posted
Do we have any lymies that live in the Tallahassee/Wakulla County Florida area?
It would be great to have someone around that is going through the same thing.
Looking for friends in Florida.
-------------------- OK...I'll play your silly games.
Finding my happy place.
Brenda-Lee Posts: 126 | From Florida | Registered: Aug 2007
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bettyg
Unregistered
posted
brenda, try this!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1200 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Betty, you can change that number of people in the online state groups to 1500. And that doesn't count the non-CALDA groups.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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posted
Bettyg, I did that and thank you so much, I actually met someone who lives in the same county as me, within a mile of me. It was sooo cool.
-------------------- OK...I'll play your silly games.
Finding my happy place.
Brenda-Lee Posts: 126 | From Florida | Registered: Aug 2007
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bettyg
Unregistered
posted
brenda, that's wonderful; 1 mile; you've got your own support group then! lol
phyllis, i changed the nos. per your request! fantastic; growing, growing; the seed has SPROUTED !!
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Boy I could only wish for YOUR weather.
I am sure it is warmer than HERE. being around zero with 30-40 below wind chill.
Yesterdays was the all time least fav THAT on top of 55 mph wind gusts,,,hold on to thar hat!!! Dunno what thewind chill was,bexides cold.
paying 20-30 bucks a day to stay warm and the house not to freeze is quite silly!!
Pining for Southern HEAT!!
Glad you made that neighborly contact to support BOTH of you,,,find some more,,,they are out there!! PLUS tons of them that dont even KNOW!!! half a country away--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Through e-mails with T, she has informed me that there are a ton of people here in Wakulla County that have Lyme Disease, and all of them have to seek treatment from LLMD's out of the area, because there aren't any in Tallahassee or Crawfordville.
I told her we need to start a support group here to get the word out. We are going to discuss it over lunch.
Just Don -
According to my hubby, the weather is great here, by Saturday and Sunday we should be in the mid 70's with 0% chance of rain. We're taking the boat out and going fishing on the river.
I don't think I could stand the cold weather, it would hurt tooooo much.
Try to stay warm.
-------------------- OK...I'll play your silly games.
Finding my happy place.
Brenda-Lee Posts: 126 | From Florida | Registered: Aug 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
kb...
Once you are done finding your happy place...
Can you get your Congressman to sign on as a co-sponsor to the Lyme disease bill?
VERY important!
I am working on Florida now.. as is Blue.
But we need the northern end of FL to hop to it and get that part of the state rocking and rolling.
Here is a link below with more details... but...
I would suggest to do it the easy way and just call the office and say..
"I would like the Congressman to sign on as a cosponsor to the Lyme disease bill (HR 741)".
It is as simple as that.
Of course you can tell them why it is important to you and some of your troubles... which always helps... but a short and sweet call is great.
For folks working.. they can call in the evening and leave a message on the machine. Just be SURE to have them leave their name and address too.
Oh... you can also get all your friends to do it too... just by sending them an email with the Congressman's name and number on it.. and the line that I said above.
It will REALLY help me when I contact them later to "deal". They need to hear from their constituents first though.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/