posted
I am not sure if anyone remembers me but, I havent been here in a while.
Anyways, I started going back to the doc. About a month ago they dx me with Fibro. I was started on Lyrica and have increased it to 225mg x daily. It has helped me. My neck doesnt hurt anymore. Nor do my shoulders. I sleep very well now also! I am very excited about it! Its weird because I have gotten so use to pain that I hardly notice that it is even there!
I was talking to Grace and I know there is still the possibility of it being Lyme. But, for right now, there isnt anything I can do about it.
I would like to thank all of you though. You guys were here for me and I know you will always be here when I need help. I wish all of you the best! I just wanted to stop by and give an update! I occasionally get on and browse around and read posts so...I havent left for good!
Thank you! Take Care!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Of course we remember you
I am glad your dr found something that is helping you with your pain.
Find your county. An endemic county has 2 cases of Lyme. These are incomplete statistics...I have the stats back to 1991, but haven't updated this spreadsheet. Are you in an endemic county?
Over 32% of Alabama counties are endemic for Lyme disease. Anyone who denies this fact is ignorant...look at the state's statistics.
The tick infection rate with Borrelia species is over 3% at some sites in Alabama. The CDC states there is a medium risk of contracting Lyme disease when the tick infection rate is 2%. So, are we really a low risk state?
Glad to hear from you Christi. Keep in touch.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
yep. i remember your pen name too.
i have heard good things about lyrica..wondered about taking it myself.
this lyme thing is tricky. the main thing is to get your health back.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
CHRISTI*)!!!!!!!!!!!
of course we remember you*)!!! I do, anyway, and everyone else so far!!! VERY nice to see you, I'd been wondering where you'd gone!!!
Fibro!! Eeek!!!! My fibro is gone. I hope you get to an LLMD when you are older and more in control of your life- Hugs to you, kiddo!!! Best wishes, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Sure do remember you. As soon as I seen your site name, I thought young lady, living with parents and struggling.
I'm glad you have found someone to relieve some of your symptoms.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Christi, I'm glad you have found something that will help with the pain and your sleep.
As others have said, perhaps this will carry you over until you are 18 and can make your own medical decisions. Then you can at least get tested.
Best wishes, and don't be a stranger!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
Wow! I did not expect you guys to remember me like you have! Thanks so much!
hshbmom, PC resident? School has been a lot harder this year. I had a very bad summer. I dont know if I told you guys about it or not, but to sum it up, after my accident I went into major depression. It was worse than it had ever been before. It went way down hill...all the way...but, I found Healingwell...I started getting on there to talk to more Fibro people and they really helped. But, I continued to struggle with the depression. I started having panic attacks and anxiety attacks. I was so scared and didnt know what to do.
Basically when I tried telling my mom, she said it ws a phase. Then, I tried telling her it was worse, and she told me I was talking crazy and that she would send me away if I didnt stop talking about it. I was really scared and didnt know what to do. I wrote a letter to my school counselor. I have gone to her almost every week since August...she only talked about the depression though. And now she asks how I am doing and then we just 'chat'. She is a great talked, but we dont ever discuss my problems. So, she doesnt know how bad it was, but I still go hoping that one day I will blurt it all out.
My foot healed completely. My toe hurts when I do alot on it, like playing basketball, but it isnt bad. And I actually grew a small nail back! People enjoy the story though so!!!
I am still playing tennis, but now for my school team...I quit...I wasnt sure if the medicine was going to work, and if it did I didnt want to test it to soon. But, now I know it has worked and I play basketball most days now and it usually doesnt hurt. But, I dont push as hard as I can.
I am a little scared to jump back in because it has always hurt me so I am hesitant...and I also know I need to take it slow for my body.
I go to the doctor Wednesday and then I will see what he says. He basically said if it works I have Fibro, and if it didnt he wanted to send me to a really good Rheumy in the next state. BUT it has been working! It doesnt take all of the pain away, I have noticed it here and there, but I have noticed that it is alot better than before! And I am able to sleep so!!
I cn not wait til I turn 18 and I am able to handle my own stuff. I will be so happy when I can go to the doctor as I want to...I have struggled so much since June. I have been way way way WAY down...as far as you can imagine...and right now I am still down, but it is alot better than it was! I know that I still need help though...and I really would like to go to a LLMD...before something major happens. Hopefully, I will make it!
But, I promise to get on here more! School takes all of my time! Thank you all so much! I remember each of you...I didnt think anyone would remember me but I have been proven wrong! Thank you all so much for caring!!!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Hi Christi, the PC resident is the one who volunteered to take you to a LLMD. She's also in Alabama, near me.
I hope the Lyme hasn't spread to your brain. You probably remember that Lyme can cause neuropsychiatric problems such as depression, anxiety, panic, rage, ADD, ADHD, autism, etc...
You'll get many results if you do a google search of Lyme + neuropsych.
There are some good related articles on ILADS, The Human Side of Lyme, and Colunbia University's Lyme Research Center.
My 15 yo daughter is going up to Columbia soon; don't have an appointment date yet. She's out of school for the 2nd year, receiving homebound education. 5 of my children have this...and my husband and I. Not fun!
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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I dont have rage, usually! Or autism. I do have depression, anxiety, and panic. And I actually think I have ADD. Someone actually asked me that once! Not sure about ADHD. But, yes, I am aware of all of these things! I am very aware of Lyme thanks to you all! I have learned so much coming here.
Even if I dont have it, I still know so much about it and it might be useful some time.
What does the PC stand for? Sorry to be so...questionable...I am just curious if it means anything. Maybe when I get a little older and can do thinks myself, and if I am still having problems, I could pursue going to a LLMD. At least for now I dont have a choice so...
But, I appreciate all the help and offers! I wish the best of luck with your daughter, and your family!! Take care!
-------------------- Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.
God bless,Christi Posts: 306 | From Alabama | Registered: Feb 2007
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posted
Hi Christi -- of course I/we remember you! Thx for checking in -- good to hear Lyrica is helping with the pain. Maybe I'll check it out sometime. My fibro pain went away in one week with clindamycin 150mg 3-4x/day, and stayed away for six months. I also herxed -- got real tired and had to lower the dose. We're all different so what works for me might not work for someone else. But you never know...Drop in and say hi again... -- Robin
Posts: 13171 | From San Francisco | Registered: May 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
PC is an Alabama city.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
You take care too- Happy New Year Christi*)!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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