burning is still really bad...really bad! I had to take some more ativan today so I do not start non-stop crying. I could not feel my foot or thigh for a little while today...guess that is better than it burning? I also have more skin sensitivity than before?
The LLMD mentioned he might add Mephron in a week or two for the babs. I still cannot drive due to the blurry vision and I am just plain disgusted as usual. I just needed a little boost tonight. I look like a skinny nightmare with swollen eyes! I know 6 weeks is not a long time...but I have been burning for several months so it seems like forever.
Please just remind me that I will stop burning soon...thanks. My kids want their mom back and I want my life back. Gosh this really stinks!
i'm so sorry you are going thru so hell now with this. i've NOT been on the meds you mentioned so can't speak from any personal experience.
others will respond when they get a chance.
just remember, you hit bottom before you start crawling yourself out of that lyme hole you went into that is KILLING OFF SPIROCHETES IN YOUR BODY! that's the only good thing about this process.
how old are your kids? there are a couple of teen boards, etc. that perhaps your kids could talk to other kids, but THEY HAVE LYME also.
here's to a HEALTHIER 2008 which is starting in 3 more days!! hang in there!
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posted
Thanks Betty. My kids are 6 and 8. Now they are torturing eachother with Barbies I tried to play with them but I am in pain and it is hard. The 8 year old is on meds for Lyme also. She seems to be doing okay on amox.
I know getting to the LLMD was a huge step forward. Honestly I am just pooped...
Posts: 422 | From CT | Registered: Oct 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Monica,
I've never had IV antibiotics. I do, however, have a 6 yr old and 4 yr old
Who are also being treated along with myself and their father.
I can appreciate the "barbie battles" and such.
My children have started flagyl along with their zith and our weekends
Are really crazy both physically and emotionally.
Did I mention I am doing flagyl same days as the kids?
Hang in there. Sending you positive thoughts and healing prayers
To you and your family.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Glad your doc is going to add the Mepron*)!!
I hope this is a Herx and you will have results soon! We had ONE woman in our support group who got better WAY quicker than the rest of us- I hope you are like her*)!*)!
HUGS to you- seriously- Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Geneal, you also have your hands full with the kids...it is hard at times!
Thanks Sarah..I get Mephron on Tuesday Can you imagine I am happy about getting another abx...crazy. I just know the babs is really getting me again and I want it to stop.
I have noticed that my pain tolerance has increased dramatically. If I felt like this three months ago I would have rushed to the ER. Now I am dealing with it better....although still crying a few times a day.
Posts: 422 | From CT | Registered: Oct 2007
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I was on the IV Rocephin too. Do you know that a side effect is depression? I was not aware, and it really hit me hard after being on it for about 3 months. Just be aware and be careful. Take care!
Posts: 49 | From Holly Springs, NC | Registered: May 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Hey Monica! How are you doing today?
I hope you are better. If you ever need to talk let me know ok? I am home all day and I am happy to give you my email if I havent all ready.
I have 2 small kids 2 and 6 so I know how you feel (Geneal- I have no idea how you do it with sick kids...god bless you..)
hang tight ok? I am a bit down too. This disease is rough. Good luck with the mepron.
Your friend, Melissa Posts: 3905 | From USA | Registered: May 2007
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